My FMS Anniversary and Provigil

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Date Joined Oct 2008
Total Posts : 111
   Posted 12/17/2008 3:26 AM (GMT -7)   
So this month marks one year for me since I developed my first memorable fibromyalgia symptoms! It all started with unbearable pain in my wrists, which I still have since all my doctors think the aching in my shoulders and back is more important. I'm so happy that at least I know what I have now and I can manage it to some extent. It's been a long time since I had the "hit by a truck" all-over aching that kept me in bed almost all of last winter except for a very stupid attempt at skiing with friends like a normal person (after one run, I ended up napping with my head on my arms on a table in the lodge for 3 hours).

Anyway, my rheumy prescribed me Provigil recently to treat my fatigue. She's started me on half a tablet in the morning, plus another half six hours later if I need it. I've only taken it once, one morning, because my sleep schedule is so messed up that I keep getting up at 3pm and that's hardly "the morning." It made me feel kind of caffeinated, which is something I haven't felt in a LONG time. For the most part I avoid caffeine because my mom has a heart murmur and never bought anything that wasn't decaf (except chocolate) for us so that it wouldn't tempt her. When I first starting consuming caffeine it gave me a huge energy boost and it was awesome for last-minute papers in high school. But within a couple of years it stopped doing anything more than keeping me awake even when I was tired.

I'm wondering if any of you take Provigil and what your experience has been with it. Because I'm not used to the "wired" feeling that for most people comes with two cups of coffee, I'm not really sure that it's healthy to get that feeling. At any rate, I'm sure to find out what else it makes me feel seeing at it's past 5am and I haven't gone to sleep yet and need to be up at 9:30 so I can leave at 10 for a six-hour drive to Rochester, NY to visit a friend. I should note that a road trip is not as agonizing for me as I think it would be for some of you. When I'm in college I make the 3-hour drive home most Fridays and back most Sundays. I've learned how to manage time in the car. Also, I have a Buick Rendezvous and because it is huge I drive sitting upright which is a lot less stressful on my legs than sitting in a sedan. It'll be harder than the last time I made the drive to Rochester two years ago, but I don't anticipate much trouble. My body tends to put itself in a state of suspended animation when I make long drives, so I don't have to eat much or go to the bathroom a lot. Two years ago I made the drive back from Rochester in only five hours, stopping only once halfway to gas up, go to the bathroom, and buy some doughnuts.

Now that I'm completely off-topic I think it's time to end this post.

Thanks for any feedback or comments!

Diagnosed with fibromyalgia February 2008.
Vitamin D supplements, Provigil in the morning, and Temazepam at night
Rhuemy considering Effexor or Lyrica pending neuropsychological testing

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41820
   Posted 12/17/2008 8:23 AM (GMT -7)   
Hi Kitty,

Happy anniversary, I think...LOL...

I took provigil and couldn't tolerate it so they put me on adderall. It doesn't give you that gittery feeling, just energy. So talk to your doc about that. Sometimes the shakiness will go away though, so it might be just a temporary side effect. But the adderall really works well for me. Plus I take the malic acid, that helps with energy too.

Best of luck to you. I don't envy you with the long drives.

Luv and hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Forum Moderator

Date Joined Apr 2005
Total Posts : 17497
   Posted 12/17/2008 12:03 PM (GMT -7)   
I don't take Provigil but I know Chutz does and really likes it.  She said that she doesn't get "revved" up by it, though.  She is not feeling great right now so I'm answering for her.  wink
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jun 2008
Total Posts : 726
   Posted 12/18/2008 1:34 AM (GMT -7)   
Hi Sandi, I have tried Provigil & couldn't take it.  It gave me a real hungover druggy feeling.  Those were deal breakers for me, it was worse then the symptoms I was trying to get rid of.  She started me on 1/4 tablets because she said it can really give you a wired feeling.  I'm glad I didn't ever experience a half tablet. LOL.  Like everything else, I'm sure some take it & love it.  Hugs, Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren.

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