Hi my name is Diane and I live in North Eastern Pennsylvania. I was diagnosed with Fibro way back in 2002. I guess Im lucky, because I have had it so bad that I was in a wheelchair unable to walk around my house, but right now my mobility is up and I am chair free.((UNless I got to a mall or something that will mean a lot of walking)) I have a lot of pain, and I could sleep all day if I let myself. My symptoms have been at the point where they tell me I have MS, but then no lesions anywhere, so then when I moved to another state, that doctor says No you dont have MS, because you have no lesions... I also at one point was told that they thought I had Myostenious Gravis, because I had trouble swallowing and stuff like that.
Sometimes I feel like I am just nuts! You have this.. No you have that... its like a circle. Currently I just see a pain specialist and my family doctor to treat my Fibro, and at this time it seems to be all good. Ive been down a month and a half right now with colds and flus and virus... Cant seem to shake them once I get them, but I think it is almost over. I have been trapped in my house for about
6 weeks, and look forward to the spring... hoping it will make me feel reborn and healthful. ((My sons girlfriend came over one day 7 weeks ago and said she didnt feel good and she had a fever... and that was how it all started)) She got me and my 8 year old sick, and we have been sick ever since.
me... I am 45 years old, and a mother of a 22 year old and an 8 year old. I am separated from my spouse now since Sept 2006, due to DV. My husband had started stealing my meds and got addicted to them, and that just did not end well. I had to go into a DV shelter, me and my then 6 year old. Being sick so much, I was not able to support myself and stayed a long time because I was dependent on his for shelter and food and all of our daily needs. I had applied for social security, but I did not have any work credits, and had to file for SSI, which took 3 years to finally come through. I finally got it in 2008, it was a long time coming and SSI sucks! SSI is for people who do not have work credits and become disabled. Being a Mommy all my life, I never had to work, just take care of kids. Anyway, I finally got it, and it is better then nothing, but feels like nothing at the same time.
I have looked for support groups here in my local area, but never seem to find any.
My 8 year old suffers from tourettes, OCD, and Depression. Tourettes is really a rotten disease, and has so many facets to it.
SO, I guess somehow Im hoping to find Hope and friends and understanding in this group... And maybe some tips on how to beat this Fibro with a stick! You know, tips on Homeopathic remedies, things that make life easier and happier and more livable.
thanks for listening to me whine... I hope I can do the same for you one day
Fibromyalgia, Chronic Pain, Chronic Fatigue, Chronic Acute Pancreatitis (From Birth Defects), Disc's Compressed in Neck and here and there all the way down & Herniated Disks, Osteo, Depression, (Wonder Why, IBS and Gerd. ((Im sure theres more but why bother, right!))
Current Med's: Methadone, Percocet, Baclofen, High Dose Vit D, Pancreacarb, Prylosec, Sennacot,
As Needed:Flexeral , Attarax , Tramadol, Lidoderm,Glycolax,
Theres more but who cares!!
Post Edited (Dieann63) : 5/5/2009 9:24:13 PM (GMT-6)