I have: Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ
Meds: Ibuprofen 600mg every 4-6 hours, Cyclobenzaprine 10 mg, Simvastatin 20mg, Citaloram 20mg Melatonin 5mg Sublingual, B12 sublingual, B Complex, Folic Acid, Omega 3
Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11
I have the same problem. I even fall asleep sitting in a chair watching t.v. which I've never done, in front of my computer, and have trouble keeping my eyes open while driving. I tried to get provigil from my Rheumy, but he won't give it to me because of the other meds I'm on. My sister takes Provigil and says it has really helped with her energy and fatigue. Hope you are able to find something to help you!
Never regret something that made you smile!
Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause
Hi Marcie and Welcome-
I worked fulltime prior to getting fibro late last winter and I could not figure out why I was SO TIRED ALL THE TIME! I am 52 and I know that aging played a part in it but this fatigue was bad. I have not been able to work since and am fighting Soc. Sec. Disabilty. I fatigue easily, and I have to have at least two rest periods a day, late morning and late afternoon. I drink coffee in the morning and a cup around suppertime or I would not make it through the day. The winter has made the pain and fatigue worse. I don't think it is abnormal for you to have to nap on the weekends with this either. And I was always behind on cleaning, etc. even before the fibro hit so I know that feeling too. Just can't win.
Nice to hear you have such a supportive hubby-
You might want to check into D-Ribose, made by Corvalen, and also a powder supplement that contains a bunch of vitamins and supplements, including malic acid that is called Daily Energy Infusion by Fatigued to Fantastic...Dr. Jacob Teitelbaum recommends these and he claims he has helped hundreds of FM and CFS patients with fatigue with his SHIN protocol, which you can read about, in his book "From Fatigue to Fantastic"
I read the book and did the protocol and bought most of the supplements and vitamins. Honestly, I am not "cured" but I think for the most part, I have more energy than before. As far as the pain, it is about the same.
As Sherrine mentioned, vitamin D is a major problem for people with FM, so many of us are low in it and don't know it. I just found out a little over a year ago and I've been on massive doses (600,000 units of D a month) prescribed by an endocrinologist, and my D level is still too low; higher than it was, but still not at normal. That can also cause fatigue and pain. It's a double whammy...
Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.