A misdiagnosis all this time???

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Regular Member

Date Joined Mar 2009
Total Posts : 65
   Posted 3/30/2009 8:46 AM (GMT -7)   
Since I got the dx of Fibromyalgia a little over a week ago I have been doing what I do best...researching and reading.  I bought a wonderful book called Fibromyalgia The First Year that I am already half way through.  There was something in there that gave me a huge wake up call...fibromyalgia presents many of the same type of symptoms as bi-polar...wow, that's pretty big for me.
For years, since childhood, I have had to deal with situational depression and have been to many different therapist and tried many different medications.  The problem always was that the medications caused really bizarre side effects in me.  I have had chronic pain since before high school, I just thought it was normal.  My mom always told me it was growing pains or that I just didn't move around enough.  I was a fairly active kid until I started hurting, then I didn't want to do anything.  My mom, and the doctors took this all as signs of depression.  Four years ago a psychiatrist gave me a dx of bi-polar disorder.  He put me on a medication and sent me to a fairly new tye of therapy program.  The therapy program helped, the medication not so much.
Now that I am reading more about fibromyalgia and the related symptoms I have to wonder if this has been my issue all along.  See the dx of depression and bi-polar never really sat well with me.  I know I displayed some of the symptoms of each of these, but not all of the symptoms, and not to the same extreme they were talking about.  For the most part I am fairly happy despite the pain.  When I am having a bad day I can seem depressed and my mood swings are pretty crazy, and when I have a good day I do display some signs of mania mainly because I just want to go and do as much as I cna while I am feeling good.
I go to the doctor tomorrow so I plan to bring this up to him, I just wanted to hear what you all have to say on this thought process.

Regular Member

Date Joined Mar 2009
Total Posts : 180
   Posted 3/30/2009 9:00 AM (GMT -7)   
Hi Emberkitty.
I can't say if you were misdiagnosed, but I can tell you my situation. I am bipolar and fibro, and until they got meds for both issues right, I struggled with both all the time. I have found that when I have a long flare, I still have too much high and too much low. So for me, they are both true.
I hope you get your answers.
Fibromyalgia, Bipolar Disease, Post Traumatic Stress Syndrome, Clinical Depression, Arthritis, High Blood Pressure, etc.
Who ever knew I would be defined by my diseases??

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Date Joined Apr 2005
Total Posts : 17497
   Posted 3/30/2009 10:50 AM (GMT -7)   
Ember, it could possibly be a misdiagnosis.  I'm not a doctor but I do know I have had some of those problems.  I'm basically a happy, positive person but have had some really down times too.  Life does that to you.  It doesn't mean you are bi-polar.  I never heard of that illness until about 10 years ago. You can have mood swings with fibro too.  Go to the Fibro 101 thread and check out the list of symptoms that include depression, anxiety, personality changes, mood swings, etc.  That sounds like what you just described.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jun 2008
Total Posts : 726
   Posted 3/30/2009 11:18 AM (GMT -7)   
Ember, My daughter has had Fibro her whole life, she is now 33. She complained of Fibro-like symptoms & had many things going on, all the time. She was misdiagnosed when she was 6 as the youngest hypochondriac they had ever seen. We had to treat her symptoms like they were "all in her head" but she still had the symptoms & I finally believed her but could not find out what it was. She had a stomach ulcer when she was 6 & that told me, for sure, it wasn't in her head but most Doctors knew nothing about Fibro back then & she was always dx'd with "all in her head" or "growing pains". Since Fibro is now coming to light, so to speak, I think we will see an influx of younger children having it. You may or may not have Bi-polar, it will be interesting to see what happens. Researching is one of the things I love to do, but do be careful, I have caused myself some real problems, not fun to dx yourself with cancer. LOL Hugs, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 3/30/2009 12:26 PM (GMT -7)   

Hi there EK!!

I hear ya.. I was never dx'd as bi-polar but.. when I was a teenager/young adult my dad would get on my case about being so happy one minute and being so down the next.  I think I could have had fibro most of my life.  I don't think I'm bi-polar. But I do think that we all have a tendency to feel really rotten one day and feel a lot better the next.  And when you're in the kind of pain and confusion that we suffer from you could easily be misdiagnosised as being bi-polar. 

I can't answer the question honestly but it wouldn't surprise me if you were misdiagnosised as bi-polar when you had fibro all along.  One thing I know doctors are very good at... and that's misdiagnosising a lot of illnesses.  I see it all the time with other people so it wouldn't surprise me if they messed up ours too.

Yes... please let us know what the doc. says.  I'll be interested in what he/she has to say.

Take care & gentle hugs,

Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

Regular Member

Date Joined Mar 2009
Total Posts : 65
   Posted 3/30/2009 2:36 PM (GMT -7)   
Thanks everyone for the input. I finally have a doctor that takes the time to listen to ALL my complaints and takes them all very seriously. I am so lucky to have found him. For years I have gone to doctors with various pains and symptoms and each time they would treat the symptom most prevalent that day and ignore anything else I said. I have made a list of all the symptoms I want to address through treatment as well as an outline of the different approaches I would like to try in treating my symptoms. I hope to combine traditional Western medications and therapies with alternative and Eastern philosiphies and techniques to hopefully find a combination that will treat me as a whole instead of my "pain of the day".

Denise, LOL...I know what you mean by over research...at one point I was convinced I had MS based on my research...

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 3/30/2009 4:33 PM (GMT -7)   
Dear Emberkitty: I have both dx's. I had a rocky childhood, was physically ill a lot but also was terrified of going to school. I tried so hard to make myself go, but was panic stricken. I was depressed alot and had what my mother also called "growing pains". I used to get horrific pains in my legs, and nobody paid much attention. I found 222's in medicine cabinet. They were a mild codeine compound with acetominophen. When I took that medicine the pain would settle down. I've been going to psychiatrists since age 13. Also had constant strep throat, and years of antibiotics. So, I believe, one does not exclude the other. I wish it did. Welcome and good luck.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.

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