Very curious about Savella (new FDA approved FMS drug)

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Mar 2008
Total Posts : 316
   Posted 2/10/2009 5:15 PM (GMT -7)   
I just read about it today and saw that there had been a post on here a couple of weeks ago.  It looks promising, especially since it doesn't look like it has the loss of libido or weight gain side effects. 
On the fibro network, it states it helps w/ pain, daytime fatigue & memory / concentration.  I am going to cross my fingers and ask the doctor for it during my appt. in March.
Any thoughts?


Fibromyalgia since 2007

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 


Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 2/10/2009 5:57 PM (GMT -7)   
Hadn't heard of this one so I looked it up. Sounds very much like Cymbalta. I sure do hope it works for lots of people with fibro. It's going to be available by prescription about March 15th. If anyone has a go at this medication will you please post and let everyone know how you do, please?

Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
Happiness is something to do, someone to love, and something to hope for."

Veteran Member

Date Joined Aug 2006
Total Posts : 9657
   Posted 2/10/2009 6:10 PM (GMT -7)   
Yes, I've heard of a new medicine, but remember insurance might not cover it yet, so,
that could be a big draw back for now. I just hope it's not related to Lyrica as that made
me throw up..........
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********


getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41928
   Posted 2/10/2009 6:13 PM (GMT -7)   
I always get my hopes up when a new medication comes out. I can't wait to hear if it helps anybody. Keep us posted.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 2/10/2009 6:15 PM (GMT -7)   
I was in a clinical trial for this med and had to drop out because it raised my heart rate and blood pressure too much. I know I was not on placebo, I think I was on the lower dose. The doc in the study said that were this not a trial, she would have recommended a lower dose. It helped a little with pain and energy but not with brain fog. I had severe hot flushes but was told they usually stop in a few weeks, they wouldn't have caused me to stop taking the med.

Another woman I know had to drop out due to elevated blood pressure and hers was pretty low to start.

A man in our group found it to be a life saver. He finished the trial and was allowed to stay on the drug. He just recently admitted that he may have to stop it because it is giving him sexual problems. He's been on it for a long time and said he gained about 10 lb early on then seemed to stabilize.

I'm sure this medication will help a lot of people but it's not perfect. If you have high blood pressure, make sure you monitor it while on this med.

Veteran Member

Date Joined Jul 2007
Total Posts : 1303
   Posted 2/11/2009 8:00 AM (GMT -7)   

I was the one who made a thread on here a few weeks ago. It was a few days after they approved it or something...but it did look promising. I am thinking about switching myself...however, Im not sure if insurance will cover it. My insurance recommends a generic first, before moving on to the real stuff. But, I dont think they like to pay for a new drug...which stinks! lol rolleyes   But, I did read it wasnt supposed to have all the weight gain that a lot of people on Lyrica have(like me!) So, that would be good. But, I also think it is supposed to help a little more.

As we all know, we are all different so medications affect us all differently. Therefore, its hard to tell. I did read that it had a tendency to raise heart rate and blood pressure, so thats kind of bad. But, I suppose trying it is the only way to know for sure. Maybe in time I will be able to switch. I have been on Lyrica for 14 months now.. Im not sure I can tell a difference, but then again, sometimes I do! tongue I really dont know!

But, if anyone tries it, please post. I would be very curious as to the results.

Lyrica(14 months) and Paxil(about 6+- months)-both helping some, but would like to see better results
"Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
"Sometimes it is best to forget what you feel and remember what you deserve"
    "Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 2/11/2009 10:29 AM (GMT -7)   
I have a very hard time trying to keep my BP under control so this one probably isn't the one for me. But I wish others good luck on it if you decide to try it.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 15, 2017 8:49 PM (GMT -7)
There are a total of 2,905,995 posts in 318,907 threads.
View Active Threads

Who's Online
This forum has 158254 registered members. Please welcome our newest member, InArizona.
337 Guest(s), 11 Registered Member(s) are currently online.  Details
PeteZa, Keylyme, Worried386, Michael_T, Girlie, Pratoman, ExplosiveKittens, Cajun Jeff, Papancha, Jessica Jaroff, Goat0724