New to this forum, but not FMS

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New Member

Date Joined Feb 2009
Total Posts : 6
   Posted 2/27/2009 2:52 PM (GMT -7)   
Hello.  I am a "newbie" here, first post.  I have had FMS since 2005, disk degenerative disease since 1999, Bi-polar II disorder, and colon problems since childhood, but really bad since I had colon surgery in 2004.  I wanted to get opinions from you all if possible.  I go to see a pain management specialist every month to help control my pain.  I have noticed that I have gotten much worse since this all began, and I've been told by one doctor that FMS is NOT a progressive disorder, and then by another that it is.  I dont know who is right anymore--so maybe someone here knows the correct answer to that.  My pain management specialist has had me on Vicoprophen and Lyrica for over 2 years now.  I do not get enough pain relief from these meds, and my doc wont seem to budge to try anything different.  In the past, I had tried many different meds.  But, with the constant feeling that the medical system is going to label me a drug-seeker, I am afraid to ask them many questions. I feel that I have a right to achieve pain-relief, but I am afraid to ask them.  I have never had a "high" feeling, or any other feelings besides short-term relief.  I actually dont understand the whole "addiction" process.  All I do understand is that 1/2 of the doc's I have seen are very anti drug minded.  I am going to see a new doctor next week and would love to hear any input of what I should ask him.....all/any advice would be great!
thanks and have a blessed day,

Regular Member

Date Joined Jan 2009
Total Posts : 120
   Posted 2/27/2009 3:09 PM (GMT -7)   
Hello and welcome. My doctor took me off my pain pills two weeks later I went back and said, I am in horrible pain and tylonol doesn't help, he put me on vicoden. No matter how scared you are you need to tell your doctor everything for him or her to adequately help you. If you are concerned about being put on narcotics there are other meds out there. i was on Tramadol for a while and at first it worked. I didn't have any side effects that mad me feel horrible. I is geared to muscle pain and is a non addictive med. you could ask for that to see if it helps. You should never feel afraid to talk with your doctor about how you are feeling. If he isn't willing to help then you need a better doctor. But if you are not up front and tell him everything no matter what the doctor you are not going to get the right help. Don't be afraid to say, I can't take the pain, I need some help.

On a different note you will find people here on the forum very helpful.
Fibro, interstitial cystitis, migraines, rotated femur, bunion on rt ft, hiatal hernia, for just a few.

reglan, prilosec otc, nadol, citrilipram,amitriptyline, and peroxicam, and vicodin.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 2/27/2009 3:42 PM (GMT -7)   
Hi Suanne and welcome. You will find a lot of diversity when it comes to treatments on this forum. I for one do believe fibro is progressive but there are a lot of factors involved age, other medical problems and activity level to name a few. I am not on any narcotics but I do have a bottle of vicoden in the cabinet if I ever feel I can't take the pain any longer. I do believe the amitriptyline I take helps the pain, I tried cutting back on it last spring and went into a two week flare from hades. I had not felt that kind of pain before or since. I take 4000 mg of tylenol a day, I get liver checked every six months. I use moist heat of any kind bath, shower, heating pad or bed buddy you put in the microwave. You can make your own by filling a long tube sock with uncooked rice and tying the end. I do use a TENS unit to interrupt the pain to the brain if it gets bad. Compared to many my pain is not as bad as the fatigue. I have more pain from the arthritis and fibro in my hands than anything else. I do flare during weather changes and under stress. Right now that would be both. smilewinkgrin
Please read the fibro 101 thread, second on first page, it contains lots of great info. It has stretching exercises too that many of us use. I'm sure your going to get many different suggestions on here and we have to learn by trial and error what works for us. Ask questions and read all you can and we will be here for you.
We are having a virtual party at Sherrine's in Florida this weekend and would love for you to join us. Yeah, it gets pretty crazy on here sometimes but we have to keep laughing to survive this winter weather.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41910
   Posted 2/27/2009 5:34 PM (GMT -7)   
Hi Suanne,

Welcome to HealingWell. You will find that this forum is full of wonderful and compassionate members. We all know what you are going through.

I don't know if fibromyalgia is a progressive disease or not. I think it is different for different individuals. There are some of us who think that it is, but for me, it has leveled off and hasn't gotten worse. i really hate saying that incase I jinx myself. But I have been keeping the pain to a minimum for a long time now.

I take vicodin for pain, well, actually norco. It is stronger than regular vicodin. I started taking a malic acid/magnesium supplement. You will find information of it in the fibro101 thread that Marlee refered to.

I hope that you find a doctor that can help you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Jun 2008
Total Posts : 726
   Posted 2/27/2009 6:01 PM (GMT -7)   

Hi Suanne & welcome.  Even when I am sick or hurting I come here to get my mind off myself & see what others are doing.  They are a kind & helpful group of people & you will find all the help & support you need. 

I feel that Fibro is progressive.  My pain has gotten worse over time & my fatigue can disable me. But who knows, maybe it will level out. 

I am a strong believer in the idea that if you can't talk to your Dr, if he/she is not safe for you to tell all your concerns too, you need a different Dr.  Don't feel like an addict, you have pain & need the help that these pain relievers were made for.  If your Physician says you are acting like a drug addict, move on.  I hope this pain specialist will have some answers for you.  I take 600 mg of Ibuprofen every 4-6 hours & this seems to keep my pain at bay.  I am looking into the malic acid & I take a B Complex for help with pain.  I use my bed buddy alot for those spots that just want to keep hurting. 

Good sleep will help to lower your level of pain.  I have a pretty thick mattress topper & a heated mattress pad cover that I can use for all over pain relief.  I take a muscle relaxant at night to help me sleep & I use Melatonin 5mg, sublingual to sleep. 

I hope you come back often & read, read, read.  Knowledge is Power.  Many hugs, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

Regular Member

Date Joined Feb 2009
Total Posts : 210
   Posted 2/27/2009 7:45 PM (GMT -7)   
What is a TENS unit? never heard of it.

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 3/1/2009 9:05 AM (GMT -7)   

Hi Suane and Welcome-

Pain management is a huge part in treating fibro and if you have a Dr. that does not believe in that, I would move on also. If only they could feel this pain for a day! Things would sure be looked at differently from the medical profession.

Lots of good advice given and it was nice to meet you-



Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 3/1/2009 11:07 AM (GMT -7)   

Hi Susanne!!

Welcome to the Forum!!!  You'll find tons of helpful people here that are very willing to help!!  They are non-judgemental and enjoy sharing ideas.  We're all here for the same thing.. help and support!

First, let me answer Baloo's question about a TENS unit, that's an electric stim. unit that sends impulses to the effected muscules but tensing them up and releasing them.  Most PT's and Chiros use them to help release a muscule spasm.

OK.. back to your question, Susanne, is FMS progressive.  Interesting question to which there are little to no answers.  One thing I do know is that its not degenerative.  As for progressive, I think it is, but so is the aging process.  As I've gotten older my painful areas have gotten worse.  Like Marlee, I have a lot of pain in my hands, but I also have it everywhere else.  I have a lot of back problems and when I'm in a fibro flare its MUCH worse in my back and hips.

As for the doctor issue.  I agree with everyone else.  Be honest.  Let him/her know that you don't want to be labeled as a drug seeker, but a pain releif needer!!!  I'm glad you've got a pain management doc.  I don't have one of them, but my doc. does acupunture, I can't afford that treatment but he does understand that pain is real.. thank God!!  I'm on tramadol, too.  When its really bad I can take ibpurofen and that helps too.  I also take amitriptyline to help me sleep and xanax to help with anxiety & sleep (which can throw me into a flare quickly).

Keep us up to date and informed, hope things get better!!


Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

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