I'm new here, and before I say anything I just wanted to say thank you ahead of time if you plan on reading everything.
On Monday, 4/13/2009, I saw the Rheumatologist for the first time. My Neurologist wanted me to see this doctor because my ANA came back positive with a titer of 1:80 (I know it's low), my Vit. D is very low, and my Pyruvate is extremely high. Not to mention there are some other lovely things going on.
This is the 12th doctor I have seen since July 2008 after many months of trying to figure out what the hell is going on with my body. I have to say, she was the nicest of all the doctors I have seen, she didn't rush me, and she wanted to know everything that happened. The only downfall is she kept asking what I did as a profession, how did I fall into my profession, and what inspired me to choose this path?
Well, I am a musician, and I went to school for classical singing. I still want to go back to school for my Master's in Opera Performance. I'm only 24, and I have so much that I want to do with this passion of mine.
My Rheumatologist said to me, "The reason why I'm asking you all these personal questions about
your singing and profession is because I feel that you need to start thinking of a plan B soon. I feel that your singing should become a hobby instead of your main focus". To make sure I heard her right, I asked her, "Well, let me make sure I understand you, are you saying that whatever is happening to me now, will get worse?" and she said "Yes". At that moment she told me that she believed that I have Secondary Fibromyalgia, and it was possibly caused due to stress and an autoimmune disease such as Raynaud's, Sjorgen's or Lupus.
Right then and there, I felt like my world was kind of collapsing. I knew that there was something wrong with my body, but I didn't realize it could be to that extent. I am Epileptic, but my seizures are controlled with medicine, so I'm very fortunate for that. However, I was also hurt that the doctor would say something like that to me about
the love of my life. Personally, I don't know if I really agree with her diagnosis of Fibromyalgia, but then again maybe I don't know what it's really about
I've made a list of my symptoms that I've been experiencing since July 2008, and I would appreciate if anyone could tell me if it does sound like Fibromyalgia or not?
Symptoms from July 2008 to Present
1. Stiffness in the back and front of the neck.
2. Stiffness in and around the jaw line.
opening the jaw due to severe muscle spasms within the masseter and temporalis muscles.
4. Sometimes extreme amount of pain caused from the spasticity.
5. Visual changes which includes: blurry and sometimes double vision; “flashing lights” are seen in ambient lighting; when the facial muscles are spastic, there is a black dot/smudge in the right eye, which will last during the episode.
6. Heat intolerant: showers; exercising; walking in the sun above 70 degree temperature; sun bathing; heated car seats.
9. Loss of Balance
10. Sweating profusely at nighttime, and not knowing about
it until I wake up in the morning, and I find myself drenched in sweat.
11. Loss of short-term memory
12. Mood changes: including, depression; paranoia; trouble sleeping at night; hard time concentrating.
13. Symptoms magnified dramatically about
one or two weeks prior to my menstrual cycle.
14. Spasms in the knees to the point where it can be debilitating.
15. Fasciculations throughout my whole body.
16. Vibrating/buzzing sensations mainly at the base of my feet, the back of my knees, and my fingers.
17. Tingling sensations in my toes, feet, and fingers. This feeling is more similar to tiny ants crawling on your skin.
18. Burning sensation on my left ankle.
19. Cooling sensations on my left thigh.
20. Eventually, spasms began to occur in my forearms, thighs, feet, and hips.
21. Spasms felt in my colon, which were very painful.
22. Spasms in my upper mid back, which make it difficult for me to breathe. It feels like there’s something restricting my chest cavity and diaphragm.
23. Urine incontinence
24. Chest pain, specifically near my heart.
25. Electric sharp-shooting pain running across the back and the front of my head.
26. Pain behind my eyes to the point where I have to close my eyes to try and make it feel better.
27. Sensitive to cold. I get cold very easily.
28. My fingers and toes will turn blue when I am very cold.
Anyway, I thank you again for taking the time to read this, and I would appreciate any help that you can give me.