Hypoactive Thyroid Question

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Regular Member

Date Joined Nov 2008
Total Posts : 159
   Posted 12/8/2008 6:53 PM (GMT -7)   
I was reading a piece by a Doctor that was claiming that every single diagnosed Fibromyalgia case that he ever treated was caused by a Hypoactive Thyroid and that most of them had been misdiagnosed as having a normal thyroid function because most Doctors only ran the TSH test and it was showing false normals. He claimed that when complete test are ran, that show free T3 levels, T4 to T3 conversion, or whether there is Thyroid Antibodies indicating Hashimoto's, or high Cortisol levels that inhibit T3 binding, that virtualy all Fibro sufferers have impaired metabolic function centered on the Thyroid. In addition, he claimed that when properly treated, 75 percent of Fibro sufferers will fully recover. Of the 25 percent that do not fully recover, the factor was always that they had been long term narcotic pain killer use.

So, I have a question for the folks in this forum. How full of beans does this fellow appear to be? How many here have had very thorough thyroid testing and came back as normal. How many have Thyroid problems, and are being treated for it and has it done you any good on the Fibro and CFS.

Personaly, I am going to my Doctors lab tomorrow and getting every Thyroid test there is. I have a ton of Hypoactive Thyroid symptoms, and have had the TSH test come back normal twice over the years. I want to see what the other test say. Apparently there is supposed to be a inverse relationship between Cortisol levels and Thyroid, so I will probably go to a Naturopath to get those Cortisol test.

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Date Joined Apr 2005
Total Posts : 17500
   Posted 12/8/2008 6:59 PM (GMT -7)   
He's full of beans.  Don't you think the doctors would have figured that out if it were that simple?  Yes, many people with fibro have hypothyroidism.  I was diagnosed with it and then, when they did the repeat blood work, I was normal.  There are some on the forum taking meds for it and they still have fibro.  They aren't "cured" because there is no cure.  The medical community doesn't know what causes it yet.  There are doctors that have spent their careers searching for answers and I'm sure they would have realized this and we wouldn't have a need for this forum!
If you search long enough you will find many "cures" out there.  They sound convincing, too, but the only thing they do is lighten your wallet.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Nov 2008
Total Posts : 159
   Posted 12/9/2008 12:28 PM (GMT -7)   
Thanks Sherrine.

I was just mainly wondering if any had complete testing that was normal on the standard test and came back hypoactive on the full testing and were treated for a long time and even showed improvement.

Mainly I was wondering this because on me it was extreme stress for months, finally complete insomnia for days that my MD ignored, which then became severe depression that went untreated for 6 months with high anxiety and constant panic attacks. By the time I finally got the anxiety and panic syndrome under control without meds, months latter, I was left with very serious CFS and then it turned to Fibro area by area. So there is a traceable string of events that lead back to a extremely stressful and prolonged life event. I guess that is common in allot of people with Fibro. But on me the CFS was predominant before the fibro showed up, so I am wondering what did the extremely stressful and prolonged life event change. I've been wondering that for 13 years. I used to be able to excercise and therapy myself out of most of the Fibro symptoms. Can't do that anymore. My excercise tolerance has gone to almost nothing. But nothing I ever did changed the CFS part much.

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 12/9/2008 12:58 PM (GMT -7)   
There is an absolute correlation between Fibro and Cortisol levels.  I'm read a very current book written by doctors called "Fibromyalgia and Chronic Myofascial Pain, Second Edition".  It talks about the HPA axis (Hypthalmus, Pituitary Gland, Adrenal Glands).  When the two glands in the brain - Hypothalmus, Pituitary, send out signals to the adrenal glands (which sit on the kidneys), the message is all messed up.  The result is that the adrenals then pump out way more cortisol than is needed. 
That is why so many of us have anxiety disorders!  Cortisol is the "fight or flight" hormone.  When you have an adrenalin rush, that is the cortisol or adrenalin working.  Anxiety and cortisol is very closely linked.
This is another reason why Prednisone is so bad for anyone with Fibromyalgia.  We already have too much cortisol in our bloodstream.  When we add prednsione to the mix we are on overload.  The result = pain.  I have a terrible time balancing my prednisone doses.  I have to be on prednisone because of my lupus.  For me it's a catch 22.
So the best thing we can do for ourselves is manage our stress levels.  Keep the cortisol down.  Easier said than done!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Regular Member

Date Joined Nov 2008
Total Posts : 159
   Posted 12/9/2008 2:13 PM (GMT -7)   
I was actualy talking about the Cortisol connection with my Doctor this morning, when he was ordering which blood test to take. I have to go early in the morning because he added Cortisol to the list. I doubt this will do much good, running that test, because I already know its high allot and what the test says on a one shot look isn't really going to mean anything. As far as the fatigue goes though, and what I was asking about thyroid. My understanding is that high cortisol blocks Thyroid hormone from binding to muscle cells. So you could not be hypothyroid, but if your running on lots of cortisol, the end result would be the same. But you wouldn't be able to treat it by adding Thyroid supplements. That would just make you the equivalent of Hyperactive Thyroid and you would have even more stress.

I guess in my case, all I can speak for, is getting my life back to where the outside stressers are as low as possible. Its that or go back on Elavil and Paxil and let it drive me nuts and have a ton of side effects for months. I did that once for a year, was seriously disfunctional the whole time, and then forced myself to go back to a physicaly demanding job that exhausted me everyday, ate a ton of pain and days I barely had the energy to walk for about a month, and then went off the drugs, and its probably the best I have felt in 13 years. That heavy load of anti depressents had me either wired, or wiped out the whole year, but they accomplished something brain wise. When I came off of them, I had the highest consistent energy level, the lowest pain level, the lowest stress level and the best focus I have had in all these years. A year on them was quite a price to pay for it though, and then 5 months latter when I lost the job and life got real stressfull again, it all came back and more.

Terrie B
Regular Member

Date Joined Mar 2007
Total Posts : 90
   Posted 12/9/2008 2:19 PM (GMT -7)   
Just last week my doctor was talking to me about this very same thing, except he didn't say anything about the cure thing. What he told me was that the normal test they run on your thyroid MAY come back showing a normal function, but what it is showing is that they thyroid is pumping out cells, but not what KIND of cells. He kinda explained the same thing that you mentioned, although I don't remember all the details. We went over a whole mess of test results and my memory stinks!

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