does anyone understand fibro

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Regular Member

Date Joined Nov 2008
Total Posts : 52
   Posted 2/27/2009 9:35 AM (GMT -7)   
Hi guys.  I have been under alot of stress lately, and you know what that can do with people like us with fibro.  I have a 4 year old austic child which is my main stressor.  So my stress is always there.  I get most of my pain in my left joints arm, fingers, elbows and sholders.  I have a lot of stomach problems which cause bad gas.  So there are times after being under stress I think I am having a heart attack and panic.  My husband which is understanding will take me to the doctor or hospital if needed.  But at the time I have these feeling I beleive that there is something wrong.  My mother says that I have depression and I need to wise up or my husband will leave.  My husband thinks I should get a part time job to get my mind off things.  Believe me if I thought I could work and take care of my daughter with this sickness I would.  If I do to much it sends me into major flares.  It just feels like no one understands the problems that come with fibro and what our bodies will allow us to do.  Anyone else out there with the same feelings. 

Regular Member

Date Joined Oct 2008
Total Posts : 257
   Posted 2/27/2009 10:42 AM (GMT -7)   
Dear Anne,

Wow - sounds like you have a plateful. Most of the time, I don't worry about folks not understanding fibro, but when it comes to family...maybe some education would help.

There's a good document that's called "Letter to Normals"...just google it and you'll find it. Also the Spoon Theory might help.

You need some support, that's for sure. That's what I find forums can help with. Keep posting, and I'm sure others will respond as well!

Take care of yourself - hang in there.

Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 

New Member

Date Joined Feb 2009
Total Posts : 11
   Posted 2/27/2009 10:48 AM (GMT -7)   
Please read forum rules before posting.

Post Edited By Moderator (Sherrine) : 2/27/2009 11:25:53 AM (GMT-7)

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41938
   Posted 2/27/2009 11:16 AM (GMT -7)   
Hi Anne,

You do have your plate full. Just try to take some time out for you. deep breathing and meditation help in stressful situations. It sounds like you have a little bit of anxiety too.

Stick with us. We are all here for you.

hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Forum Moderator

Date Joined Apr 2005
Total Posts : 17529
   Posted 2/27/2009 11:39 AM (GMT -7)   
Anne, a lot of people don't understand fibromyalgia...even some doctors.  It sounds like the anxiety is what is causing you many of your problems.  Anxiety is caused by fear and can cause depression, too.  You really don't have to fear fibromyalgia.  You just need to face it head on and learn how to control the pain.  We can help you there!
You do need to keep moving and I'm sure your autistic child helps in that department!  I have a four year old autistic nephew so I know it isn't easy for you.  Check out the Fibro 101 thread...the second thread on the forum.  There are links to good info about fibro...including some good stretching exercises that really help. 
You need to work with your doctor about meds that help with the pain.  I'm on ibuprofen with food and Tylenol for pain.  I also take malic acid/magnesium supplements for pain and fatigue.  They don't help everyone but many members have had good results with these...including me.  There is a link in the Fibro 101 thread all about them and how they work in your body.
If you are concerned about your heart, have your doctor run tests to make sure you are healthy.  I did that when I started getting palpitations...another symptom of fibromyalgia.  After having a few non-invasive tests I don't think about that anymore.  It's the anxiety that is causing you to panic over every little thing.  I went through that many years ago but now, when I get those anxious feelings, I recognize them and get busy doing something and the feeling leave.
We are here to help you.  Try to relax and get control of your pain.  You can live a full and enjoyable life with fibro!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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