having a very hard time of it

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Date Joined Nov 2005
Total Posts : 208
   Posted 12/8/2008 9:34 AM (GMT -7)   
OK, so between my fibro and other health issues I'm going insane! My rhuemy is labling me with undiff. Spond. instead of Ankylosing Spond. since I have not fused yet?? OK, well the MRI says I basically have AS but since my SED rate is within the normal range and I don't have the gene (which about 70% of people with AS have) I must not have it "yet." The treatment for it is working as well as we thought it would so now he's kind of ignoring it and trying to go with the fibro instead. Throwing different medications at it, none of which work even in the slightest.
My pain dr convinced me to try an SI joint injection saying it may help, well the pain from it put me into a bad fibro flare. Then my grandmother died yesterday and the stress from that and crying made my flare into a horrendous mess of sore tight muscles and an exhaustion I can't bare. We lost power last night and by the time we crawled out of bed this morning the house was down to 52, it was 11 outside! I made myself go to work just to get warm. Now I'm tired. I want to go home but I can't just yet. My husband and I work at the same place and he's launching a new site today and needs to be here for it. I'm too afraid to go home on my own then come back to get him. I'm just too tired. I'm so depressed and worried about my grandfather. It's really effecting my health. I tell you crying hard really hurts costo!!
But some ray of hope, my one SI joint is feeling ok. Not great but better then the other side. Of course I'm going to request being knocked out and having them do both at the same time if he wants to do it again. The pain was too bad, even with the vicodin and xanax. Of course him, his nurse and I all had a good laugh at me giggling before hand due to the xanax!

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Date Joined Apr 2005
Total Posts : 17501
   Posted 12/8/2008 10:44 AM (GMT -7)   
I'm so sorry for what you are going through right now.  It's difficult enough to have the pain but to add in losing loved ones......Your grieving is stressful but the crying does help.  Your Grandmother is in a great place now and has no more illness or worries.  I know that thought gave me peace when my husband passed on.
My BIL has AS and was given special exercises to do and it did help him a lot.  He used to be a golf pro and had to give it up because of AS but now he is playing golf again.  You might see if there is something like that to help you out.  I really don't know enough about AS to give you more help.
Try to rest and stay warm.  I'm sure the next few days won't be the best in your life, but they do get better.  Let us know how you are doing.  We really do care.
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God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 12/8/2008 11:34 PM (GMT -7)   
I am so sorry for your loss and having to go through both physical pain and the loss of someone. I wish there was something I could say to help you except for the age old time helps, your pain spec sounds good at least.  You may need something to help you sleep somethng extra during your time of greiving.   from sue2z sad sad
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Date Joined Aug 2007
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   Posted 12/9/2008 9:21 AM (GMT -7)   
Kris I'm sorry for your loss. Then to lose power on top of it, the cold didn't help you any. Grief hurts physically and emotionally.
You know we are here for you.
luv and hugs
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Regular Member

Date Joined Nov 2008
Total Posts : 98
   Posted 12/9/2008 10:02 AM (GMT -7)   

I'm so sorry that you're going through all of this. I hope you start to feel a little better soon.



Regular Member

Date Joined Nov 2005
Total Posts : 208
   Posted 12/11/2008 6:48 AM (GMT -7)   
Well I'm only at work right now so my husband didn't have to drive home in the ice storm to take me to the dr. I went to the gyn yesterday and she wants me on xanax to help me deal with my anxiety with all this going on. So luckily my primary could get me in fairly quick. I'm still not doing well. I've talked to my grandfather a few times now and I feel so bad for him. I told him how sorry I am that I can't come out with the rest of the family but he knows of my health and said he knows that if I could I would be there and that's enough for him. I also know too many people around him may be stressful too (there's already 11 people there with him just with family and many MANY friends with him.) He even joked about needing a new fridge because of all the food he's getting.

Today we're getting a bad ice storm (up to 1 1/2"!!) and will most liekly lose power again! So we're stocking up on batteries and food today and are hoping for the best.

One good ray of hope is I think the cortisone shot may be slightly working! But I told my husband I hope to avoid the stress and flare from another by maybe asking about twilight sedation. Next time I want him to do both SI joints not just one.

Thanks for all your thoughts.
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