new, also have crohn's, very confused

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Regular Member

Date Joined May 2004
Total Posts : 61
   Posted 12/24/2008 10:18 PM (GMT -7)   
Hi to all, I'm new to this forum and wanted to say hi and see if I could get some advice. I am 48 and have been dealing with Crohn's disease and Crohn's related arthritis for about ten years now. For the past year though, things have taken on a different tone and my rheumy diagnosed me today with fibro as well. The arthritis I have is painful, but it's always been limited to a joint here and there and very migratory... now it's an all over sore and achiness and extreme fatigue as well. What confuses me is this.... I am also running low grade fevers, would this be part of the fibro? Also, he wants to add more meds and since I am on so many, including immunosuppresants and steroids as well as humira, I am very resistant to add more, what would your recommendations be for a starting medicine? I feel quite overwhelmed to be dealing with yet another diagnosis, thanks so much in advance for any advice and happy holidays to everyone!


Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 12/24/2008 10:32 PM (GMT -7)   
Sometimes you can run low grade fevers with fibro. they can be uncomfortable.

I am sorry that you have been diagnosed with this. Medication can be hard pills to swallow (I just had to say that). However, with fibro we do need some relief. The pain can be relentless. I take medication for it and it helps me a lot.

However, I can understand your hesitation. With Chron's and arthritis you can take enough medication. Judge how you feel. sometimes it can be just too much.

Welcome and happy holidays.


Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 12/25/2008 1:01 AM (GMT -7)   
What fibro med is your doctor recommending, snow?
Co-Moderator Crohn's Forum.

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 12/25/2008 7:43 AM (GMT -7)   
Hi Snow. I welcome you to the Fibro Forum, it seems to be one of the livlier forums on Healing-well. I belong to three, two for me and one because I care for my Dad late stage II alzheimers. So, new med for new diagnosis. There isn't anything out there (yet) to cure Fibro, although I think the Research and Development folk are getting closer to figuring out what will fix it. Personally, I believe it's all part of the endocrine system(hormones), and that figuring out which body chemistry regulator is out of whack, and fixing it, could take us in the right direction. Let's face it we live longer than ever, certain chemical factories in ourbodies, just wear out. For example, in my case most of my problems began when my thyroid did a lay down and die routine so I'm hypothyroid and have to borrow bovine (cow) thyroid hormone or I'll just wind down like the duracell bunny. Some days I feel exactly like that. I don't want to do anything. Everything hurts. I force myself to get up and do the basics, but basically only when I'm in my bed with my Bed Buddy (a heat wrap, not a boyfriend) on my shoulders and middle back, a heating pad on my toes, an electric blanket to pick up the slack, some tylenol w codeine for pain, amyltriptiline if necessary (It zones me out completely, I don't feel the pain cause I'm mostly asleep). Back to your question. I believe Lyrica is a new drug on the market that is supposed to help w Fibro. Also, many docs seem to think Cymbalta, an anti-depressant, and a few others helps with the pain of Fibro. Your doc may have one or more of these in mind. If you feel comfortable posting your signature (a list of Diagnosis'and meds to follow your post), go into control panel at top of page find signature, give whatever info you're comfortable giving, and our knowing what you already are taking might make it easier for us to guide you as many here are experiencing the same problems. I wish you all the best. Try to pace yourself. If someone close to you questions what you are going through there is a list of symptoms at the top of the Fibro Forum post.  

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 12/25/2008 8:56 AM (GMT -7)   
Hi Marla and welcome to the family. There are some of us that do not take many meds for fibro. I take 4000 mg of tylenol a day and 100 mg amitriptyline but I was on that for anxiety before fibro, it does help with the fibro pain. My docs do want me to try cymbalta but I'm still on the fence about it. I do not like taking any more meds than I have to.
There are many that have great results with malic acid/magnesium combo. I'm not able to take it cause of stomach problems.
Read the fibro 101 thead, second on first page, there is a great deal of info in it. Read, ask questions and we will be here for you.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Regular Member

Date Joined May 2004
Total Posts : 61
   Posted 12/25/2008 1:08 PM (GMT -7)   
Hi, and thanks for all the support so far! My Rheumy is considering having me switch from Effexor to Cymbalta and from taking Ultram as needed to taking it three times a day, he also wants to add Neurontin, that's where I really have a problem because I am already on Topamax for migraines and getting on that was very difficult, I hate that drug but it's really necessary, adding Neurontin, I feel like I will just be a zombie. I also hear Cymbalta causes alot of nausea and I have enough of that already and am thinking of just doing the Ultram.... Thanks again all!

Crohn's, Enteropathic Arthritis, Fibromyalgia, Daily Migraine

Humira, Entocort, 6MP, Pentasa, Topamax, Effexor, Ultram,
Sed rate sits in the 70's and can't seem to get it down

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41924
   Posted 12/25/2008 5:11 PM (GMT -7)   
Hi Marla,

Welcome to HealingWell. I think you will find that you have come to a great place. We have a wonderful group of members who are very kind and compassionate. You should feel very comfortable here.

I took neurontin for a while and I couldn't handle it. It made me stutter. But that doesn't meant that you will have any problems with it. I just couldn't tolerate it.

I take effexor. 375mg per day. I think that it is the highest dose that they give. I asked my pdoc about switching to cymbalta at one time and he was against it. But he added abilify and that really helps my moods which in turn helps with my pain.

I take the malic acid combo also and that really has helped a lot. I guess without the meds I would be in bed every day. Which is no way to live. I spent a lot of time there when I first got fibro. It was pure misery.

I hope that you had a wonderful day today. Welcome to the forum. I am sure that you will love it here.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Dec 2008
Total Posts : 176
   Posted 12/25/2008 7:25 PM (GMT -7)   
Nice to meet you, Snowbomb.

I know it isn't the only factor you are considering, BUT you mentioned how Cymbalta is supposed to cause nausea.. honestly, I wouldn't even go with that con because EVERYONE IS DIFFERENT, what causes nausea in one person may not in another. I was afraid to go on a bipolar med that made my friend vomit A LOT, but now that I am on it and have been on it for a while, I have never gotten nausea (and it has turned out to help me a great deal)! Just something for you to think about and a con for you to possibly rule out all together.

And I understand completely how you feel, my rhuemy wouldn't even, and hasn't even yet, put me on any medications specifically for the Fibro (I haven't been diagnosed long) because I am on a few already (for my Bipolar Disorder and Depression).. I expressed to her that I didn't feel right being on YET ANOTHER pill and she agreed... if it gets to the point in which I NEED the meds, I will take them.. but for now, I am learning natural remedies for the Fibro (even though it does indeed get so so SO painful sometimes).

And yes, I do run lowgrade fevers at times just like you and Donnaeil.

Keep us posted and have a good one!!

Forum Moderator

Date Joined Apr 2005
Total Posts : 17526
   Posted 12/26/2008 1:32 PM (GMT -7)   
Hi, Snowbomb, and welcme!  I, too, have Crohn's but it is in remission.  Mine was pretty much centered in my colon.  I did end up having an ileostomy but do not regret it.
I do understand  your not wanting to get into more meds.  I'm the same way.  I take ibuprofen with food and Tylenol for pain and I'm one that uses the malic acid/magnesium for pain and fatigue and it does help me.  It doesn't help everyone, though.  There is a link all about it in the Fibro 101 thread that Marlee directed you to.  There are some great links in that thread so check them out.
I tried Tramadol (Ultram) but it only made me sleepy.  My doctor said that only 1/3 of his patients have success with it.  Does it help you?  If it really doesn't, you should tell your doctor that.  You don't want to be taking stuff that really isn't doing a lot for you.
I have low grade "fevers" too.  I was at the doctor's on Monday for my quarterly check-up and my temperature was 99.7.  Sometimes it is 100+ but they know I run a higher than normal temperature.  I feel fine and not sick so it is the fibro.
I wish I could help you more.  I just know for me I don't take any meds that I don't HAVE to . 
But, be sure to keep moving.  If you sit or lay too long with fibro you will be stiff as a board and have more pain.  Just wanted to remind you of that.  I'm glad you joined us, though, and I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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