ELEVATED WHITE BLOOD COUNT AND FIBROMYALGIA

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Sherrine
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Date Joined Apr 2005
Total Posts : 17556
   Posted 5/30/2017 6:07 AM (GMT -7)   
Hi, Sirai, and welcome! I'm really sorry that you have limited choices of doctors. They might be good but totally overworked. Maybe if you wrote things down that you are concerned about and took it to the office weeks ahead of your next appointment and ask for the doctor to read it before your next appointment and before it's put in your chart, he would do so and that would give him time to mull things over before your appointment. It's worth a shot and he would know how concerned you are because you did this. I would write it in list form...not paragraph form. Also, if you have a printer, do the list on your computer and this way you can print the list for any doctor you see about this illness plus it's easier to read. If it's something he can scan quickly, he just might do that.

Actually, with fibro you do need to keep moving. If you sit or lay too long you will be stiff as a board and have more pain. Fibromyalgia isn't considered an inflammatory illness so, if you are dealing with inflammation, you could have something else going on. I have fibro and also several autoimmune illnesses so I do have a lot of inflammation in my system but it isn't caused by my fibro. I have my list of illnesses in my signature.

I would request tests for lupus and Lyme disease. It's just far too easy to slap a diagnosis of Fibromyalgia on someone when you don't know what is causing the symptoms. Lyme and lupus have many of the same symptoms as fibro but different treatments are used. If you live near a wooded area and happened to be bitten by a tick, you could develop Lyme disease and this also could explain why your ex-fiancé now has the same symptoms. He could have been bitten also. I'm just guessing here. We do have a Lyme forum and a lupus forum on HealingWell that you might want to visit.

I take ibuprofen with food, Tylenol, vitamin D3, magnesium malate. And a muscle relaxer called Robaxin that has made a significant difference in my pain. I walk daily and pace myself when doing things. I also keep a positive attitude and that has helped my so much. I look at my blessings and all the beauty around me and I focus on other things besides my health, and the pain fades somewhat in the background. All of this has helped me live a full and enjoyable life in spite of this illness.

I do think that once you find what works best for you in controlling your pain, your life will improve greatly. But, what works for one with fibro doesn't necessarily work for another. It's a trial and error type thing.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. There are links about the vitamin D3 and magnesium malate and how these work in the body. Many are deficient in vitamin D and also magnesium and that can cause more pain! There also is a good link about how to maintain a positive attitude when you have chronic pain. All of Fibro 101 is good so do read it.

I'm looking forward to getting to know you. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 5/30/2017 11:11:11 AM (GMT-6)


Sirai
New Member


Date Joined May 2017
Total Posts : 4
   Posted 5/30/2017 8:36 AM (GMT -7)   
Thank you for the reply. I have been on D3 (5,000/day) for 6 years, and my blood sat is up at 70. They've tested my magnesium multiple times, as I continuously get muscle cramps, but they say its fine. Moving causes the muscle cramps, moving also causes my joints and tendons to quickly and suddenly hurt (and they will hurt bad for a week or more afterward) and that really dampens my want to get up and try to move around, as I just get hurt worse trying to do so. They had ruled out Lupus, how I don't know. I just found out I have an aunt that has it, so I might press that issue again. I've gained so much weight since I have lost a lot of mobility and it's insanely frustrating. The depression is causing me to stress eat constantly.

I just got home from a visit to the sleep clinic to try to find out why I wake up 30 times in a 6 hours span. Was told I need jesus and to deal with my 'issues' (assuming she means things bothering me mentally). So, yet again, no help there. Not even a recommendation for a new sleep study. I'll just have to assume it's my pain causing me to wake up constantly, as I'm forced to shift positions.

My Lyme test was negative, but I have read that it can be negative but you still have Lyme. So that's kinda difficult to deal with, as my doctors treat me as if I'm out looking for pain meds, regardless of having turned down anything strong than an anti-inflammatory in the last 3 years (really regret that some days!) and I feel like they simply dismiss every suggestion I give. I don't know how you guys deal with the depression and find some happy cheeriness in it all, I really don't =(

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17556
   Posted 5/30/2017 10:10 AM (GMT -7)   
Muscle cramping can be caused by low calcium and also potassium. My doctor gives me a prescription for a time-released potassium called Klor-con. It does help me.

If you can, have the doctor draw the blood to check for Lyme disease, and then have it sent to Genex Labs in Palo Alto, California. They are supposed to be the best lab in diagnosing Lyme disease. Our Lyme forum can tell you more about that and how to do that too.

Life is made up of choices. We can be miserable with what life dishes out or we can look forward to the future because it could be really good. If we stay miserable, we will be very unhappy and it will affect all those around us. We lose friends and, in your case, your son left. That is really so sad and I feel badly for you about that.

It's so easy to crawl into bed and pull the covers over our heads but it never helps one iota. You need to push ahead and start living your life. You can't give up!!! For example, you say if you walk your muscles and tendons hurt for days so you don't walk! Gee...you don't use those muscles and tendons so they rebelled. Plus add the additional weight and that just makes it harder on the muscles and tendons. You can't give up! Your life will never improve with what you are doing right now.

When I started walking daily I could only go four houses down and had to turn around and head back home if I was going to make it! Wow, my muscles hurt! Now, I could have said "forget this!" But I didn't. I went out the next day...with a cane in my hand...and was able to go a little further! Every day I went further and every day my muscles didn't hurt quite as much. And now I walk a mile with my dog every morning. I hate to exercise but know I need to in order to feel better. While walking I look around at all the beauty around me...the trees, sky, landscaping, critters gathering their breakfasts, bugs, etc. I find I'm smiling and by the time I get back home I have less pain and more energy and ready to face my day. And I'm happy!

Take one day at a time. I look forward to each new day with anticipation because it could be a good day. I make arrangements to go out to lunch with friends as finances allow me. Tomorrow I'm having a friend come to my house for lunch and I'm making my famous chicken salad today to serve. I'm happy and excited about spending time with this lively lady. It takes a lot of effort, planning, and pacing myself but it is well worth it. I set doable goals each day and when I complete them I pat myself on the back and, again, smile. I do smile a lot...even when I'm out in public. It's amazing how my smile can bring a smile on the grumpiest faces. 😊 If the day isn't the greatest, I know I can deal with that day and look forward to the next day. This keeps me moving, happy, I feel I'm accomplishing things, and I'm enjoying my life. After all...things could be worse.

I was quite overweight for the same reasons you described. I started counting carbs and only allow myself about 100-120 carbs a day. There are a lot of low carb things to snack on...lots of vegetables...but I like to get sour cream dips to dip the veggies in. And I love the 100 calories mini popcorn bags. They hit the spot. Anyway, I lost 85 pounds doing this and have kept it off for eight years so far. I feel sooooo much better and I don't seem to hurt as much. After all, it was like I was carrying around an 85 pound suitcase all day long. Of course my muscles would hurt! I can't even lift 85 pounds. If you are interested in what I did, you will see a little envelope under my name at the left of this post. Click on it and it sets you up to email me. I will then send you what I have done and am doing to keep the weight off.

Lastly, read the link on how to maintain a positive attitude when you have chronic pain. This really helps and gives you great ideas. I know you can switch your mindset. If you are successful, you might not be as depressed. I don't suffer from depression generally. I make myself get busy and do something constructive and that helps. In one of my worst times dealing with depression. The only thing that helped was going for a walk and getting out in the sun and looking at beautiful things.

I hope some of this helps you. You do not want to spend your life doing what you are doing. Do keep your search up and find out for sure what is going on with your health, too. You owe that to yourself. You deserve more in life. You are a special person and I know people love you. You just have to face this head on and not let illness run your life anymore. You will be glad you did.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Luneybin
New Member


Date Joined Apr 2017
Total Posts : 6
   Posted 5/30/2017 11:16 AM (GMT -7)   
Hi everyone,
I'm so sorry that you are going through all of this alone,.
I remember when I first started going through this my family didnt know what to think, i believe they though I was making it up and being lazy but after yrs of watching me get worse they came around and are now very supportive, my extended family still think it something I just need to get over so I don't spend a lot of time with them and I don't talk about what's going on with me. A couple years ago my husband was fighting throat cancer and lost his ability to speak but is now cancer free and then had to have open heart surgery to replace 2 valves and a bypass so they talk about that and think I'm making more out of that then they think is necessary. Just stay strong and don't let anyone try to define who you are, take care of yourself.
So I went to the hemotologist and was basically ignored, he said that my white count is high because I smoke, I told him I had quit for two yrs previously and my wbc was still high, he didn't believe me, when I told him about my daughters high wbc and that she didnt smoke he said she was a different person and it didn't relate to me. Needless to say I cried my eyes out because its always the same, they don't know, they grab a hold of whatever is convienent and that is their diagnosis. Now I am on a mission, I am quitting smoking so I can prove that is not the cause of my high wbc.

Nancy

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17556
   Posted 5/30/2017 12:26 PM (GMT -7)   
I just posted a good link from the Mayo Clinic about what causes high white blood cell counts. Here is the link I posted.

www.mayoclinic.org/symptoms/high-white-blood-cell-count/basics/definition/sym-20050611

Hope this helps. Please stop stressing since stress can raise white blood cells. So can smoking and medications. Talk to your doctor. It you don't trust your doctor, find one you do trust.

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Sirai
New Member


Date Joined May 2017
Total Posts : 4
   Posted 5/30/2017 2:47 PM (GMT -7)   
I was actually already sent to a hemo for leukocytosis and was told it was due to inflammation. My C-Reactive was up to 8 from the high of 4 a year before. (The test I took had a reference range of 0 - .08) Was sent back to the rheumy, who said to go to the sleep clinic, since I was stressing that I felt that if I could just get some sleep then maybe my body could heal some. Was told my sleep apnea is actually better (.8 aph vs the 14 when I was first diagnosed) and not the cause, and that I simply 'need jesus'. The pain med the rheumy has me on for inflammation, Indocin, actually helps, but it's negligible. I can tell when it's worn off and it sometimes gives me an extra hour maybe a day that I can do some light housework and clean up after my old cat.

I haven't smoked for a year, not sure if my vaporizer would also contribute? It does have nicotine. Though when my WBC started rising I wasn't smoking then, either. But I have on and off through most of my life, generally when the stress gets the worst of me. I've been trying to get a ride to the pharmacy to pick up my Cymbalta prescription for over 2 weeks now. It's insanely hard when you know nobody in the entire state. Everyone I know and trust is a thousand miles south and my ex is a useless lump. I'm on disability and have $18 a month to play around with after I pay the monthly bills, and I have to use that on a taxi for my once a month trip to get groceries. And had already done my shopping before that was prescribed. At least I only need to wait a few more days now. I was told I'd have to be on it for at least a month before I would notice any benefits, if any. They put me on it for both the nerve pain and depression.

I have ptsd, and with it agoraphobia and extreme social anxieties. My ex left me in the middle of a very busy neighborhood, so if I walk it'll need to be indoors or I'll just end up with another stupid panic attack and feeling like an idiot in the hospital. I honestly think every single time that it's a heart attack and not a panic attack 'this time'. Even when I go 'wait maybe it's just anxiety' my stupid brain panics. It really would help to have someone to talk to to calm me down but I just don't have that here.

I did acquire one of those exercise bikes that could work my arms and my legs at the same time, since I felt that might help the muscle cramps, like you say, by getting them moving more often, without placing the stress on them that causes the cramps. So far that's not had any negative impacts on me so I will keep using it. The seat hurts my butt but I do believe that can be replaced with something smaller and more my size.

Due to a simple walk to the mailbox literally crippling me for days I end up only walking down there once a week, sometimes only once every 2 weeks, depending on if I can place any weight at all on my feet. Sometimes I just wake up with them in unbearable pain and they feel like a bag of jello, but look absolutely fine. They feel like they should be swollen huge but look normal, it's bizarre.

The nerve issues in my feet drive me insane at night. Trying to fall asleep I have to constantly kick and shake them as they will itch, or twitch, or I'll get the pins and needles, sometimes all at once. I've had issues with my shoulder and subsequently my hand. I lost all feeling in part of my hand for an entire year, it finally returned to normal literally a week before my surgical consult for ulnar nerve entrapment. I have to say, the nerve tests they ran on my legs to test my feet was one of the most painful things ever. For whatever reason it made my legs a LOT worse for an entire month afterwards. I could hardly walk at all the day after the tests. I never want to go through that again =( It wasn't as bad at all on my hand and arm when they checked that area, but omg it hurt my legs so bad! To my amazement the nerve tests in my legs/feet came back completely normal. Has made me feel like I'm losing my mind. Why would the tests not find anything? I even have area's of numbness on my toes that I was sure would register something, even if I wasn't having a flare up of the other foot issues at the time.

BTW, oddly, my feet problems are 10x's worse at night if I don't wear socks. They don't have to be tight socks or anything, just fabric creating a constant presence. Anyone dealt with anything like that? The only other place I get the tingly weirdness is in my armpit of all places. Utterly bizarre to feel your armpit vibrating throughout the day randomly. The rest of my body is extremely sensitive to pokes and prods, and a few places create a nerve pain type response if they are just lightly brushed. Though those particular places seem to clear up/move from time to time. I'm usually having an active pain in those area's when the light touch reaction occurs.

Sirai
New Member


Date Joined May 2017
Total Posts : 4
   Posted 5/30/2017 2:55 PM (GMT -7)   
BTW, I have tried to write down a list of my problems. The one time I remembered I had the list, I tried to hand it over and was waved away repeatedly, as the woman I was seeing at the time was a very hurried lady who seemed extremely busy and not really all there, as her mind seemed to be miles away. Was very off putting. Since then I have several times written things down, but then forgot I had a list while at the office! I am going to just have to use a big marker and write on the back of my hand 'USE YOUR LIST', and just hope I glance at my hands during the visit! I'm sure its the social anxiety that causes these brain farts when I end up around other people. My brain just stops thinking sometimes, I'll try to grasp a coherent thought but can only shrug and go along with whatever is being said.
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