Posted 8/26/2014 7:39 PM (GMT -7)
I've been having vague symptoms for years (nausea, vomiting in morning, not pregnant, bouts of sleepiness) but I'm eagerly seeking an answer to my weird pains... as more and more tests show nothing, I'm starting to think it's fibro. Esp after reading these posts. Last august my fingers would feel numb/tingly for a couple hours prob 3 times that month. Then not again until Feb. It became more and more often, and since May it's been pretty constant. EMG ruled out neuropathy, carpal tunnel, pinched nerve/nerve damage, etc. I'm on vit D and B12 supplements, bloodwork is fantastic (negative for lyme, have great liver, kidneys, electrolytes, A1C (diabetes marker)). I was diagnosed with epilepsy at age 21 which is a really unusual age. I'm 31 now. All my MRIs have been normal, so no MS or tumors. My seizure med levels are stable. I'm getting more in depth testing for tick born diseases, but beyond that, all that's left is fibro. Anyone know other avenues worth pursuing?
I'm jumping around a bit (fibro fog?), but in July I started having these sharp shooting pains everywhere. It would shoot through my hip, then my foot, then my arm... it's happened in my chest so bad I almost went to the ER, up my neck, I feel crazy trying to explain it to ppl. It's the same shooting pain, just EVERYWHERE, and so sporatic, it just doesn't make sense. Each pain only lasts a split second, but sometimes they'll come for hours. Sometimes its enough to make me jerk an arm or leg. One night it had me flailing about, an arm then a leg then my arm again... scared the @(#* out of me. A few days after those sharp shooting pains started (the first 4 days were super strong, causing violent jerking, scary), I started occasionally having that bee sting sensation. Its usually my big toe, my stomach, or my back but can happen anywhere. Yesterday and today I just feel exhausted. I slept 8 solid hours, was up for 4 hours, then couldn't fight off the need for a nap. And trying to wake up from my naps is almost impossible. I could sleep straight into the night if undisturbed. It happens from time to time and its awful. Just suddenly boom, I NEED to sleep, I cant fight it, doesn't matter what I'm doing or planning on doing, I just have to nap.
I'm not having joint pain, my muscles all feel tense, my thighs always feel bruised to touch.
I'm seeing a rheumatologist next month but in the meantime, this sucks! It really helps knowing I'm not alone and I'm not crazy. No matter what the underlying cause in my case, knowing other ppl feel these weird things makes me feel better. I feel like everyone around me things I'm making a big deal over "nothing"... the "bad things" were ruled out so I should stop worrying or thinking about it. It's attributed to stress, being psychosomatic. I don't accept that, I know I'm stressed but this is more than stress.
Oh, and I've become so cloudy headed, I feel like I'm becoming stupid. I feel like I'm stoned all the time or something, I've been making mistakes at work and its not good. That is most embarrassing :(