Hi all--new here

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New Member

Date Joined Mar 2009
Total Posts : 1
   Posted 3/4/2009 12:42 AM (GMT -7)   
Hi everybody.

I'm 18 years old and was recently diagnosed with fibro. I can't be sure how long I've been feeling the effects of fibro as I also have chronic fatigue syndrome (or possibly post-viral fatigue syndrome, one of the two). I've been fortunate in that both conditions have not totally kept me from doing what I love most. I am a competitive figure skater, and live to skate. They've definitely impacted my skating, but haven't totally kept me off the ice. It can be difficult to deal with at times though because I've always been the type of person to deny pain. I keep it hidden as best as I can, but sometimes people pick up on it. I remember one day, a coach told me that I was walking like I'd just been in a car accident. I played competitive soccer for years with coaches that saw pain as a sign of mental weakness, so it's ingrained in me to hide and deny pain. My coaches are somewhat understanding, but don't quite realize the emotional toll the fatigue and pain have taken on me.

I've also had a few orthopedic injuries--surgery to my right knee, ankle, hip and leg. The hip surgery was to repair a torn labrum and reshape my joint to eliminate impingements. The knee surgery was to trim a torn meniscus. The ankle surgery was to tighten up torn ligaments and clear out frayed cartilage. The leg surgery was a fasciotomy due to chronic compartment syndrome.

As hard as it is for me to deal with the pain, it's been the exhaustion and cognitive troubles that have been the most difficult for me to deal with. I was a very good student throughout high school, and I can't stand to feel like I'm not running at full capacity. I've also lived in a bit of a zombie-like state for the past 3 years, and I can't help but feel that I'm missing out. I'm not currently enrolled in school because I'm trying to sort through the medical problems. I hate when people ask me why I'm not in school, and I've found myself making a variety of "socially acceptable" excuses.

Many people don't seem to believe the pain I feel is real, mostly because I'm still active. They don't understand that yes, I am in pain every day, but I try my very hardest not to show it. I realize I can't blame them for not seeing what I don't show them, but I also hate that people can't seem to believe that an 18 year old could be in as much pain as I am.

Sorry if that was excessively long, but I figured it would be better for you all to know a decent amount about me off the bat rather than trying to figure me out later.

Veteran Member

Date Joined Sep 2008
Total Posts : 532
   Posted 3/4/2009 5:27 AM (GMT -7)   
Welcome to our place where people understand your pain. Everyone here is supportive. Im sure they will be along shortly to welcome you there are a few others on here your age.

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 3/4/2009 6:56 AM (GMT -7)   

Hi there!!

Wow!!! What an incredible story you have.  Competition skater!! I was a horrible skater when I was a kid, but always wished I had that talent!!! 

There are lots of members of this forum that are close to your age.  But whether you're young or old this is a horrible syndrome, that zaps your energy and cognative thought process. 

I completely understand the "never show that your in pain" thing.  I hid my pain and fog for what feels like forever and I'm sure you will find that many of us have.  Unfortunately for me I couldn't hide it after my most recent flare, it totally disabled me.  But I keep trying to get better and I have a positive attitude most of the time and I think having a positive attitude is half the battle.

I wanted to be sure to welcome you to the forum and wish you a pain free day.  Please keep posting and check out Fibro 101.. the second thread on the Fibromyalia Forum.  There's lots of helpful ideas and articles posted there.. I know that section has really helped me understand what's going on with me, and explain fibro to folks that don't get it.

Take care,


Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 3/4/2009 8:29 AM (GMT -7)   
Hi and welcome, what a cute name. We do have other teens on here so feel right at home. You sound like an amazing young woman. The fatigue and cognitive problems bother me more than the pain too on most days. I can work through the pain but the fatigue is like hitting a brick wall.
Do read the fibro 101 thread. It is hard getting others to understand fibro, I sure would have never understood it til I got it. We will help you all we can.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Regular Member

Date Joined Mar 2009
Total Posts : 178
   Posted 3/4/2009 8:46 AM (GMT -7)   
Hello there! I just joined myself and allready feel at ease. Good luck with all you do. It is said staying active helps some. I hope you have a pain free day!

Regular Member

Date Joined Jan 2009
Total Posts : 376
   Posted 3/4/2009 10:21 AM (GMT -7)   

Hi there! 

I was just wondering - do you get the post-exertional malaise?  It's common with CFS.  It's that feeling like you have the flu for a couple of days after exercise.  That had a huge impact on my life (for me there is an underlying cause with the Lyme Disease).

It's good that you are taking some time off to sort thru your medical stuff.  Several of us have crashed when we couldn't go any further as zombies.

Have you talked to a therapist or counselor about all of this?  It's very difficult to take all this in and deal with it by ourselves.  Most of us have had to revise our ideas of what it means to "run at full capacity".  A therapist can help with setting realistic goals. 



Lyme, anxitey, depression, chronic C. Pnuemoniae
"... expect the unexpected ..."  (O. Wilde)
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)

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