frusteration with my dr. any help???

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New Member

Date Joined Nov 2008
Total Posts : 18
   Posted 1/6/2009 5:53 PM (GMT -7)   
I have been diagnoised for going on 5 years now, and I am only 21. Which leads doctors to believe I am a complete idiot. I have been on elavil,naproxen,gabapentin,flexeril,roxabin,seroquel,ambien,lunesta, and tramadol. The two medications I have found to work the best are tramadol twice a day and lunesta to sleep. Yet my rheumy refuses to give that to me. He is forcing me to take Lyrica, which makes me black out,dizzy,slurred speech,ect. My husband deployed a week ago and I simply cannot take this medication anymore. The burden of our lives now falls on me and I have to be able to drive, work and function normally. I am seeing my rheumy tomorrow and I was hoping for some advice to force him to give me the medication that actually works. I feel like I am talking to a brick wall with him, and all I want is the meds that make me feel healthy,normal and rested. Is that really too much to ask?Some advice please, I feel like I am going nuts.

New Member

Date Joined Nov 2008
Total Posts : 18
   Posted 1/6/2009 6:17 PM (GMT -7)   
By the way, my pain is not too too unbearable. I can still do pretty much everything I used to be able to do, just in moderation. But my problem is the fact that I have such a high tolerance to pain meds. For whatever reason, normal dosages of things do not work for me. My pain is horrible at night. My muscles spasm and twitch, burning sensation everywhere. If I do not have any meds I normally spend the night crying and screaming. Which is why I wish my rheumy would just give me what works.

Regular Member

Date Joined Jan 2009
Total Posts : 386
   Posted 1/6/2009 6:24 PM (GMT -7)   
Hi JoriGirl,
You are NOT a complete idiot! I love ambien, I don't need to use it like I use to. But boy it sure helped me get the solid rest I needed at the time. I had insomnia big time. Anyways, I think that if you can take what works for you with the no/least side effects, great. Besides your Rhuemy, can you see your Primary Phy. and see if he/she could prescribe the sleep meds to get you the needed rest for your body to recoup. My Rhuemy has the same idea that ambien isn't not a good choice but say more gabapentin or flexeril(which didn't work) will do the trick. So I always get my ambien presc. from my Primary P. Good Luck! One day a time hun.

I've got to go.....I'm actually at work and we are just about to close for the night and I just had to respond to ya.
Take Care,
Soft Hugs,

Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 1/6/2009 7:14 PM (GMT -7)   
Doctors around the United States are balking at prescribing pain medication to patients. If you tell many of them that you are in agony, they really do not care. Primary physicians in Washington State will not be able to prescribe them soon according to my doctor.

Opiod phobia is rampant.

I hope you are able to convince your rheumy to assist you. Just wanted you to know that you are not alone.


Veteran Member

Date Joined Jun 2005
Total Posts : 610
   Posted 1/6/2009 8:47 PM (GMT -7)   

I live in washington and was wondering if your doctor said this was going to be a law or what? I'm just wondering cause I have a friend who got hurt really bad 6 years ago and she's in a wheel chair, and the only doctor that she trusts in her family doctor who's been her doctor since she was a child and thats who she's get her pain meds from. Now I'm worried for her, and she's been to other kinds of specialists including pain doctors and none will offer the same treatment she gets from her primary physician.
I have Migraines, Pancreatic Divisum, Severe lower back pain, Fibromyalgia, Asthma from Chronic Bronchitis
Meds: Suboxone 8mg 3xday, Cymbalta 60mg @ night,
Zanaflex 2-4 mg @ night as needed, Treximet as needed,
Ventolin Albuterol Inhaler as needed which seems to be everyday.
Been on Diability since I was 22 for Migraines and chronic Pancreatitas(started the processes when I was 19, I'm 25 now) but am working to get off of it ASAP,I want to be a nurse and work at a Impatient rehab with people with addictions of all kinds

Sera Smiles
Veteran Member

Date Joined Nov 2006
Total Posts : 671
   Posted 1/6/2009 9:36 PM (GMT -7)   
Jori- hello and welcome. You got a good notion from Binki, thats what I was going to suggest, too.... my GP is who I go to for the basics and this has been my strategy for several years. As long as I am stable, nothing is severely flaring and I have "it" mostly under control, then my GP is satisfied that I am doing my part and he has no problem with being the one who prescribes. If you have a GP, ask them. The rheumy [in my experience] doesn't have much of a role in my care while I am doing so well and not in a purely diagnostic place. Good luck and keep posting!
 "It's never too late to be who you might have been"  George Eliot
Dx FM- 2003
Rx Meds- Ultram, Buspar, Flexeril, Toprol, Cymbalta,
OTC meds- Benadryl, Claritin, Melatonin, Valerian, B Complex, Multi Vitamin

New Member

Date Joined Nov 2008
Total Posts : 18
   Posted 1/6/2009 10:21 PM (GMT -7)   
its funny everyone is suggesting to see my Gp, when my rheumy is supposed to be the expert in this field. lol
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