I'm 16yo & going to a program for kids with child's form of fibromyalgia

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Jan 2009
Total Posts : 17
   Posted 3/25/2009 8:42 PM (GMT -7)   
Hi! I'm michaela! I'm 16. I was kind of curious if anyone around my age has gone to
Children's Hospital Of Philly (CHOP). There are only 2 other programs in the country
that help kids with this chronic illness. The doctor who came up with the program is
called Dr Sherry. I was just accepted and I wanted to know if anyone has done this
program. If so, I'd like as much of your feedback as possible. I'm pretty nervous so
if anyone wants to respond, feel free! Thanks!!


Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 3/25/2009 9:18 PM (GMT -7)   
Hi Michaela!

I don't have any experience with this hospital but did search around the web to see what they are all about. Sounds like it's a very intensive exercise and occupational therapy program to try and reprogram your muscles and nerves to not feel pain...at least that's what I understood it to be. This first link is a few kids talking about their experience there. Very open and it might help you. Also they give some links to YouTube videos of a gal who went through the program.

Hope this helps and keep us posted...OK?

This one is a forum where kids who have been there talk about it.


Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
Happiness is something to do, someone to love, and something to hope for."

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 3/26/2009 4:10 AM (GMT -7)   
Hi there Michaela!!
Chutz did some good research for you!! Isn't she the greatest!!!
I just wanted to say I wish there was more programs like the one out there, for kids and adults. But the fact that there is such a thing is proof that the medical industry is FINALLY starting to get a clue and doing something to help us.
Please let us know how it goes, I'll be curious to see how it worked for you.
Take care,
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 16, 2017 11:25 PM (GMT -7)
There are a total of 2,906,367 posts in 318,948 threads.
View Active Threads

Who's Online
This forum has 158284 registered members. Please welcome our newest member, Mindy829.
225 Guest(s), 7 Registered Member(s) are currently online.  Details
Jaiki, MDNative, bummedinsocal, Jaybee&GG, searchinginla, Manzanita2, TxBart