This is my first time posting here. I think I have had fibro for most of my life but was only dx about
12 years ago. It can be a very lonely way of life so it's good to find a group like this. When I got my first computer about
9 yrs ago I joined a fibro group and when I read the messages I just sat and cried. It was such a relief to know that there really is someone else out there that understands what I go through! I was soooo sick and tired of being told I am just out of shape and/or need to be more active. I always felt like certain people in my life thought I was just lazy and my problems would all be solved If I would just do something. Grrrrrr!
I also have several non fibro problems. Pulmonary hypertension, arthritis in several places, chronic bursitis and tendonitis in both shoulders, gerd, and I could go on if my memory and concentration was working better right now. lol
When this hit me hard I was probably in the best shape I had ever been in physically. I was addicted to exersize and did so several times daily. Not a lot of arobic stuff but lots of weights and stationary stuff. I have had problems with my breathing for many years so arobics never were in the cards for me. Even so, I looked good, and felt good.
Then, all of the sudden I started to hurt in odd places, had trouble sleeping, and no energy at all. So when someone suggests to me that if I would just be more active or I needed 'conditioning' I wanted to scream.
I went through many tests and never any answers until someone decided I had fibro.Some of the drs I saw didn't seem to believe in it, and some did. I couldn't work and after much hassle and finally getting an attorney and going before a judge I was given ssd. I was prescribed many meds which I took for several years. They caused me to gain over 50lbs. It took me a while to figure out that the meds were causing the weight gain. I took amytriptilyne for help to sleep and was told it also helped with the pain. Well, it did help me sleep, with awful nightmares by the way, and it also gave me another side effect. I had a craving for sugar that you wouldn't believe. It took quite a while before I put the two together. I have decided that I don't want to take the pills any more. I quit it all except for once in a while when it gets real bad I will go back to the anti inflammatorys for a spell. For the most part I found meds did'nt help a lot after I had used them for a while anyway. Also at the same time the fibro hit I began menopause, and quit smoking which defineately did not help me. Now I take generic benadryl every night to help me sleep, ibuprofin for pain, a low dose asprin, nexium, hydrochlorathiazide, and a variety of vitamins every day.
I was put on a cholesterol med and after being on it for a few days I started to hurt twice as bad as normal so I quit taking them and went back to just my usual pain. That sounds strange doesn't it. lol My dr's get frustrated with me because I won't take a lot of meds. The weight gain during the time I was has been really hard on me and I dont' need to gain any more for sure. I have not been able to take it off either because I don't have the energy to be very active. I also admit that since I am so limited in what I can do, and I live alone with just my dog for company. I eat things I know i darn well shouldn't be eating. So even though I haven't gained any more since quitting the meds I seem to be stuck with the weight. The only exersize I really can do is in a pool and I don't live close enough to get to one regularly
Anyway, that's been a bit of my journey these last few years. At this point I have read a lot about
fibro and have learned to live with it. I dont' like to dwell on it though. That said there are times, especially lately as the pain seems to be increasing rapidly this last year, that I need to express my frustration with being so incapacitated so I am happy to have run across this group as the one I found years ago is long gone.
Post Edited By Moderator (getting by) : 3/8/2009 1:50:08 PM (GMT-6)