I have just about had it!! Don't know what to do!

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Veteran Member

Date Joined Mar 2008
Total Posts : 519
   Posted 12/11/2008 4:32 PM (GMT -7)   
Hi everyone,
I haven't been on for awhile and I really miss it. I have been in a bad flare and it seems like I've found some new symptoms I never had before. I don't even feel like sitting in front of my computer. I am so mad & confused anymore. about the time I think I am feeling better, everything turns around and I'm back to hurting.
I can hardly go to work anymore and I only work 3 days a week! It hurts to walk, sit, or anything. I also am having trouble staying awake. I fight to keep my eyes open when driving. At home If I sit, I fall asleep. When it comes time for bed though, I am usually up 3-4 times a night!
I have been wearing slippers for the last 2 weeks because I can't stand to have anything touch the back of my heels. I guess I just needed someone to complain too. My hubby just doesn't get it yet, so can't talk to him about it.
I wish I could talk to him. I don't know how much longer I can keep working like this and I sometimes wish I had his opinion on things. I feel so lost right now on what to do. Oh well, I guess I'm done for now. I appreciate everyone listening to my rant! I don't know what I would do if I couldn't come here.
Thanks & I hope everyone is having a pain free day.
Hugs!!   Margie

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Restless Leg Syndrome * Depression*Fatigue*Allergy/Sinus

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41820
   Posted 12/11/2008 4:46 PM (GMT -7)   
It is so obvious. Talk to your husband Margie. It sounds like you really need to and that he is a compassionate person. And you know that you can always come here to let things out. I am so happy that you have found us.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Green Grove
Veteran Member

Date Joined Oct 2008
Total Posts : 2424
   Posted 12/11/2008 5:47 PM (GMT -7)   
Hi Margie :) I sure hope things start going better for you pain wise and with your hubby. . . Just have a talk with him about how you feel. I know it is hard sometimes, but we are in relationships to have somebody there for us. For better or worse, remember? :) Anyway, communication is key for any type of relationship to work sucessfully.

Good luck!
Much Love, Hugs, Peace & Comfort :)

Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 12/11/2008 7:22 PM (GMT -7)   
I'm so sorry you're goign through this right now. Like Karen said, you know what you need to do, you need to talk to your dh. I know it's hard, even if our loved ones try to understand, they have no idea what it's liek. And that's where we come in.

I really hope that you are feelign better soon. It's so frustratign not to be able to do the things you once enjoyed. I sincerely hope that you can overcome this soon. Hang in there, it can't last forever!
Waiting for appointment with rheumy (March 2009) to get an official dx. waiting, waiting, waiting....
Taking malic acid/magnesium combo, what a life saver! and amitriptyline

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 12/12/2008 7:14 AM (GMT -7)   
Hi Margie-

I hope this bad flare will settle down for you soon-

It has got to be miserable being at work and having all that pain no matter what you do. I would be frustrated too! Are you taking medication for the pain?

Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 12/12/2008 6:17 PM (GMT -7)   
My husband took three years to understand the depth of pain.  I also fall asleep constantly when sitting despite the fact im in pain all I do is drift in and out all day.  You are the first ive come across who is similar.  It hurts no matter what positonn im in and I really cant adjust mentally to it.  Im afraid of the pain all the time.  Just wanted you to know you are not alone.    sue2z confused mad sad
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

Regular Member

Date Joined Aug 2008
Total Posts : 96
   Posted 12/13/2008 2:53 AM (GMT -7)   
Hi, I too fall asleep constantly if I am sitting still. Six months ago I was fine and full of energy. Then this fibro thing hit and my life changed drastically. I know how you feel. I am only working 3 days a week also. I have to drag myself through my work day. I don't know what's going to happen to my husband and I finacially if I can't get back to working more hours. I am so afraid of the pain.

bulging discs in neck & thoracic region, low back pain, arthritis in lumbar region, diabetes, high blood pressure, depression, anxiety,
meds: enjuvia, pristiq, actos, amaryl, lyrica, hyzaar, elavil, ultram
"Two paths diverged in a yellow wood, and I, I took the one less traveled by...And that has made all the difference."  Robert Frost

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 12/13/2008 9:26 AM (GMT -7)   
Margie, our weather that seems to be forever changing doesn't help. Windy today, rain tomorrow and 55 then Mon the high is like 22 with snow. I know I hurt more this morning but don't know if it's from the weather changing or my shopping trip yesterday.
Are you stressing over the holidays??? I pretty much finished my shopping yesterday so that is one big stressor out of the way.
I wish you could talk to your DH about how you feel. It took mine a long time to get it but I kept trying to educate him about fibro with telling him how I felt and having him read info on the internet and I think he gets it as much as someone without fibro can get it. You really need his support but he can't support you if he doesn't know what is going on with you.
I really hope you start feeling better.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Veteran Member

Date Joined Mar 2008
Total Posts : 519
   Posted 12/13/2008 12:53 PM (GMT -7)   

Hi everyone,

I am starting to feel a bit better. Sometimes things just get too much and I have to let it out. My dh just doesn't seem to get it. As I've said before, he thinks all my doctors are quacks and will tell anyone anything just to get their money!

I am taking quite a bit of meds right now. My Rheumatologist has been changing things around till we could find something that worked. The thing is- when I get to really hurting it seems like nothing helps. I am never without pain even with the meds. Right now I am taking: Cymbalta, Naproxen, Clonazepam, Cyclobenzaprine, Zolpidem(for the bad nights) & for pain: Hydrocodone & Methodone.

It is ridiculous, all that I am taking and still I hurt. Sometimes I think I am on too much and other times I feel like the dosage should be more. Oh well, just wanted to thank everyone for being there and to let you know I am feeling better.
Marlee- I really love this time of year and really haven't been stressing much. I am actually enjoying being in our new home and sitting by the fire at night. (I think I mentioned when I first joined that we were moving to a smaller place because I just couldn't keep up with all the rooms, that is why I was not online for a few months - alot of packing and we had an auction to get rid of 20 years of accumulation)
But, anyway I really am so happy we finally got moved and settled in. It has been a big change, but everything has gone great. I don't think I have been stressing that much, but who knows what sets these darn flares off!
Hugs!!    Margie

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis*Sleep Apnea*Restless Leg Syndrome * Depression*Fatigue*Allergy/Sinus

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