reality hits hard.

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Regular Member

Date Joined Nov 2008
Total Posts : 40
   Posted 12/14/2008 1:44 AM (GMT -7)   
I am having a hard time right now with fibro. I haven't been diagnosed yet, but everyday seems more and more like I've found what's wrong. I am relieved in a way, but I don't feel like I can tell anyone. I have one friend who understands whole heartedly... she even researched fibro pretty extensively to understand what I feel, but she is the only one. I feel like through this journey of my body being "broken" many people have labeled me as a hypochondriac. They assume that I'm making things up, or cry wolf for every little thing. It's hard to explain to anyone that I KNEW my body just wasn't right. However to their credit, I have always "looked" healthy. I am feeling really discouraged... sometimes I feel like it really is all in my head, that I'm weak, or maybe a hypochondriac. Tonight was the worst, a friend boy just came back from college and I was cold and tired. I went to hang out with him, but I was real snappy and grumpy and he couldn't understand why. He would be the first to say "oh stop whining", so I just kept quiet and told him I had just woken up early today. I don't know if anyone else understands, but tonight was one of the first nights I realized how this was going to rearrange my life a little more than I would like... and tonight I really did wish it was all in my head.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41827
   Posted 12/14/2008 4:17 AM (GMT -7)   
I think that we all go through this at one point. People see what looks to be a healthy human being and can't understand what is up. Most of the time I dont' even mention the fibro. I get sick of hearing the comment, isn't that where people think that they are sick. So I don't even go there anymore. But your bf should understand by now that you don't always feel good. And quit thinking that you are just grumpy from time to time. Is there anyway that you could educate him on this? Maybe print out some of the posts on here, or get some pamphlets for him to read, or even some info off of the internet? That might help him to understand. I hope that you feel better soon.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Oct 2008
Total Posts : 99
   Posted 12/15/2008 7:43 AM (GMT -7)   
Don't give up. I always knew there was something else wrong with me other then the endometriosis and for so long I was given the "Hypochondriac" label by friends, family, partners, employers, etc. But you just KNOW your own body and when something's up. Finally I had to make an appt with my pcp and when they asked what it was for, I straight up said that I wanted to talk to him about Fibro. *I* had to bring it up to get a diagnosis and even then, he still never did a tender points check or anything. He just went off the symptoms I told him. Honestly, I think he just wanted to shut me up.

Now that I know I have Fibro, it's hard to explain to people...particularly about the fibro fog or the fatigue. They think it's just me being "lazy" or "airheaded". Don't they know that I would LOVE to be able to see my friends and not feel like I'm going to need a week-long nap after seeing them for 10 minutes? It's very frustrating. When I told my employer about my FM diagnosis, she asked what it was and I told her and she told me my doctor must be "a quack" because that's "the most ridiculous thing" she's ever heard because "everyone gets tired and forgetful as they get older" (Yeah but I'm only 28).

It's a relief when you get the dianosis, but it still doesn't seem to make it easier for people to understand.

I've come to realize most people just plain suck lol.
Endometriosis since 2002 diagnosis via laparoscopy
5 laparoscopies for Endometriosis from 2002 - present
Anxiety since 2004
Post Traumatic Stress Disorder since 2005
GERD since 2008
Fibromyalgia since 2008
Colonoscopy - 2008
Endoscopy (EGD) - 2008
Currently in Physical Therapy for Pelvic Floor spasms. Also for lower back, hip & thigh muscular problems.
* Baclofen
* Xanax for Anxiety
* Fish Oil Capsules
* Iron Pills
!!! At my wit's end with being "broken" !!!

Banana Bread
Regular Member

Date Joined Oct 2008
Total Posts : 57
   Posted 12/15/2008 8:09 AM (GMT -7)   
I can definitely understand that.  I went over 10 years without a diagnosis, with people telling me I was just lazy and "it's all in your head."  Now that I have a diagnosis, I have a little more sympathy from my family, but unfortunately my husband still thinks I should just suck it up and deal.  I never know what to say to him and I hate to act tired or complain about my pain because I know he's secretly thinking I'm a big baby.  Some people will understand, some people won't.  My husband doesn't have to believe that I'm really tired- but he does have to let me sleep in sometimes, whether he likes it or not.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 12/15/2008 8:18 AM (GMT -7)   
LilMissSunshine, I have grandchildren in college and I know the life they live when they come home on breaks and get together with old friends. My grandson becomes nocturnal and stays up most of the night and sleeps most of the day. I can't imagine him understanding what living in a fibro body is like as active and healthy as he is. My heart goes out to you and all the young people we have on here that can't enjoy a normal young life because of this DD. Yes, you can live a good life but not at the pace your friends do. I'm sure you feel isolated and left out a lot of the time.
We can only hope and pray that they find better meds or cause and cure for this DD.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 12/16/2008 1:30 AM (GMT -7)   
Im so sorry what your going through as I know we all go through it.  In the beginning everyone told me how well I was looking no one took it seriously the ones who didnt I no longer see, having to pretend is to hard. As for accepting it I still havent I am conscience of it always.  good luck with things.  from sue2z sad sad
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

New Member

Date Joined Dec 2008
Total Posts : 10
   Posted 12/19/2008 10:29 AM (GMT -7)   
Sweetie, please take my advice! I've had fibro since there wasn't a name for it. For years I blamed myself & went into a deep depression so bad I didn't want to wake up in the morning. I stayed like that for 4 yrs! Get hold of a small book or good article & show to your family & friends. It's a lot easier than having to define the 1001 symptoms. Good luck dear!

Regular Member

Date Joined Dec 2008
Total Posts : 176
   Posted 12/19/2008 8:38 PM (GMT -7)   
I agree with finallypainfree, I would get something from a website or something and show it to whoever you feel doesn't understand. I've had my husband read about Fibro and he sees that I have so many of the symptoms and the pain I complain about is the same as the pain they speak of in the articles. I think it made him understand better and "believe" me in a way. I was always called a hypochondriac but this is the one thing everyone believes me about, they can see the pain in my eyes. And as for being diagnosed, it was simple for them to diagnose me... I had all the tender points, almost EVERY symptom, and the first rhuemotologist I ever went to knew right away. You have all the support here!! And good luck with being diagnosed!

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