Michelle, you're very welcome, but the ppl here have been thru the thing of having ppl doubt or hurt feelings. We don't need that around here, this should be our safe place to come and talk and feel comfortable w/ our emotions. The other good ppl here have always treated me that way, they have been so kind and caring. That is the way we should all be, IMHO.
The rheumy seems to have got a grip on the situation, maybe the meds will help w/ the pain and panic attacks. It sounds like it is worth a try. Your PCP on the other hand is off base. You are in pain, it isn't in your head. You might want to think about another PCP, someone who knows what they're talking about. Read up on FMS first, a lot of info here, books in the library, etc. Arm yourself w/ info, then call drs. offices and ask if they believe and treat FMS. That will cut your list down considerably. As far as the nay sayers, if they are not going to be in your corner and don't even want to hear what you and your dr are saying. DISTANCE yourself. You don't need negative energy. You need ppl that are 'with' you. That is just fighting two wars. I've gone thru that several times, one person in particular didn't believe what I was saying, she kept mispronouncing the word Fibromyalgia, as if dismissing it, when I said it correctly, I was told, "Whatever". I don't have time to be treated that way.
When you have a bit more info to make you more comfortable w/ FMS, sit w/ your children, explain what you know, let them read some of the info. You don't want to scare them w/ the unknown, let them see what is going on. Let them help w/ family matters, chores, etc. It will give them a chance to help you and let them know how much you trust them. The four of you are a family, the four of you need to work together. If they know computers, and I'm sure they do, let them help you 'find' info on FMS. They may be very worried now, b/c they don't understand what is going on w/ your health. This may help to settle some of their fears.
I don't like to use the phone, either, but it is necessary. If it's a personal call, I will tell the person when I'm getting tired and I know the 'fog' is rolling in lol, I need to get off the line. For business calls -which I hate, but necessary - I write everything down - EVERYTHING, my name, add, phone #, all acct #'s, what I want to ask/tell, etc. It is work to do this, but I can generally get my pt across and get my answers. I'm not able to run around like I used to, I need to make these calls. Don't isolate yourself, you have this one life, don't let anything/anyone cut it short for you. You have every right to enjoy each day. Take time each day to go outside for something peaceful. Sometimes, I just want to stay inside, that is when I MAKE myself go outside. I will walk my beloved dog, walk around in my yd, walk on the boardwalk a few blks from my house. I need to reduce the clutter in my mind. You are not pathetic or a bother, pls don't feel that way. We have all been upset w/ this DD. Keep writing, keep reading, keep asking.
God bless. Alice.