Hello, I am new to this forum. I am in limbo, trying to get a diagnosis of something.....anything to explain my symptoms.
Let me give you a breif history of my symptoms. It may be a little long, but please bear with me. about 5 months ago I woke up in the middle of the night to my right arm, from my elbow to my fingers, being completely numb and heavy. It was hard to move and it felt "dead". No pins and needles, just numb. about 30 mins later the feeling started to come back along with stabbing pain from my hand to my shoulder. My hands have never been the same since.
I have neuropathy in my hands and feet. My finger tips feel like they have super glue on them all of the time. Hand weakness, arm weakness and leg weakness. Muscle spasms in my neck, back, arms, hands, legs and feet. Extreme fatigue. My pupils are sometimes diff. sizes. Extreme pain and pressure around my whole trunk of my body. Numbness/tingleing in my hands, feet, knees and face. Slurred speech and mental confusion. When trying to walk through door ways I will walk right into the door way. I have bad depth perception.
My Drs don't know what is wrong. At first they thought maybe MS, but I have no brain lesions. I had nerve conduction study that was normal. No pinched nerves. I am neg for rheumatoid arthritis and Lyme. My b12 levels are normal. I am slightly vit. D deficent. I am waiting on a MRI of my spine and a lumbar puncture.
My Dr mentioned that I might have fibro. I don't have the painful pressure points that I read about though. I am on gabapentin for the pain and that helps a little. My hands and feet always bother me. But somedays are worse then others. I will sometimes have a week or two of relief and then it comes back stronger.
Does this sound like it could be Fibro? This is affecting my life. I have 2 very young kids, and I can hardly carry my 1 yr old son somedays. The pain and weakness is almost too much to handle. And the fatigue is awful.
Any advice or support would be so lovely. I feel horrible, I feel like I am going crazy.
Thanks so much