Face Blindness

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Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 4/19/2009 7:35 PM (GMT -7)   
I have a rare condition called face blindness. I do not recognize people's faces and also have difficulty recognizing people's emotions by looking at their faces.

It can be embarrassing when people who know me wonder why I am not speaking to them.

In addition, my sense of place and objects is very poor.

Any other fibro's with this condition?


Regular Member

Date Joined Jun 2007
Total Posts : 56
   Posted 4/19/2009 8:57 PM (GMT -7)   
Never heard of anything like that before. Did your doctor explain it to you? Does he know what caused it? ~sande~

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Date Joined Jan 2005
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   Posted 4/19/2009 10:00 PM (GMT -7)   
Hi Donnaeil!

I don't know anyone with fibro and 'face blindness' but I do have a grandson with Aspbergers syndrome. They often have trouble 'reading' people's faces and it can also cause them real social problems. He doesn't have fibro and I sure hope he never does.

How are you getting along with your disorder? I didn't know what it was so did some research. It sure was interesting. It must be frustrating and difficult for you at times. Wonder if anyone else will show up with both face blindness and fibro.

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   Posted 4/19/2009 10:39 PM (GMT -7)   
Wow Donnaeil, That must be so hard. I have never heard of it before. How was it diagnosed? Have you had it all your life? You probably have some stories to tell. I am so sorry you have had to deal with this, it certainly must have been a trial. Many gentle hugs, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

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Date Joined Jun 2006
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   Posted 4/19/2009 10:52 PM (GMT -7)   
I have had this all of my life but had no idea what was going on. I could not understand why I did not like parties. It was because there were too many unrecognized and unremembered people in one place.

Being a public speaker made this worse. It was hard to tell who was who.

I thought I had Aspberger's this year because I finally figured out what was going on.

One time a psychiatrist asked asked if I recognized myself in the mirror. I told him no, what a realization that was.

I am glad my daughter figured it out and understands.


Regular Member

Date Joined Jan 2009
Total Posts : 376
   Posted 4/19/2009 11:21 PM (GMT -7)   
I've been looking into neuropsychological testing recently and those are very extensive tests.  I guess there are all kinds of cognitive deficits.  I remember reading that trouble remembering names and trouble remembering faces were among them.  Also all kinds of working memory, word recall, spatial stuff, etc.  This kind of testing would probably identify just which things might be issues.  I'm not sure how diagnostic the testing is, but it would evaluate the degree to which things are affected.
I've been having multi-tasking, word recall, slowed thinking problems etc.  Fortunately, the antibiotics are working on the Lyme and I'm starting to see real improvement.
I think most of us have some cognitive areas that are affected - and I'm starting to think we've probably developed some extensive coping and compensating skills. We probably don't recognize the extent of our compensating mechanisms..
I know what it's like not to recall peoples' names - but I can sorta fake my way thru it.  Not remembering faces must be very frustrating.
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Date Joined Jan 2009
Total Posts : 1014
   Posted 4/20/2009 3:04 AM (GMT -7)   

Hi D.

My husband is legally blind and he can't make out faces or expressions very well. 

Do you have trouble with your eyesight? 

This sound like a cognitive problem. 

I'm really interested in this problem and would like to know more.

Take care,

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Date Joined Aug 2007
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   Posted 4/20/2009 7:28 AM (GMT -7)   
I had not heard of this Donnaeil!!! I have a hard time remembering peoples faces anymore til I have seen them several times. I was very embarrassed a couple of years ago when one of my neighbors walked by our house while I was outside and started talking to me and I asked her if she lived around here and when she said "I'm Linda" and pointed to where she lived I said "I'm sorry the sun was in my eyes" cause I was so embarrassed. Believe me I haven't forgotten her face since. I just met some new neighbors that are building a house in our neighborhood and I think she has light hair but that is about all I remember about any of them and I have no idea what their names are, they flew out of my head two seconds after they told me. My DH has introduced me to so many people over the years that he meets in his business and if I see them again I have no idea who they are. I have only been like that the past 10 yrs or so. I can't imagine being like that all my life and not being able to read people's faces.
luv and hugs
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Date Joined Apr 2004
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   Posted 4/20/2009 10:00 AM (GMT -7)   
I have impaired short term memory from my fibro or my SSRI, not sure, but I explain to everyone when I meet them that I will introduce myself to them over and over because of a small brain problem. Most people are very understanding and joke about not being able to remember names and such. I tell them I can't remember faces or names and they are usually very kind.

Because I have a wedding cake business I will often spend a few hours doing a cake set up and then when I meet the bride out in public she will remember me and I'll have no memory of her. This caused a lot of embarrassment until I started telling them ahead of time that I would appear to have forgotten them when we meet again. I find most of my customers are just great about this and the one woman who was outraged that I had forgotten every little detail of her daughter's cake got a swift refund and the brush off for being such a misunderstanding idiot! Some people are just too important for themselves!
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Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 4/20/2009 10:17 AM (GMT -7)   
Face blindness is called prosopagnosia. Scientists are studying this phenomenon. It is frustrating but I cope by being friendly to everyone. I had no idea that this is why I was so nice to people. My mother used to ask me "Didn't you see Mrs. so and so." She would hit me for being rude.

It is not a memory problem it is the innability to recognize faces. I knwo who my sons are after I look at thier bodies. Faces alone are not always good enough. Maybe this is why I liked to see them dancing on stage. they were the only dark skinned children there.

Oh. Imagine my children attending dancing school and taking class with ballet dancers. I never could figure out who those girls were. They all wore leos and had their hair in buns. lol. When they performed I had to read the list of characters. I remember telling a bunch of little girsl they did a great job. they had not perfrormed. No wonder they looked at me strangely.

There are times when I did not recognize children who had grown up with mine. ugh. This, added to the fibro name forgetting thing makes it really hard.

Search prosopagnosia on the net there is not much information and not all of it is good, but it helps to understand.

This way, we I meet you folks, you will understand.


New Member

Date Joined Mar 2012
Total Posts : 6
   Posted 12/15/2012 11:47 PM (GMT -7)   
Hi Donnaeil
I recently found out that I also have prosopagnosia; Also my mother and my father have it so I got the gene :-)
Mine is a mild one and 90% of the time I do recognize my self in the mirror and the other 10% is when i freak out a little but try to keep my self calm because I know that being along in the room it should be only my reflection. Helps a lot when I know what clothing either I am or some one else is wearing to hint my self of the persons file location in my brain ;-)
People get upset when I meet them and I do not recognize them, its tiring of how many times this happened.
I don't know if this is related but I also notice that I have about 3 x 24h of memory. After that I can even recall what was happening. Its like I am living only within 3 days and long term event stay for about half a year and then memory erases. Its like faint pictures with NO emotions attached, no details at all. Right now it is December and I can only recall events up to a May. Big event like me moving and job change is what I can recall, but that is about all.
I also have arachnoid cyst at my right frontal lobe. I believe it is the size of the pink pong ball. Doctors don't think that it has to do with anything; Although I can feel the pressure and pain from that spot where it is, and I pointed to that spot before CT found its location so it is not imaginary ;-)
But on the bright side if some unfortunate events happen or some one mistreated me I will quickly forget about it! ;-) See no evil, remember no evil ;-)
Oh and I also have fibo idea
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