Finally diagnosed - took 5 years!

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Regular Member

Date Joined Apr 2008
Total Posts : 84
   Posted 3/30/2009 12:59 PM (GMT -7)   
This may sound wierd, but I'm excited to finally have a confirmed diagnosis. 
Five years ago, I had a horrible virus that really wiped me out.  That's when the aches began...thought I was dying from the constant and sudden aches all over.  Was told I had "reactive arthritis" and that it would go away in a few months.  9 months later, I went to a rheumy who tested me for lupus and RA which were negative.  He said I have UPV (I guess that's what you call arthritis when you don't know what type it is??)  Went to two more doctors over the course of 4 years and was told, "yep, you have "some" sort of arthritis and sent me off with advice to take aleve.  about a year ago, I developed further symptoms of muscle pain and weakness and painful tight legs making it hard to sit.  Today, finally, after 5 years of knowing it's not "just arthritis", I was diagnosed with fibro and restless leg syndrome.  I have been dealing with this since I was 29.  I'm sad that this has hit me so young, but I think that is not uncommon for a lot of people with this condition.  I have 2 small kids who keep me active.  I am so glad I don't just have to say, "mommy aches so bad" and not be able to say why.  My doctor started me out on flexerill which I will take for the first time tonight.  He doesn't want to unnecessarily over medicate, so we are starting with something light and can switch meds in a few weeks if needed.
So, I'm officially joining the club. 

Forum Moderator

Date Joined Apr 2005
Total Posts : 17523
   Posted 3/30/2009 1:09 PM (GMT -7)   
I'm glad you finally got a diagnosis but sorry it took so long.  It is a frustrating process, isn't it?  But it sure feels good to know you aren't losing your mind!  smilewinkgrin
We are here to help you along now.  Just ask questions and we will jump in and help you as much as we can.  Glad you are here!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Mar 2009
Total Posts : 65
   Posted 3/30/2009 2:44 PM (GMT -7)   

I know the feeling well. It has taken me 5 years of searching to get a dx, and before that I had many symptoms for years and I am only 30 now. It was a huge relief to finally have a dx, now I know what to look for, what to read, and what questions to ask. If I have to be sick I want to know why and even if I can't make it all better I want to know what I can do to improve my symptoms.

Regular Member

Date Joined Mar 2009
Total Posts : 178
   Posted 3/30/2009 4:09 PM (GMT -7)   
I also was just diagnosed. It is a huge relief to finally have an answer. I hope the flexeril helps and you start to have some relief from the pain. Also it is nice to see another "ang" who spells her name the way I do. My full name is Angeline. I am also only 33. Too young to feel this darn old eh?
fibromyalgia, bipolar, ptsd, depression, anxiety
cymbalta, abilify, triliptal, lorazapan, lyrica, flexoral, ibuprophine.

Regular Member

Date Joined Mar 2009
Total Posts : 117
   Posted 3/30/2009 4:11 PM (GMT -7)   
I've been told I can't take Flexeril anymore because of the gastroparesis.  UGH!
Fibromyalgia, Gastroparesis, IBS
Endometriosis, Hypothyroidism, Psoriasis, Asthma, Cholecystectomy
(Diabetic spouse)

Veteran Member

Date Joined Jun 2008
Total Posts : 726
   Posted 3/30/2009 11:54 PM (GMT -7)   
Ang, it is hard to explain to people who don't have an illness, why getting the dx is so emotional. Happy, sad, up, down & all overwhelming. I was so happy to finally get a dx but so stubborn I thought I was going to beat it. It is humbling to finally realize I can't control it but I can do things to make my life worthwhile. One of the best things I did was to find this site. Welcome to the club, hugs, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

Veteran Member

Date Joined Mar 2009
Total Posts : 599
   Posted 3/31/2009 1:33 AM (GMT -7)   
HI there,
I know that emotional up and down, because I am going thru it right now as well - I was just diagnosed last week. I'm female and 40. I am so glad to have found this forum because I feel like I've been going mad for the past few months not knowing what is causing my sickness. You aren't alone. I feel really lucky to have had a diagnosis so quickly because my GP is especially interested in fibromyalgia. I don't think it's weird to feel excited to finally have a diagnosis - I am also super excited because now the only way is up!

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 3/31/2009 3:37 AM (GMT -7)   

Hi there Ang and Welcome!!!

I like to welcome all of our newbies.. but hate to see one more person having to deal with this unforgiving syndrome.  Sort of mixed emotions.

I know how you feel..  its sort of that feeling.. I KNEW there really was something wrong with me.. SEE I'M NOT CRAZY!!  Like Sherrine said, now you atleast know you're not crazy.  That's the relief part.  Next you get to deal with.. this thing is going to last the rest of my life..  You'll go thru a gajillion feelings & emotions over the next few months and years. 

Be sure to check out Fibro 101 the 2nd thread on the forum.  There's lots of stuff on there that will help you learn to cope with fibro and ways to explain it to the people in your life that "don't get it".

Welcome to the forum... I'm glad you found us!!  Keep posting, asking questions, and read some back posts.. you might find some answers in them.

Take care!!

Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 3/31/2009 8:02 AM (GMT -7)   
It is a mixed bag of emotions to get a dx. I never suspected fibro so it was hard finding out I had something there was no cure for. But at least I knew it wasn't all in my head and I had a name for it.
It is sad to see so many so young on here. My future DIL, who is 32, gets the results of her MRI, blood work and etc. tomorrow to see if she has any of the other things it could be. Of course I don't want it to be MS, lupus and she has already tested positive for RA but I don't want it to be fibro either.
Welcome to the family again Ang.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
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Regular Member

Date Joined Jan 2009
Total Posts : 386
   Posted 3/31/2009 8:19 AM (GMT -7)   
Welcom Ang,

Your story sounds familiar. The ups and downs of searching for an answer for all the craziness going on with your body, it ends up to be such a relief when you can put a name to it.

Keep in touch,

Dx Fibro 1/2008, gastritis
600mg Gabapentin, 50mg Pristiq, Ultracet and/or Fentanyl patch as needed, Vitamin D3, Menopausal Support Multi-vitamin

Regular Member

Date Joined Apr 2008
Total Posts : 84
   Posted 3/31/2009 12:19 PM (GMT -7)   
Thanks everyone!  for the warm welcome.  It is an emotional time.  I had suspected Fibro for almost a year now, but could not bring myself to say it out loud without a confirmed diagnosis.  I guess I assumed people would think I was making it up.  Now I feel more confident about discussing it (now that I have a professional to back it up).   My hubby never doubted me, but I also feel more confident speaking to him about it (if that makes any sense).
  I am looking forward to getting to know you all.
Thanks for the support!
coping with fibro since July 2004
Officially diagnosed with fibro and restless leg - March 2009
Mother to two wonderful kids, born 1999 and 2002

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