I have: Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety
Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11
((( Denise, Misty & Deylan ))) ... You're in my thoughts and prayers. I hope everything goes well and they just have to do a little tweeking with his pacemaker.
It sounds like your family has really gone through the wringer with all of this. There's nothing worse than a mother knowing that something's wrong with their child and the medical community pays little to no attention to their plight.
I'll be thinking about all of you and please keep in touch and let us know how things are going.
Warm gentle hugs,
Hugs and positive thoughts for you today. Be sure to let us know how things go.
Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.
Thank you all for you prayers & loving kindness to me & my family. Deylan is ok, YEA!!!!! He is experiencing "heart wall pain" but it is not a heart attack. Dr. Anderson said the Echo & EKG showed his heart is stable & doing ok. The tech from the pacemaker company who checked out Deylans pacemaker said it is showing "all is well". (big sigh of relief) His own heart is beating 20% of the time & the pacemaker 80%. Dr. Anderson said some of the pain could be the shock of going from heart to pacemaker. Warm heat & Ibuprofen as needed. If the pain doesn't subside it may mean he has been doing too much & will need to rest for 4 - 6 weeks so it can heal. But doing very well. His Dr doesn't have to see him for a year.
Deylan got his important questions asked of his Doctor. Can I play on the Wii? It does have a caution for people with pacemakers. Dr. Anderson said he could, just keep the control 6 inches away from the pacemaker. Deylan wants the pacemaker moved to its final position by his shoulder, it is in his stomach right now because of room. Dr Anderson said he would look at that in a year but for now Deylan is happy, he can play on the Wii.
Misty & I pretty much crashed after the dx. Pain & fatigue but after living in the stress of the 4 hour drive & waiting for the dx, that is to be expected, I guess. We made it all the way home in one piece, I know I went almost immediately to bed & I am sure Misty did the same. She drove the whole time.
I am so happy for Misty, she does not need anymore to bear at this time. I will share your posts & prayers with both Misty & Deylan. Once again, thank you so much. Many, hugs, Denise