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Veteran Member

Date Joined Jun 2008
Total Posts : 726
   Posted 4/10/2009 3:15 PM (GMT -7)   
I have been doctoring & so far, it has not been fun.  The CT scan of my lungs was very interesting, I have to say.  I got to watch it afterwords & Mark, the radiologist, sat & explained to me what I was seeing.  I saw my heart, lungs, spleen, kidneys, liver, throat, etc.  I have seen more of my innards then I have ever seen before. LOL!!.  Last year I got to see my brain after the MRI & I got to watch my heart on the Echo cardiogram.  It is nice to know they are all there & in the right place.  Once the scan is read my Doctor will be notified & I hope I hear something soon.
I was very depressed when my blood tests came back & everything was normal.  Such an odd reaction.  Isn't that funny?  To want it to show something?  I just wanted a quick answer, I guess & just couldn't handle the idea of more testing.  I began to think that everything was all in my head but finally I decided to wait until all the tests are in & let the Doctor figure it out.  It does no good to be depressed but I was down for a couple of days & didn't want to talk to anyone. 
I hope everyone is doing well.  I hate being sick & tired so I am going to try to enjoy the Spring.  Hugs to all, Denise 

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 4/10/2009 3:46 PM (GMT -7)   
Hey Denise...when I got my last batch of blood work done (about 8 months ago) I was horrified to hear the results because I felt so bad I was sure I had something deadly wrong with me.  So I go in for the results and the Rhuemy tests are perfect!  You are very healthy...I don't see this kind of blood work on a teenager. (I'm 63)  I argued with him...How could I feel like crap and nothing shows up?  I asked him to run an ANA and he told me I didn't need one.  I kept thinking I must have some kind of autoimmune thing going on, with the constant pain, tingling and numbness sensation, such horrible skin sensativity with the goosebumbs and shivers...I insisted I must have MS or something.  He says if you have an initial onset of MS in your 60's it will be the first case I ever heard of. Plus I was tested for MS, Lupus etc about 10 years ago with the MRI's and the whole nine yards and they were negative.
Geez...I know how you feel.  I was praying it was my thyroid or something.  At least I could take something for it and so many people in my family have thyroid issues.  Nope!
It's hard sometimes to except this stupid disorder.  Especially when you get the eye rolling and 'suck it up' responses from people that 'don't get it'.  I'm going to start telling people I have Herkamandorangia Disease.   Then they might pick up a dish or stop asking me to power walk through the mall.
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Regular Member

Date Joined Jan 2009
Total Posts : 386
   Posted 4/10/2009 4:24 PM (GMT -7)   
((HUGS)) Denise,

I only have a minute, but I just wanted to say I remember that feeling of wanting to have "something" come out of all the blood work, mri's, ultrasounds and x-rays.

Also I totally understand not wanting to talk with anyone for awhile. But I'm glad you don't have anything life threatning.

Take care hun, have a Happy Easter! I think I'll eat me a big ol' chocolate bunny. :-) lol

Dx Fibro 1/2008, gastritis
300mg Gabapentin, 50mg Pristiq, Vitamin D3, Menopausal Support Multi-vitamin, Ultracet and/or Fentanyl patch as needed

Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 4/10/2009 4:47 PM (GMT -7)   

Hey Denise,

I know the feelings.  Its sorta like, please make it something that everyone has heard of and has a clue about.  Something that can be controlled with proper meds and can really explain why I feel like this.  I went through that when I had Lyme .. at least it can be cured, little did I know that the fibro was lurking around waiting to pounce and would be incurible.  Its that feeling.. you mean this is going to be the way it is for the rest of my life?? 

I also understand your wanting to just lay low for a while.  I've been doing that in my life outside of this house for the past 5 months.  I don't want to really see anyone I know (this is a small town and I held a high office in the community so I know everyone).  I don't want to have to explain how "I'm feeeeeeling these days"

I'm glad you popped in to let us know how the tests went .. I remember you mentioned you were gonna go thru the gambit.  It is kinda cool to see your innerds though, isn't it.  My favorite is the brian MRI... that way I can prove I do have one and the EKGs do prove there's an actual heart in there (not that cold empty stone some people think I have.. LOL)

Be sure to let us know the results.. and like Lori said.. at least so far its nothing life threatening. 

Hugs 4 now..

Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

Veteran Member

Date Joined Jun 2008
Total Posts : 726
   Posted 4/11/2009 10:48 AM (GMT -7)   

Thank you so much for the understanding replies.  I am feeling better, emotionally today.  I hit one of those bumps in the road & ended up face down in the dirt!!!  OK, that's a bit much but I sure felt like it.  I hate being sick & I hate having so many other people feeling the same way.  Some days I just want to get up & jump out of bed like I used to, just to see if it feels as good as I remember.  cool  

It is so nice to be able to say something & have everyone not only understand but to actually "know" what it feels like.  This is a great place & it is because it is made up of such wonderful people.  I want to thank all of you who replied to my earlier post, "and so it begins"  I wanted to thank you all & all those who read but couldn't reply.  I read the posts, I was overwhelmed with such caring, loving people.  It made me feel so cared for & I did appreciate it so much.  Patsie, sorry for my getting the name wrong, (heavy sigh!!!) The fog hits again.  I do love the saying thought, it takes away all the garbage & what is left is "what is".

Donna, I think I love the name of that illness.  Maybe if we change the name of Fibromyalgia to Herkamandorangia Disease we will get some respect!!  Do ya think??  The only problem is I had to keep going back to look at how it was spelled just to get it written once.  And with my Fibro Fog I would never remember it.  How does Herka Fog sound?

Hugs to all, Denise 


 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 4/12/2009 6:16 AM (GMT -7)   

Hi Denise-

Sorry to hear you are having a rough time of it. I know, isn't it interesting to see the insides of your body and brain? I had an MRI last spring and to see my brain was really something! Yes, I have a brain- so no matter how bad the fibro fog gets all I have to do is pop in the CD they gave me and look at it!  tongue   And I too could not get over how all my tests would come back normal and felt like I was on my death bed- how could that be????

I go through periods too of bad pain and depression, and have to get my mind going in the right direction. Fibro is not easy. I think you have done well- and let us know what the scan results are, K?


Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 4/12/2009 6:50 AM (GMT -7)   
Have you heard jokes about people that exercise, eat right and treat their bodies like temples and they still die??? Well, we are healthy chronically ill. My hands feel like they have been smashed between two bricks most of the time and I set and look at them cause how can something hurt so bad and look normal except for the OA.
Hang in there Denise. Donna you gotta come up with a name we can remember and spell, did you forget what group you are writing to.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Veteran Member

Date Joined Jun 2008
Total Posts : 726
   Posted 4/12/2009 11:41 AM (GMT -7)   

One time, a long time ago, when I was about 20, I was cooking in a restaurant & one of my co-workers was a really nice lady but always had something very bad going on but the Doctors never could find anything.  One of the other cooks & I decided to play a trick on her & when the three of us were together pealing buckets & bucket of potatoes, I said "Oh, my sister finally got a dx & it was found she has Elephantitus".  Then the two of us talked about all the symptoms & problems of the illness.  Of course, we didn't even know what the real symptoms were but we thought we were so funny we just kept on.  Well, the next day we both got called into the bosses office & were told that the other cook was sure she had Elephantitus & was going to go to the Doctor about it.  He asked us if we knew where she heard about it & we did fess up & told him but we thought it was funny.  He told us not to do it again.  Now I think back & feel so bad that I did that.  You just never know how people are really feeling & she probably had Fibro.  sad   Thinking about a name for Fibro reminded me of this.  I was as bad as any, especially when I was young.  Life has a way of coming around & slapping you in the face. 

I often think how can one little illness called Fibro, cause so much trouble!!!!   But it does!!!!

I have been plagued with depression all my life & my antidepressant works great but only during normal times.  Normal??  What's Normal???  LOL

Love & hugs, Denise



 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

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