How bad is surgery with Fibro??

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Dec 2008
Total Posts : 51
   Posted 4/22/2009 1:53 PM (GMT -7)   
I just found out today that I have to have my tonsil's removed in two weeks. I will miss two weeks of work and be on bed rest the entire time - that is for a "normal" person.  How hard are surgeries for people with fibro??  Does it take more time to recover? Please tell me the truth - I want to know what to expect.  This really isn't a major surgery so maybe it won't be so bad?? confused

Regular Member

Date Joined Dec 2008
Total Posts : 478
   Posted 4/22/2009 2:11 PM (GMT -7)   
Hi Austin,

I had to have breast surgery last year and so feared the worst. It was not bad at all. As a matter of fact my only issue was very slow nerve healing. Think Fibro found the site and set up housekeeping there longer than should have been. Tonsils should be very easy.

Let us know how you do....Patsie

Regular Member

Date Joined Apr 2009
Total Posts : 43
   Posted 4/22/2009 2:26 PM (GMT -7)   
Hi Austin,

I had a hysterectomy 5 years ago and was fine. Also without meds. I think that you should be OK. And don't you get to eat all the ice cream you want as a result? :-)

Veteran Member

Date Joined Feb 2006
Total Posts : 712
   Posted 4/22/2009 6:37 PM (GMT -7)   
I didn't fare as well as the others,  I have had surgeries and it took me longer to recoop.  It also takes me longer to come out of anesthesia too. 
   I do hope things go for you the way it did for the others who posted.
good luck.
back to square #1- off meds for now-dx with fibro.  Have a positive ANA. . Pain reliever. lodine- possibly neurotin 300mg, (not sure about that yet) sublingual B-12 , Chronic shortness of breath, sinus infections.  Asthma/COPD.

Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 4/22/2009 8:48 PM (GMT -7)   
I would get another opinion on the bedrest part. I had part of my intestine removed and was walking that day. Bed rest was not allowed. Walking around every few hours kept me from getting too stiff and sore.

Regular Member

Date Joined Apr 2009
Total Posts : 179
   Posted 4/22/2009 10:49 PM (GMT -7)   
smilewinkgrin  Echo the second opinion on the bedrest... I've had 8 or 9 surgeries, minor and major, since my Dx and except for one I was up and walking the same day.  (Had mesh inserted when abdomen would no longer hold together...Had to stay quiet for a couple of days so it wouldn't come loose.)  Hope you breeze through it and bet you will!  I was a little slower to heal part of the time, but otherwise did fine.  You're in my thoughts!
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac 
      stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
      Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
Newbie to forum and novice with computer - patience, please!

Veteran Member

Date Joined Mar 2009
Total Posts : 900
   Posted 4/23/2009 12:40 AM (GMT -7)   

My surgery back on Feb. 17th, 2009 really wasn't all that bad with my Fibromyalgia. I however am taking a little longer to recoop but I think it's also my diabetes.



Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 4/23/2009 4:20 AM (GMT -7)   
I had a hysterectomy in 2000. I asked for a valium before going in. It relaxed my muscles somewhat. But, I should have arranged for valium for two days post op. After the valium wore off, my body went into full fight/flight mode, every muscle tense or in spasm. Also, take some gas X and keep it with your personal effects. When anesthetic wears off you will have horrific stomach cramps, caused by gas.

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.

Regular Member

Date Joined Dec 2008
Total Posts : 51
   Posted 4/23/2009 5:34 AM (GMT -7)   
The bedrest with having the tonsils out is a requirement. There is a very high risk of bleeding with this surgery so basically you can't do ANYTHING for two weeks. My sister had hers out when she was twenty and on the third week she had to be rushed back to the hospital because of severe bleeding.  I am glad to hear that for most of you the fibro really didn't effect the outcome of your healing time or pain. I will keep my fingers crossed - either way it has to be done so best to think positive I guess.  Thanks for the replies!

Veteran Member

Date Joined Jun 2005
Total Posts : 610
   Posted 4/23/2009 9:01 AM (GMT -7)   
I was told by a doctor that I should get mine removed, but after some research I decided against it for now, I saw pictures of what it looked like afterwards and it made me sick, the back of your throat will get these huge black patches and it looks like cooked ground up meat, I imagine it will hurt like crazy, but my counsin's daughter had her's removed this last winter along with her alnoids and tubes put in her ears, and she acted like it was no big deal. I dont do surgeries at all cause of what I wrote in another post about when they did my colonoscopy with absoutly no sedation, just a plain IV solution, and when I asked why, they said they felt like I was already taking enough pain meds and I told them that I didnt take my dose that day or the day before cause the directions for the prep told me not to, but they wouldn't listen, I should have pressed charges but I was so sick, I didnt even think about it til after I healed 3 months later. I begged for nausea meds cause I was vomiting so much and the drive there and back was so long, and they acted like I asking for a narcotic or something, and then they told me they would give me a suppositorie and because I had a long drive back home, I couldnt take it right away, and I couldnt swallow a pill cause of the vomiting, so they finally got me a shot, and before the nurse gave it to me, I asked her what it was, and in a very stuck up tone she said "it's phenergan, your not getting anything else!!!"....I didnt understand her tone, I asked her what it was because I cant have compazine or reglan for nausea, but she was just so rude, it was the worst experience of my life.

Just make sure you talk it over with the doctors about what meds you will be receiving and make sure you let EVERYONE know any allergies to any meds you have if you have any, and ask if you will recieve any meds if your severely nauseated afterwards and what meds you'll get for pain or for pain that's more severe that usual, but remember you may get meds in liquid form cause you'll more then likely wont be able to swallow very easily. Just dont wait til afterwards when your in severe pain and cant think right, and if your already taking narcotics on reguluar basis that you tell the doctors that so they know your tolerence to meds will be higher then usual, and that they'll understand cause some doctors dont care. But I'm sure you'll be fine, it's a procedure that they do all the time and I'm sure they'll tell you all the scary things that 'can' happen, but remember that most of those are extremely rare, they just have to tell you to cover their bottoms.


26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg,Arthiritis in my back, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks, Bipolar
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the counter meds: Benadryl nightly for itching due to meds (not sure which one yet), and Biofreeze  
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, marsupilized bartholin gland cyst
"Never go to a doctor's office whose plants has died."

Post Edited (Hello~Kitty) : 4/23/2009 11:43:01 PM (GMT-6)

Forum Moderator

Date Joined Apr 2005
Total Posts : 17524
   Posted 4/23/2009 10:35 AM (GMT -7)   
Well, I had my entire colon taken out and was Christmas shopping at the mall 12 days later..with 89 staples still in my abdomen.  Fibromyalgia didn't seem to make a bit of difference for me.  I agree with those that wonder why you need all the bed rest.  I was told to keep moving so I did.  Seems to me the bed rest would make you stiffer. 
Your throat will probably be sore for a few days but, look on the bright side!  You will have a great excuse to eat all the ice cream you want...with no guilt!  Yeah!  Besides, if the doctor thinks you need the tonsils out, there must be a good reason.  I had my tonsils and adnoids removed when I was 4 years old.  Back then that was a common childhood surgery. 
Here is a good site with good ideas if you are having elective surgery with fibromyalgia. 
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 4/23/2009 8:09 PM (GMT -7)   
Wow, I knew it was riskier in adults but I didn't know it was that bad. I'm glad I had mine removed when I was four.

I've three surgeries since I've had fibro and did not notice any extra fibro pain.

Good luck.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 12, 2017 9:10 AM (GMT -7)
There are a total of 2,904,377 posts in 318,747 threads.
View Active Threads

Who's Online
This forum has 158140 registered members. Please welcome our newest member, ttool.
376 Guest(s), 15 Registered Member(s) are currently online.  Details
madabs, Jose Manuel Abarca Rodrig, Devaa, 3timechamp, Fasso, getting by, Skypilot56, Mathilde, Lynnwood, blksteeda, Chrissy01, SharonZ, AZ Guy, Cajun Jeff, Davidh86