some questions?

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Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 12/9/2008 7:48 PM (GMT -7)   
Actually, I'm not really sure what my question is... I'm a little uncertain and need some advice I guess.

The second week of November I saw my NP. I felt so good, I almost felt cured. I told him my tingling was gone, I had pain but no aches, and I was exercising lots. I did have trouble sleeping still, so he upped my amitriptyline to 15 mg, and said I could go to 20 a week later. But it helped so I stayed with the 15 mg. A few days later I forgot my malic acid for 2 days, and I went into a flare. Weakness, fatigue, aches, depression.... I'm just getting better now, three weeks later.

During the time I was sick, I contemplated going to go see him again in January. I would need a new script anyway by then. BUT, I thought the appointment would be up to me, I could just call in the script. Not so, and since I'm going to run out before the end of the month, I have an appointment on Thursday.

do I mention how bad I was feeling? Do I mention the depression? He had mentioned depression this summer, and I was so offended. I told him I had the depression b/c of the constant fatigue and aches, not the other way around. But this last time, I wasn't so sure. I can deal with some pain, but not the fatigue and aching. I had a really hard time accepting the DD and coping this last flare. But could he do anything about it anyway if it happens again? So what is the point of bringing it up?

this is very similar to some other threads posted today I noticed, I'm sorry. I just feel really confused.

Also, how do you rate your pain? I think I have a handle on how to rate my pain. I go by my C-sections, and some horrific knee pain I had 2 years ago. But I don't know how to rate aches, if that makes sense? An aching body doesn't hurt that much, really. I mean, if I try to rate it, I usually have it pretty low. but in the end, an aching body bothers me more than pain. I can't help myself when it's not localized, like with heat; I don't cringe or wince in pain; I can still move. But it does bother me and wear me down much more. So how to rate it? I don't want to minimize it when I talk to him, but I can't in all honesty say that it hurts. At it's worst, my facial pain this summer I would have said was a 7-8, but most days it was about a 4. Those days hurt me more then the severe pain that was only in one part of my jaw.

Does anyone have any words of wisdom for me? A hard task when I'm not even sure what the question is! rolleyes

One last thing, I promise! lol. During my flare, I couldn't exercise for the first week. Then as I felt a little better, I tried to, but it was nearly impossible. After only a few minutes, my muscles felt so weak and shaky, I felt like I would collapse. Even in the morning when I first would wake up, my arms and legs felt like they were buzzing. Not the tingling I used to feel before, but as if my muscles were on the verge of collapse, like they had been strained to the limit. Is this a common occurrence with fibro? Should I mention this too to my NP?

Sorry about such a long post! And thanks for reading. Soft hugs to you all.
Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline

Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 12/9/2008 8:32 PM (GMT -7)   
I just had a shower and thought of a way to make this post more concise. idea

How do you know when to say, "You have fibro, learn to deal with it already!"


"I can't deal. I need help, fix it, or find something that works."

Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41818
   Posted 12/9/2008 8:47 PM (GMT -7)   
If I were you, I would mention everything to your doctor when you see him. When you rate your pain from 1-10, think of the most excrutiating pain that you can think of as a 10. And go from there. I am always at a 3 or 4. Meaning that I always have pain. When I am bad, I am at a 7 or 8. To me an ache is a pain.

I hope that this helps some.

And I think that we are all stuck 'living with it'. I hope that you feel better soon.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 12/9/2008 8:53 PM (GMT -7)   
Hi Mamanan,

I'm foggish today so didn't comprehend all of your post, but it did spark a few thoughts, and here they are:

1. no, you're not mad in finding it difficult to rate your pain, and thinking that aches are different from other types of pain that you've had. A study was done a few years ago showing that organ pain and muscular-skeletal pain are very different from each other, and need to be treated quite differently. Also, I know exactly what you mean by moderate pain wearing you down over time. I think we can deal with a short burst of very severe pain, but even pain at a 5-7 can leave you almost falling apart if it drags on for weeks. I think that's why "they' say that it's important to get on top of pain as soon as you can, instead of letting it drag on, untreated. Do you have access to strong pain meds?

2. If exercise doesn't work for you, perhaps a different type of physical activity might. Can you do some gentle stretches? It's possible to buy little free-standing pedals; maybe you'll be able to lie on the ground and pedal those even when you're unable to do anything else. Experiment, ask around, and see what alternatives you can find. (I also think that even a tiny amount of exercise can help; these little movements all add up over time and help make us stronger).

Best wishes to you,

Ivy (still ffinding her feet with fibro too)
Co-Moderator Crohn's Forum.

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