Questions from a newbie

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New Member

Date Joined Feb 2009
Total Posts : 6
   Posted 3/9/2009 8:49 AM (GMT -7)   
Hello all,
I am in the process of trying to figure out what the heck is wrong with me.  Let me give you the background.
I started noticing muscle fatigue which has developed over a very long period of time.  Lately, I have started having muscle pains that come and go all over my body.  For examply, my forearm will hurt for a minute and then go away.  A few minutes later my calf will hurt and then go away after a few minutes.  It just travels from place to place.  Even my underarm gets sore (the tendon in particular).
I had this same thing happen 15 years ago without the muscle fatigue but with stiffness (no stiffness this time).  The episode lasted approximately a month and then I got better.  I did notice that the pains seemed to go away when I took a week's dose of a steroid (prescribed at the time for a severe outbreak of mouth ulcers).  The rheumatologist that I was seeing at the time never could figure out what was wrong with me.
My questions are:
1)  Can fibromyalgia come and go?  Could I have had an episode 15 years ago and it has returned?  I have had some problems with tendonitis in the meantime.
2)  Can you have fibromyalgia without any sleep problems?  My internist ruled out fibromylagia when he heard that I had no problems with sleep.
3)  Is muscle weakness/fatigue a component of fibromyalgia?
My internist has done a full panel of blood tests to rule out arthritis related diseases and I am waiting for the results.  He says the next step would be to see a neurologist if the blood work comes back normal.
I'd appreciate any help you can give me.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41908
   Posted 3/9/2009 9:03 AM (GMT -7)   
Hi Kathy,

Welcome to the fibromyalgia forum. You might want to read fibro101, it is the second thread. It has all kinds of different information. I think you might find it helpful.

Fibromyalgia can do pretty much anything that it wants to. You can never tell with this frustrating disorder. I don't think you necessarily have to have any sleep problems with fibro. So I dont' think that is a rule of thumb. If you aren't satisfied with what your doctor is telling you, I would suggest finding another doctor. It couldn't hurt. Or maybe the neurologist could help.

Best wishes for a wonderful day.

Keep posting, as we will try to help you figure this out.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Sep 2008
Total Posts : 532
   Posted 3/9/2009 9:13 AM (GMT -7)   
I would also like to welcome you and suggest a rhuematologist. I usually dont have to many problems with sleep at night I think that is because of the medicine I am taking. Also have you been tested for Lymes? My Dr had diagnosed me with tendonitis several times and come to find out it us really fibro...

Regular Member

Date Joined May 2008
Total Posts : 223
   Posted 3/9/2009 10:22 AM (GMT -7)   
Welcome to the fibromyalgia forum. We're all family here. I agree that you should read the Fibro101. It really does have some useful information. I think that it is definately a possibility that you have fibro, but you can't really tell. It is frustrating right now, I know. But hang in there. You will be tested for pretty much everything before being sent to a rheumetologist for a possible fibromyalgia diagnosis. The most frustrating thing can be the waiting. You have to wait for all these different tests to come back, to see if you have anything else going on with you. But, it will be ok. I wish you the best of luck.

~MDD, Fibromyalgia, OCD, Anxiety Disorders, IBS, TMJ, Arthritis~
May your heart be filled with love and joy.
May your mind be clear and true.
May your smiles be many,
And may your tears be few. 
May God wrap you in His arms
Especially when you're feeling blue.

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 3/9/2009 10:57 AM (GMT -7)   

Hello Kathy!!


Your question about fibro coming and going.  I've had CFS or Fibro for at least 10-12 years, I think it might have been longer but I don't have any medical proof of that.  Anyway, I've had "good years'" & "bad years".  For a while I felt so good that I thought it was all a mistake or I got over it, until the past year or so.  When I finally had time to sit back and really think about how I've felt for the past several years.  I can say I didn't have a bad flare, but I wasn't as "healthy" as everyone else.  I had lots of times when I was experiencing pain and fatigue but I would attribute it to lifting something too heavy or doing too much physical exercise or stress.  I think I was in denial.  What I've found out since then is.. the stuff I was doing wasn't too excessive and shouldn't have created so much pain and fatigue.  I've had this so long.. I don't know what "normal" feels like anymore.

I'm glad you're getting all of the proper tests done.  And as LeeAnn said, be sure to be tested for Lyme Disease.  Fibro and Lyme have a lot of symptoms in common.

Please feel free to come back, as questions and get to know your fibro friends and family.

Take care,

Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

Regular Member

Date Joined Dec 2008
Total Posts : 478
   Posted 3/9/2009 12:50 PM (GMT -7)   
Hello Kathy,

Welcome to our family.

Your questions are very similar to mine. I remiss frequently with Fibro and do not take anything "prescribed" for pain. I am able to control with alternative methods. That is just me, everyone is different with VERY different pain thresholds. I can be normal for long periods then wham! pain is back.

Yes, absolutely muscle weakness is a symptom. The muscles fatigue to the point of weakness often.

I have absolutely no problem with sleep. I sleep 9 hours every night and go into a great REM period.

See how different we are and why this thing is so confounding???

Hope I have helped.

Oh, I have questioned this thing over and over and yes, I do have fibro.


Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 3/9/2009 1:49 PM (GMT -7)   

Hi Kathy...I was dx'd with fibro in the mid 90's and have periods of time when I thought they made a mistake because I didn't feel that bad.  It does come and go and at first I didn't have any problem with sleep.  yes...I have had spells of muscle weakness, once so bad I couldn't sign my name on a check.  Like the others have said, it's a good idea to have everything else that mimics it ruled out.  But everyone's experience with this disease is different.  I have a friend with it who doesn't get the fibro-fog that I have, and so far I don't get the muscle spasms that she gets every day.  It's a riddle within a riddle!



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Forum Moderator

Date Joined Apr 2005
Total Posts : 17524
   Posted 3/9/2009 9:37 PM (GMT -7)   
Hi, Kathy, and welcome!  You have gotten some good answers to your questions.  Your tendonitis could actually have been fibromyalgia all along.  We have a lot of muscle pain and the pain travels for many of us.
I don't have much problem sleeping...except tonight!  LOL  (I had a piece of chocolate cake a couple of hours ago and it's keeping me awake now.)  Most people with fibro do have sleeping issues, but not all of us. 
Yes, muscle fatigue can be a problem with fibromyalgia.  Be sure to check out the Fibro 101 thread.  There is a list of symptoms in there.
I'm so glad you found us and joined in.  We have great members that love to help each other.  I think you have alread found that out.  Read back posts and ask questions because we are here to help you.  Hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

New Member

Date Joined Feb 2009
Total Posts : 6
   Posted 3/10/2009 12:51 PM (GMT -7)   
Thank you all for your warm welcome and answers to my questions.  I am still waiting for my blood test results but spoke with a physical therapist in the meantime.  She feels that she can help me build muscle strength with physical therapy and wants to get started right away regardless of the diagnosis.  Her initial assessment is that I am definitely losing core strength and also need to work on my arm and leg strength.
The therapist has experience in working with people with fibro.  I'm nervous because the last time that I tried to use the strength machines at my gym I ended up very sore all over but she said she could work with me and avoid that.  Have any of you tried physical therapy and been successful? 
I have definitely lost muscle strength in my arms, legs, and hands which I had attributed to menopause and age (54) but she said that I was much weaker than I should be for someone my age. cry   
BTW, as way of introduction . . . I am a high school math teacher, married for 25 years, and have two grown daughters (23 & 20 years old).  Oh, and I have two furbabies (Shih tzus . . . hence the name shihtzulover) named Abby and Gracie.

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 3/10/2009 1:56 PM (GMT -7)   

Hi Kathy and Welcome-

I got fibro about a year ago now (I am 52) and it hit me hard. I did do Physical Therapy for many, many weeks and I feel it did help me. I had no endurance even to walk 30 ft. when I first started therapy. My first appointments caused "bad" pain and to the point I did not want to return. I stuck it out though. I feel like my body has gotten as far as it is going to go (right now). I can walk three long blocks, or a short trip into the grocery store or another store, and at the mall, I can walk a third of it. If I walk any further my muscles cramp and the pain hits. The therapist taught me deep breathing and gentle exercises and did alot of educating me on fibro. I know some people therapy works and for some the pain becomes too much and they can't do it. I do know I was able to build up muscle strength.

Sounds like you have a wonderful family-


Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

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