This is why i LOVE this forum. Even if no one responds, just the mere act of typing what's on whatever is left of my mind is theraputic.
I have Meniere's Disease along with Fibro. It sux. I have had it for 35 years. EVERYONE I am close to knows it. I can't have salt, MSG, nitrates, or most processed foods. It makes it very difficult for me to eat in restaurants or having dinner at friend's houses. In a restaurant, I usually excuse myself(if there are others with me) and sneak to the back and ask if they use MSG, or peanut oil to fry with. (allergic to nuts).
So yesterday we went to my son's house for Easter. My DIL and her family know about the Meniere's. My son certainly knows as he has inherited this lovely disease also but salt etc doesn't seem to trigger his attacks...only visual stimulation. Anyway...Here is the menu. Chicken with barbeque sauce and Italian sausage. No...can't eat that. Greek salad...feta cheese, anchovies, olives and sea salt. No...can't eat that. Garlic bread slathered with provolone cheese and garlic salt. Nope...be spinning after one bite. Then I am hopeful because I see a beautiful platter of asparagus. DIL sets it on the table and her mother picks up the garlic and sea salt and sprinkles it all over the top. Nope! Then something called 'Fixed Rigs'. It's rigatoni made with a sauce of five different cheeses ...so salty it will ripple the roof of your mouth.
Now, I don't expect people to prepare food revolving around my disease...even though my DIL is a vegetarian and when she comes here I always serve something she can eat that isn't meat. What I DO expect is when I don't put something on my plate for the entire table to start asking...'Don't you like that? Here...let me put some salad in your bowl...why aren't you even trying that? Geez...no wonder you're so skinny!""
I have explained this disorder a million times. It is embarassing for me to sit at a table and have to repeat the mantra. It makes me sound like I am a picky eater...that I don't like what is being served...that I am in ingrate and don't appreciate the work that went into preparing the meal.
I ended up eating two rolls that I brought and scraping all the salt off the asparagus.
While I'm at it....On Passover some friends from NYC were visting and staying with another couple we know. They called and said they wanted to take us out for Passover. (hubby is Jewish) We ended up at a Thai restaurant, of all places. Everything cooked in soy and peanut oil. I ended up eating a cucumber salad. Being at a table of Jews, of course they kept saying 'eat...eat...enjoy!" I explained once again this disorder and why I couldn't have any of the stuff on the platters of food that kept coming. I was humiliated.
Again...I do not expect people to cook a meal just for me. I am only asking that they stop asking why I am 'not digging in' when all of them know. I don't continually ask my friend with diabetes why she isn't eating the pie I baked for dessert.
It ain't just fibro, folks that people don't get. Most people never heard of Meniere's. That's okay. Just leave me alone and don't get insulted when I can't eat like a normal person. Like fibro...if any of them had just one attack of spinning, vomiting, headache and all the other things that come with an attack, they might just then understand.
Thanks for allowing me to get this out. BTW...fell off my son's pool deck after dinner and have two lovely knots on both shins. My DIL's father did the same thing about ten minutes before I did so it wasn't me...it was the deck stairs were loose!
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ Meds: Lexapro and valium