As far as Doctors go, I use what I can. I have no insurance, pay for my own meds and happened to find a good, understanding GP that was willing to write the script
s that help without thinking I am a Hypochondriac. Two years ago, I was on the Arizona funded program for low or no income, and was stuck with a Physicians Assistant for two years that couldn't write all the script
s, ran ever test in the world and found nothing of course that would explain anything, and I had to go to County Mental Health for my anti-depressents and anti-anxiety meds, and all they did was keep filling prescript
ions and writing down on my file, Mood Disorder, Mood Disorder, Mood Disorder about
20 times in two years. So, I guess I don't really have Fibro, I have a mood disorder and can't manage to get my head out of my pants well enough to pull it back together again. Idiots!
Personally, I think what I am going to do, since I had Polio as a child is just go ahead and file for disability and blow it through if I have to go to a hearing in a wheelchair. and then at least I will have Medicare after a year and maybe I can get a real Doctor that knows something.
As far as which type of Doctor you should use, its the one that you can find that knows the most, treats you like a real patient instead of a head case and can address your needs the best. What letters they have on their title doesn't seem to mean nearly as much.
You may want to drop the Guafenesin which is a expectorant, unless you have a problem getting mucus up out of your lungs, which might be your case if your taking the Guafenesin for breathing, reading that you are using drugs for breathing. I don't know if you have asthma, or diagnosed with some other lung problem, but Fibro by itself can cause a sense of breathing problems. I have script
s for a couple of meds to
open up my breathing, and most of the time it is not even my lungs causing the problem.
If your following the Guafenesin protocol for Fibro, that Doctor, can't think of his name at the moment, that claimed that Fibro was the result of a big build of sulfates and other crud in the muscles and he claimed that Guafenesin would over time break this stuff down, you are adding another drug that makes you feel kinda lousy for a minimal effect and it could be interacting with your other meds. It simply depends on what your taking the Guafenesin for. I take it every once in awhile for congestion myself.
This Guafenesin protocol for Fibro became very popular years ago when there was little else to help. Some of the people that did it felt somewhat better and some got nothing out of it. The reason some felt better is that if you break down what Guafenesin is beyond breaking up mucus, it is very similar chemically to both aspirin and Robaxin, a pain killer, anti-inflammatory, and muscle relaxer all combined in one pill. The people using this Protocol were working themselves up to very high dosages of Guafenesin, so they were feeling somewhat better because they were getting the same thing essentially, as if they were taking high dosages of aspirin and a high dose muscle relaxer.
Will you have it the rest of your life? Hmmm, I am 51 and still holding out hope, but getting to the point that age fatigue, memory not working as well as it used to, more aches and pains added on top of the Fibro that hope is slowly fading and if they did get some real help for this, by the time they do I will be about
ready for my recliner and TV anyhow. The younger you are, I would say more years probably equals more time for them to get around to fixing it, or get better drugs that address it. So, I wouldn't say for sure your going to have it your whole life or not. Hang onto hope and in the meantime all you can do is learn to deal with it the best you can.
Fibromyalgia, Chronic Fatigue, IBS, Diverticulitis, Costocondritis, Thorasic Degeneration, Mild Hypertrophic Cardiomyopathy, Mild Hilar Lymphodenopathy, Depression, Anxiety. Dyspnea. Disequilibrium.
Klonopin, Percocet, Baclofen, Ibuprofen, Valerian, Greens Plus, Magnesium, Vitamin C, COQ 10, B Complex, Niacinamide, Glucosomine, Condrotin, MSM, L-Carnitine, D-Ribose.
Post Edited (Grailhunter) : 4/12/2009 12:57:27 PM (GMT-6)