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New Member

Date Joined Apr 2009
Total Posts : 1
   Posted 4/16/2009 4:45 PM (GMT -7)   
Hi everyone,
I've been doing some online research trying to possibly figure out what might be going on with me and in my search came across this forum. 
I have not been diagnosed with fibro but seem to have many symptoms or other problems associated with FMS so I was hoping I could pick your brains a little bit.  I realize that you aren't doctors and I'm not looking for an armchair dx...just an opinion or two from people who seem to be living with some of the same issues that I have. 
Here are some of the things I'm am dealing with and for how long.  Alot of this stuff I've never been to the dr. for as individually most of them aren't a big deal for me but if I lump them all together...well that is a different story.  And in all honesty, I am tired of just dealing with all this stuff without  any answers. 
All over flu like pain.  I feel this alot in my legs around my knees and in my hands and wrists.  It isn't really joint pain though...its hard to describe. I've had this problem for 2 or 3 years at least.
I'm tired ALOT.  Not so tired I can't function but tired enough that I don't want to function much.  This has been progressive for me.
I don't sleep well.  I take tylenol PM to help me go to sleep but still rarely feel rested upon waking. (years I've had this problem) 
I'm very stiff in the mornings and just icky feeling (part of this is from the tylenol pm I"m sure.)
I suffer from depression although I quit taking meds along time ago because it seemed to me they didn't help nearly as much as they should.  I also suffer
from anxiety and what I believe is social anxiety disorder although no dx on that either. 
I have very heavy/painful/frequent menstral periods. 
I have IBS symptoms but no diagnosis. 
I have horrible neck and back pain.  
I have horrible headaches in the early morning that go away soon after waking or in changing position and going back to sleep.  I've always associated this with my back pain. 
Very recently I've started having abdominal pain, starts out sharp and becomes a burning sensation.  
So, on to my questions....
1) Do these seem like some of the things that sent people suffering with fibro in search of a dx?
2) Do you believe that fibro is the cause of the other symptoms/conditions you have?
3) Do you treat each issue independently or do you treat the fibro and it helps the other stuff?
Thanks in advance for any help.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41909
   Posted 4/16/2009 5:14 PM (GMT -7)   
Hi Lynda,

First of all, welcome to HealingWell. You have come to a wonderful place full of many kind and compassionate members. I think that you will like it here.

I think that it sounds like you have many fibro symptoms. Though my exhaustion was worse than yours. But some have more pain, some more fatigue.

It is hard to draw a line where fibro ends and something else begins. I know that I have a little arthritis and it sounds like you might too. But I don't really have anything else that I would be able to weigh fibro against.

We have a wonderful thread called fibro101. I would like to suggest that you read some on it. It has a lot of information that I think you would benefit from. It is the second thread.

Keep posting and let us know how you are doing.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 4/16/2009 9:17 PM (GMT -7)   

Hi Lynda,

Sounds a lot like me, too.  I get this wave of flu like symptoms and feel feverish (without a fever) and achy all over.  I also get heavy limbs - like they suddenly are made of lead and exhaustion - and a bunch of the other things.  I had to ask my doc to check me for fibromyalgia.  She checked for lupus and ra and the tests came back normal.  I went online and searched and searched for an answer - what looks like ra, but isn't ra?  Kind of like solving a riddle.  When you ask if you treat the symptoms individually, I think all the stuff is fibro.  But I am still new, too and don't really know for sure.  Have you talked to your doctor?  Ask him or her to screen you for fibromyalgia.

Good luck,


Veteran Member

Date Joined Jan 2009
Total Posts : 1014
   Posted 4/17/2009 3:32 AM (GMT -7)   

Hello Lynda!

Welcome to the forum!!  This is the best place on the internet to learn and share when it comes to fibro.

First thing you'll need to do is contact your doctor, bring your list of symptoms and prepare to get a lot of tests to rule out other icky problems. 

My doctors think that my fibro was brought on by my many bouts of Lyme Disease... but I think I had it before all of that.. I honestly think it began when I was in my late teens or early 20s.  I also have had a lot of back problems most of my life so that could have been the onset.

Though a lot of your symptoms sound like fibro it could be lots of other things.  When you go to your doctor be sure to ask for a Lyme test too.  Fibro and Lyme are very similar.

I'm so glad you found the forum!!  You'll find lots of really nice people here and they really know their stuff when it comes to this horrible syndorme.  I hope you'll check out Fibromyalgia 101 .. the second thread on the forum,  I've learned  alot from it, as many of our members have. 

Take care,

Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

Forum Moderator

Date Joined Apr 2005
Total Posts : 17524
   Posted 4/17/2009 10:28 AM (GMT -7)   

Hi, Lynda, and welcome!  Well, it sure sounds like much of what I have but fibromyalgia mimics other illnesses so you can't be sure until you go through the testing to rule the other illnesses out. 

I see you have been directed to the Fibro 101 thread.  There are links to good information about fibro in there including a list of symptoms and also a link to What Else Could It Be.  This might help you.

Many see a rheumatologist for their fibromyalgia.  I see a board certified Internist.  But, whatever doctor you see, make sure the believe fibromyalgia exisis.  Believe it or not, there are still some doctors back in the Dark Ages.

I started out with pain in my heels and terrible pain in my elbows that shot, like electricity, down to my hands.  That was the worst of the pain I had, but I had other pain as well.  As other symptoms came on me I would get them checked out if I thought they could be major.  For example, I started getting heart palpatations a few years ago.  That can be a symptom of fibro but I wanted to be sure.  My doctor ran several heart tests, including having me wear a monitor, and my heart was fine so I don't worry about them when they happen.  You just have to use your head and your "gut" instinct.  You know your body better than anyone. 

I'm so glad you found us and joined it.  We have wonderful members that love to help others so you couln't have found a better place to come.  Let us know what you do find out because we really do care.  Hope to hear more from you soon.


Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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