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Regular Member

Date Joined Sep 2008
Total Posts : 56
   Posted 12/17/2008 10:17 AM (GMT -7)   
If any of you don't remember me I have posted a few times about my situation with being on disability and medicaid. I posted that i was recently told my the Practice Manager at the pain clinic I go to that because Medicaid "pays for nothing" I will not be getting the proper treatment that I need to be well.

This to me is unacceptable and unethical. This has really been bothering me and I feel I need to step up and do something. I had to stay home today due to pain so I thought I would do some research. First of all I began working at my part time job in 2002. I immediately lost my SSI which I figured was fair since I would be working. I have however recently printed out the 2008 red book from Social Security for disabled working people and there are cases when people work and have SSD and SSI. I want to find out if I was dropped unfairly.

I am also trying to obtain as many of my medical records as I can for as far back as I can. I would like to prove that I have attempted to find help for my pain and depression for almost 20 years. It is true that our health care system is in a shambles but I do not think this should allow doctors and other professionals to neglect and outright ignore patients health issues.

In short this is the deal: I am on disability (which is not enough to get by) I have to work and can only work part time. My disability is getting worse due to lack of proper treatment. I can barely work anymore.

I asking everyone on here to chime in and give me you thoughts, ideas, etc as to where I should start.

Veteran Member

Date Joined Nov 2008
Total Posts : 1097
   Posted 12/17/2008 11:23 AM (GMT -7)   
hi telula,

are you on permanent disability? i ask because both of my parents are on permanent ssi disability, and they can work without losing benefits as long as what they make does not exceed what they gets every month for ssi. also, even if they exceeded the ssi amount, they would only take away a percentage of the ssi, not the whole thing. (unless they were making REALLY good money, obviously) my dad is a musician and makes a few hundred dollars a month from that, and my mom has a part time (about 20 hours a week) job, and they haven't had any problems keeping their ssi at all.

this definitely something you need to look into!

hope you are able to get this straightened out soon..


Regular Member

Date Joined Jul 2006
Total Posts : 384
   Posted 12/17/2008 11:52 AM (GMT -7)   
Your best bet would be to write to your senators and representative about your disability drop. You would also do good to include the quote from your pain management dr. stating that you will not get the care that you need.

If you suffer severe depression, you might be able to get disability based on mental health issues faster than anything.

We are still trying to get help via the VA and the SSDI for my husband. Our daughter wrote email last week from overseas complaining about the run around that we are getting and the Admiral wrote us a letter yesterday stating that they are trying to speed our case through the VA process.

Call even your local state rep. in the capitol of your state. Maybe they can help you also.

We were told that you can work a few hours and still keep your SSDI. My husband is so bad that he is only up for an hour or two at a time, so there is no way he could work.

Regular Member

Date Joined Sep 2008
Total Posts : 56
   Posted 12/17/2008 12:20 PM (GMT -7)   
I am on permanent/partial disability for severe, treatment resistant depression, anxiety, PTSD, fibro, and deg. disc disease. I have had so many problems since i began working. For example: recently I was sent five different letters within 2 weeks. each one contradicted the next.
Basically there was a couple that said i was losing my benefits with no explanation. then there was one that said my benefits were reinstated and then another that said they had new info about my job that would cause me to lose my benefits.

the last one had to have been based on the info I sent them last month when they told me I was over paid and owed them 6 grand!!! I fought that and the only new info they had was from that. I was found to be too poor to pay back supposed overpayment. They decided it would cause a hardship which it would have.

I never get called back when I call the numbers. I left several messages with detailed contact info and nobody bothered to call me back. I also wrote letters and got no reply.

I plan on mentioning the comment about not getting any treatment but there is no way to prove it.

Regular Member

Date Joined Sep 2008
Total Posts : 56
   Posted 12/17/2008 12:24 PM (GMT -7)   
Just for the record I do NOT understand how the govt can give veterans such a hard time. I don't see any of those public officials going without. that really burns me.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41836
   Posted 12/17/2008 7:28 PM (GMT 0)   
I am sorry to hear about your difficulties with ssdi. I hope that you get it straightened out soon. It sounds like you can't work to me. So if I were you, I would reapply. Can you do that?

It is too bad that the rules are as they are. And that it is so hard for people to get the help and care that they need.

Best wishes to you

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Sep 2008
Total Posts : 56
   Posted 12/17/2008 12:35 PM (GMT -7)   
Thanks karen,
I am working on it. I am really not able to function at my job the way I could even two years ago. It is getting harder and harder. It takes me at least two hours to get ready and when I get there I am already wiped out.

I took today off and mentally I feel ok. When I am at work I am in so much pain I can't stand it. 4 hours feels like 4 days! I don't know how to reapply because i am still on SSD. I lost my SSI when I started working and I want to figure out if I can get that back in case I need to leave my job or cut way down on my hours.

Regular Member

Date Joined Sep 2008
Total Posts : 56
   Posted 12/17/2008 6:15 PM (GMT -7)   
Anyone else have any ideas or advice on this?
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