Going to Doc on Monday.. need help

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Regular Member

Date Joined Jul 2007
Total Posts : 43
   Posted 2/11/2009 2:41 AM (GMT -7)   
Hi everyone,
I am off again to see my doc on Monday and need some input. I guess I will just list the questions and hope someone will have some thoughts. I know you guys will help... you always do:)

1. I am on 75mg of Fentanyl for the fibro pain. I am still having pain, but not nearly as bad. Should I ask for my Fentanyl to be upped.. or would a break-thru med be right? I do ok most of the time.. just the nights that my restless leg crud is acting up I am in way more pain. If you think a break-thru med.. which kind do you recommend?

2. I have a hard time walking some days and I am thinking of asking for a handicapped parking sticker for my bad days. Do you think I am off for asking for one.
And just to let you all know.. I am always a bit off..so no comments there please :)
And if you have gotten one.. how? What did you say to your doc to get it?

3. In the last 2 months I have lost 30lbs. Which is good.. and some bad. I had the weight to lose.. now I am at 140.. that's a good weight:) Yay me !! But.. dun dun dun.. I have lost alot of muscle in my legs.. mostly in my caves. Is this from not being so active anymore? I want to chalk it up to that.. but my calves are always rock hard and they hurt. I wrap them in hot moist towels and they relax some.. but in a few days they are back to hurting. Has anyone else had this happen? Did you ever find out what caused it? If so.. please tell me.. so I can tell my doc some possibilities.

That's about all I have at the moment:) I am lucky to have a really great doc, I have printed items from everyone here and have took them to him.. and he actually reads them!! We have tried some of the things that have been suggested here before with success. So I am reaching out again to you wonderful fibromaniacs for some suggestions.
Love & Soft Hugs,

Dx with: Fibro '02...Myofascial Pain '02... Gerd '03...Migraine Headaches...
Restless Leg Syndrome '08...IBS '99...Depression '99...
Early Menopause from Hysterectomy '00..removal of gallbladder '00 and appendix '08

Meds: Fentanyl Patch 75mg, Ropinirole 1mg, Zoloft 50mg, Aciphix 40mg, Darvoct as needed to help with RLS, Aleve & Tylenol as needed

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 2/11/2009 6:01 AM (GMT -7)   

Good morning Stacy!!!

It looks like you have a 7 year history w/ FMS.  I don't know if you've been seeing the same Dr. all along, but I don't see any reason that you shouldn't ask for a handicap parking license, especially if walking is an issue.  You can incorporate your h/c license question and upping your meds all at the same time.

I think its great that your Dr. reads the things you bring with you at your appts. and you're really lucky to have a great doc!!  Great job on the weight loss.  Wish I could say the same.. I think I'm in the process of finding what you lost!! LOL!!  Anyway, be sure to show the Dr. the muscle loss in your calves, it could be something to be concerned about and since your having pain there, who knows.

Anyway, good luck at your appt. 

Be well and warm hugs!!!

Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel. 
Meds = Elavil, Tramadol, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 2/11/2009 9:32 AM (GMT -7)   
Stacy I'm not on narcotics but if your trying to become pain free I'm not sure that is possible with fibro.
I don't have too many problems walking but it does zap my energy and recently when my DH was in the hos I sure thought a handicap sticker would be nice when I couldn't find a parking place in the parking garage close to the door. I don't know if lack of energy is a good enough reason to have one and I would never abuse it cause I know there are too many that need them worse than I do.
I would like to know your secret to losing that much weight so fast??? I have not had a weight loss but my muscles have deteriorated over the years of having fibro and not being as active as I once was. I feel like a flabby bag of mush. We have had some nice days recently and I have been out walking a lot more than normal so I hope that helps some parts of my body. My stomach is the worse area and I'm not sure how to tighten that up cause I can't do crunches and things.
I'm glad you have a great doc.
luv and hugs
Forum Moderator Fibromyalgia
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Forum Moderator

Date Joined Apr 2005
Total Posts : 17497
   Posted 2/11/2009 12:06 PM (GMT -7)   
Hi, Stacy!  I have had a handicap sign for almost 20 years.  It does make it easier.  Before the sign, if I drove to a large store or mall and had to park in the back of the lot, I'd just turn the car around and head home.  I'd be too exhausted to shop once I got to the store.  We deal with pain and fatigue so that's not being unreasonable.
I've lost muscle tone over the years.  It's not from losing weight, I don't think.  I've lost 85 pounds in the past several years but found that I can walk longer now.  Your calf muscles sound like they are cramping.  Have you ever tried a light massage?  I was a mess about 1 1/2 years ago and then I started getting light massages.  It really has helped me.  I had an appointment today and was actually feeling quite good and proud about it too.  BUT, she found knotted muscles and really worked to smooth them out.  I didn't know I even had that but I know it would have gotten quite painful if left untended.  So, this is just a thought.
I don't take narcotics.  But I do have Vicodin in the medicine cabinet as a safety blanket.  I have never resorted to them, though.  As Marlee said, I think it's nearly impossible to be pain-free and not be totally drugged up.  I, myself, like to be in control and I don't want to have to worry about driving.  Having too many meds in your system could cause problems and possibly a DUI, too.  Just my humble opinion.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Mar 2008
Total Posts : 519
   Posted 2/11/2009 10:38 PM (GMT -7)   

Hi Stacy,

I also have the problem with my calves being rock hard and painful. My Rheumy told me it was from the Fibro. My legs feel like I am tightening my muscles all the time. It is really a pain in the butt!

I take Vicodin for break thru pain. I think different things work for different people. I would ask your doc what he thinks on that. See if you can just up what your on safely. Good luck and hope you are able to get help with all of the problems.

Hugs!!  Margie

Never regret something that made you smile!

Fibromyalgia*Osteoarthritis Of Spine*Sleep Apnea*RLS * Depression*Chronic Fatigue*Allergy/Sinus*Menopause

Regular Member

Date Joined Oct 2008
Total Posts : 257
   Posted 2/11/2009 10:51 PM (GMT -7)   
Regarding #2 on your list - the handicapp sticker: I simply asked my doctor for it, and she said yes. There was a quick one page application which I took to the Secretary of State's office (DMV, License Bureau, whatever it's called in your state), and it was done.

Very glad I did so. Like today: I would not have had a problem with walking into the post office from a non-handicapped spot today, but I did have two packages to carry, and my arms would have dropped off if I had to walk any distance at all.

I hope your appointment goes well.
Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 

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