Eye/vision shaking

New Topic Locked Topic Printable Version
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined Mar 2005
Total Posts : 1512
   Posted 1/25/2009 2:32 PM (GMT -7)   
Hi all,
For a long time, intermittantly my vision is shaky. I've discovered that it has something to do with my eyes not working together well, and it causes my vision to shake. If I cover up either eye, the shaking stops. Anyhow, today something different started. My one eye felt like the eyelid was twitching. That happens sometimes too. Anyhow.........my vision in that eye was shaking horribly. Then I realized that it was the eye shaking, and not the lid twitching. Anyone else have that?? Maybe its a twitch in one of the muscles holding the eye? Very strange!
I've increased my B12 intake, in hopes it will help.
Anyone else have this?

Veteran Member

Date Joined Jun 2008
Total Posts : 726
   Posted 1/25/2009 2:50 PM (GMT -7)   
Gee Cathy, I wish I had an answer for you.  It sure sounds unusual but with this DD anything is certainly possible.  Especially when a muscle or tendon is involved.  I have had eye problems such as blurring, eye pain, vision problems & an occasional twitching of the eyelid.  You should check this out with you Doctor or with an optomotrist (not spelled right), it is always best to error on the side of caution.   I hope all is well, hugs, Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ

Meds: Ibuprofen 600mg every 4-6 hours, Cyclobenzaprine 10 mg, Simvastatin 20mg, Citaloram 20mg Melatonin 5mg Sublingual, B12 sublingual, B Complex, Folic Acid, Omega 3

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 1/25/2009 3:07 PM (GMT -7)   

Hi Cathy...I don't have exactly what you are describing but since this latest flare my vision is totally gone haywire.  If I look at the computer screen for more than five minutes my eyes get blurry and when I look away everything appears to be 'shivering' and out of focus.  I never get into the car to drive anymore after I have been on the computer.  If I watch t.v. too long the same thing happens and reading for extensive periods of time is out of the question.  I don't know why this is but I see on the forum that many people with fibro have trouble with their eyes.  Oh..and my eyelids twitch all the time!



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 1/25/2009 3:32 PM (GMT -7)   
Cathy and Donna, I just checked our list of symptoms in the Fibro 101 thread and symptom #29 and #30 might be what is going on.  #29 says, Occasional Exaggerated Nystagmus - Involuntary rapid movement of the eye ball.  #30 says, Changes in Visual Acuity - Impaired function of the smooth muscle used for focus as well as skeletal muscles for tracking.
But, as Denise said, it's always good to have it checked out.

Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Jan 2009
Total Posts : 73
   Posted 1/26/2009 1:46 AM (GMT -7)   
Hi Cathy! I have not had exactly what you are describing either but as Denise said, with this DD I guess almost anything is possible... I do have major eye problems that I have never had before the Fibro: blurry vision, a "blind spot" in my vision at times, terrible eye pain (have it almost every day actually), double vision every now and again, and severe dryness/itchiness. Eye twitching can mean a borderline B12 deficiency so maybe since you upped it, it'll go away or at least diminish. Just to be safe, I'd ask an optomitrist.
Take care!
21 years old
Fibromyalgia, Bipolar, OCD, Dependent Personality Disorder
"You can't be brave if you've only had wonderful things happen to you." -Mary Tyler Moore

Veteran Member

Date Joined Mar 2005
Total Posts : 1512
   Posted 1/27/2009 4:08 PM (GMT -7)   
Thanks everyone,
So far, it has stopped doing that. Later in the day, it felt like I had an eyelash in my eye. Who knows......maybe it was so far behind my eye that it was irritating the muscle attached to the eye, and the muscle was trying to flick it off! I have increased my B12 too......so who knows. Just another one of those crazy weird things that pops up out of nowhere and bites us!
Thanks everyone!

New Member

Date Joined Oct 2010
Total Posts : 2
   Posted 10/22/2010 12:17 AM (GMT -7)   
I have had problems with my vision shaking occasionally for probably going on 10 years now. It doesnt happen very frequently, but often enough. Only ever after a busy day, usually a long week at work (which I am unable t do now, I will explain). I will sit down, and it will begin with a slightly dizzy lightheaded feeling. Usually if I am reading something I will notice im having trouble following the text, as the words seem to skip from left to right. If I like up around the room, it continues and feels like the whole room is twitching from side to side with a slight twisting motion.

I also suffer from twitching of the eye lids regularly, again particularly when tired. Other occular problems are short sightedness, gritty feeling in eyes, teary eyes very often (and no, its not crying) and oddly, on eye exams for my short sightedness a couple of odd things have been picked up:

I am apparently a 'lazy blinker'. When I had contact lenses about 8-9 years ago, I was told I left a dry line accross the centre of my eye because when I blink, my eyes dont shut fully.
I have frequently freaked people out as when I sleep my eyes do not fully shut, leaving some of the white and iris visible to astonished onlookers.
On my last eye exam a year or so again, it was noticed my eyes do not focus in correctly, when following an object gradually getting closer to my face, I lose focus around 10 inches away. Again, a muscular issue I am told.
Often my left eye is slightly more open than my right, giving my right eye a 'lazy' appearance.

Whether these are all related I am not certain, but I am begining to beleive they are (and I am sure most people suffer with one or two of these occasionally, on their own probably not a real concern. I have just been diagnosed as having ME/CFS. Over a period of a couple of years (since a period of very ill health) these problems have all been groing worse. Accompanied with brain fog, memory problems, exhaustion (mental and physical fatigue), bowl problems (IBS and suspected wheat and gluten intolerence), mouth ulcers, swollen glands, weakness, muscle twitching and aches.... the list is almost endless.

I have now gone for a gluten free diet, and am liasing with my employer to try and work just 24 hours a week. Hopefully this is not something you suffer with because it is pretty annoying at best and debilitating at worst. I am 25 and have had to all but stop my social life, with the hope of some level of recovery. As the actual cause and nature of the illness is still pretty unknown, treatment basically consists of not over doing it, eat well, sleep well, try to be healthy.....

There are however some interesting articles being published on the relation between retroviruses and CFS, particularly one known as XMRV.

Well thats my two pennies worth, just may be worth seeing a docter, if you suffer with any other odd health issues, it could all be related. And again if these are all things you possibly suffer with, other things such hyper/hypothyroid, ceoliacs disease, diabetes are all worth ruling out, as they CAN be tested for pretty conclusively.

Take care :-)

New Member

Date Joined Mar 2011
Total Posts : 2
   Posted 3/27/2011 10:13 PM (GMT -7)   
Hi Kathy, I understand what you are saying. My husband has shaky vision which just started recently. He had detached retina in left eye and now has cataract as result. his vision is very different in each eye. so it is entirely possible that big defference in vision between the two eyes can cause the shakey vision. see an eye dr soon and maybe you will need special glasses with special prescription. don't go into an eyeglass store to be tested for your vision. go to a specialist. Hope I helped you some. good luck!

New Member

Date Joined Mar 2011
Total Posts : 2
   Posted 3/27/2011 10:15 PM (GMT -7)   
Kathy, I just forgot to say the shakey vision is in my husband's right eye even though the left one is the one with detached retina repair and cataract.

Regular Member

Date Joined May 2011
Total Posts : 54
   Posted 5/25/2011 4:29 AM (GMT -7)   
I think I know what you're talking about. Mine works a little differently, but when I went to my eye doctor 15 years ago (long before I knew Fibro had eye issues), I nearly panicked. They did that test to see if you could see two lines, and when they are even. The problem was, I couldn't SEE two lines. My eye doctor told me what was happening was when I got tired, and the fibro was acting up, one of my eyes "turns off". Or, if I'm staring a computer screen, things will start to waver as the tired eye has trouble.

It is also, I think, what causes some of us to read numbers wrong, because that was why I made the appt in the first place. When I read my house number as 231 one day (my house number was 281), I knew I had a problem. I've even had to train myself to be careful with numbers (and OMG, I work for the phone company, where everything is a number!)

Veteran Member

Date Joined Jun 2005
Total Posts : 1852
   Posted 5/25/2011 7:13 AM (GMT -7)   
Hi Cathy,
  I hope the b12 works for you, it certainly is a freaky feeling when it twitches like that.  I asked the eye doc about it a few years back and he said it was most likely due in my case to stress, fatigue and the huge amounts of caffeine i consumed.  I did stop drinking all caffeine about six months ago and it did help. 

Regular Member

Date Joined Apr 2011
Total Posts : 312
   Posted 5/25/2011 9:18 AM (GMT -7)   
Nystagmus is also a side effect of some drugs (gabapentin being one of them). It's considered a serious side effect for the ones I've been warned of, so I would check the side effects of your meds to be safe. I do get some nystagmus with the gabapentin I take but it's not all the time and my doc doesn't seem too concerned overall.
Fibro, SVT, mild structural heart issues. Meds: 50mg tramadol + 1000mg acetaminophen, 100mg metoprolol, 300mg gabapentin 3x/day, 25 mg trazodone at bedtime for sleep issues.

Veteran Member

Date Joined Jan 2010
Total Posts : 3557
   Posted 7/25/2012 5:36 PM (GMT -7)   
Lendar...welcome to the boards...

Yes...this particular thread is from 2009 (last post in 2011) so it's really best that you start your own new thread by using the "Post New Topic" button.

This way you can share more about yourself, your issues with Fibro, what your treatments are, etc. to help us get to know you better:)
SB and "the pup who snores loudly" 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 7/26/2012 4:54 AM (GMT -7)   
One symptom of Fibro is "occasional exaggerated nystagmus".  That's a mouthful!  It means involuntary rapid movement of the eye ball.  This might seem like shaking to you.
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

New Member

Date Joined Oct 2012
Total Posts : 1
   Posted 10/2/2012 4:47 AM (GMT -7)   
Hi all,

While searching on net abt my problem of shaky vision, I came across this forum. I m writing my problem in detail, which may give u some insight and take ur suggestions, which can benefit me.

In first week of August '12, while walking on street, my vision started shaking and after around 1/2 minute of walk, it shook so much that, I fell down. One shopkeeper gave me glucose water, I was sweating, I called up my brother and he took me home. I took out all pathological reports. It was almost normal except, I had high SGPT, B12 & D3 deficiency - D3 was abnormally low. We went to family physician, who told me to take out CT scan of brain and EEG. Both were normal. He directed me to neurologist. After hearing, neurologist gave me some test, which was MRA brain, hymocestine (blood test), sonography of renal and liver, 2D echo, clearance from opthomologist about eye pressure, fluid etc, clearance from ENT that there is no nystagmus and every thing is ok. All reports were normal except, I had fatty liver. Opthalmologist and ENT gave clearance. My nurologist came to conclusion that it could be due to old migrain problem and gave me medicines for B12, D3 and migrain (sibelium and amytriptyn).

2-3 days after bathing, my hand started shaking and also vision. Immediately, I took my mom's glucometer (I am not a diabetic) and measured sugar, which was 57. I remembered that after felling down, the shopkeeper gave me glucose water and I was bit ok, so I went to diabetologist, who told me to do extended Glucose Tolerance Test (GTT) by suspecting, I have resistance to insulin (by seeing at right side of the neck - which is bit black part compare to other skin). In GTT, u have to get measure ur blood sugar and insulin test in fasting. Then, u have to consume glucose, 75 grams in one glass of water immediately after fasting test and get blood test for sugar and insulin do for 5 times after each hour (total 6 test including fasting - glucose to be consumed only once). We took glucometer with us to measure periodically (as test result would receive in evening and what if sugar gets low in-between two test). Immediately before 3rd test (after consuming glucose), when I measured with glucometer, sugar was 88 and after sometime (5-7 minutes) of test, my sugar start falling. When I measured with glucometer, it was 58, thinking some mistake I again measured, it was 52, I started sweating, my hand started shaking, we called physician (who was available there to decide whether to continue test), when he came in another 5 minutes and measured, it was 37 and he decided that test needs to be stopped and I consumed sugar. When the test result came of 4 test (fasting and 3 test thereafter), at one point insulin was 1335 (normal range for fasting and post eating as well is 6 to 27). This is due to body resist to insulin, so more insulin comes out of pancreas, body again resist and one point it suppresses sugar so much that one becomes hypoglecemic (sugar goes abnormally low) and one may fell down. The pathology lab immediately informed my doc abt insulin level and doc told them to do Anti-bodies, which came Negative (which showed, I am suseptible to diabetes after few years.

Brain's food is sugar. If sugar goes low, brain start dysfunctional. My doc gave me metformin - which helps in reducing insulin resistance.He also told me to reduce body and regular walking, eating after every 2-2.1/2 hrs, no cheese, no oily food, no bread, no butter etc. I have consumed for a month and feeling bit stability (though I don't have much confidence to go out alone - I work from home). I met nurologistand requested to discontinue sibelium due to which I felt sleepy, which he did. I am taking some ayurvedic medicine after describing my ayurvedic doctor my history, which gave me some strength in body (my light headedness has gone).

I have to go for fasting sugar and insulin test after couple of days, which I m sure will have better result but still the shakiness in vision is still there. If I stare some colorful object or object having complicated design for 3-4 seconds, vision shakes, when sugar goes low, vision shakes, while reading newspaper - there is lot of strain to eye.

I feel there r 2 possibilities (1) When I fell, at that time sugar was so low that it has damaged some part of brain or eye OR (2) once brain starts dysfunctioning due to low sugar, vision shaking is a by-product of it and once insulin resistance will go, it will slowly stabilize.

Ur guidance is welcome.

Regular Member

Date Joined Sep 2003
Total Posts : 268
   Posted 10/2/2012 8:51 AM (GMT -7)   
I get the same thing and my vision is not as it use to be. I did have cataracts removed my distance vision was really bad but I still have the twitching, the blurring etc like the rest of you. My Eye Dr. says it is dry eyes. I use Eye drops but see no difference with or without using them.

Seems to affect my left eye more than the right and in fact my lower lid on the left gets puffy at times. I sleep on my left side and have allergies but have had them for years, this eye problem just started about 2 years ago.

This dd never ceases to amaze me. After suffering with it for 30 years I still get new things. 30 years of this crap, I was dxed in 1982.

Fibromyalgia. mofascal pain syndrome, dxed in 1882. Costochondritis, Two herniated cervical discs. Cervical and upper spine arthritis with a large bone spur in mid back. IBS.

Look toward the sun and the shadows will alway fall behind you !!!

New Member

Date Joined Dec 2012
Total Posts : 1
   Posted 12/18/2012 10:20 AM (GMT -7)   
hi .there are many books and sites which can provide you help.like this site


New Member

Date Joined Mar 2014
Total Posts : 1
   Posted 3/27/2014 3:41 PM (GMT -7)   
Hi Cathy I was wondering if you ever find out whet was going on with you eye. I have the same symptoms and the doctor is checking to see if its MS :/

Forum Moderator

Date Joined Nov 2008
Total Posts : 5948
   Posted 3/27/2014 8:44 PM (GMT -7)   
Hi, Alexia.

I'm going to lock this thread - it's very old, and we do that because people aren't really checking back to it anymore.

But I'm starting a new thread with your post - titled, "Let's welcome Alexia."

Thanks for understanding.

Moderator, Fibromyalgia Forum

Fibromyalgia, degenerative disc disease, discectomy L4-L5 - (w/lots of Sciatic Nerve damage), frozen shoulder, Hashimoto's Thyroiditis, IBS, migraine, dizziness (mostly from visual stimuli), elevated liver enzymes, tachycardia, hearing loss (probably Menieres).
New Topic Locked Topic Printable Version
Forum Information
Currently it is Wednesday, November 22, 2017 7:58 AM (GMT -7)
There are a total of 2,896,735 posts in 317,931 threads.
View Active Threads

Who's Online
This forum has 157522 registered members. Please welcome our newest member, Steven Hazlett.
365 Guest(s), 15 Registered Member(s) are currently online.  Details
aphysicalwreck, alunke82, Jasperilla, PeppermintTea, mikeb2308, Matt_eire89, Michael_T, Turboz, OuterLimits, Todd1963, Saipan Paradise, three 5's and a jack, pedidiva, straydog, Lanie G

About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow HealingWell.com on Facebook Follow HealingWell.com on Twitter Follow HealingWell.com on Pinterest
©1996-2017 HealingWell.com LLC  All Rights Reserved.