Welcome hurting07, Sunset, iluvmyheatingpad, virgil, IronCladDaisy, and tKorpies!

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Date Joined Apr 2005
Total Posts : 17497
   Posted 4/23/2009 11:41 AM (GMT -7)   
Welcome, Lulu (hurting07), Sunset, iluvmyheatingpad, virgil, IronCladDaisy, and tKorpies!  Jumping jiminey!  So many newbies today!  I am responding to all of you in this one thread because my hands would drop off if I tried to respond separately! 
Fibromyalgia is a curious illness.  The doctors don't even understand it and there are still some doctors out there that are in the Dark Ages when it comes to this illness.  I do hope all of you have doctors that do believe fibromyalgia is a true illness and not "just all in your head"!  Fibromyalgia waxes and wanes.  Sometimes you are in a lot of pain and other times you are much better.  I have had fibro for 22 years and have never been without pain.  But, I have learned how to manage the pain and have had a full and enjoyable life with fibro.  I don't let this illness stop me from doing what I really want to do.  I just find ways to work around the illness.  I have traveled a lot..even abroad...and have even parasailed and snorkled with fibro.  So, don't think  your life is over!  There is a big, wonderful world out there for us to enjoy.  We need to focus on the positive things in our life and I think you will find that the pain will fade a little in the background.  I don't think about how I am feeling.  I never ask myself that.  That will only cause anxiety.  Instead, I know what I need to do and what I need to take in order to control the pain so I can do what I planned for the day.  So, keep a positive outlook on life and look forward to each new day.  You can have wonderful times, even though you have fibromyalgia.
I do not take any of the "high powered" meds for my pain and fatigue.  I use ibuprofen with food and extra strength Tylenol for pain.  I also take malic acid/magnesium supplements for pain and fatigue.  These don't work for everyone but many, including me, have had good results with this supplement.  It might be worth a try.  You see, many with fibro are deficient in these two nutrients. 
Many with fibromyalgia are also deficient in vitamin D.  I live in Florida and who would have thought I'd be deficient in D!  I am presently taking 3,500 IU of D3 a day to try to get in the normal ranges.  Some members are taking much more.  Vitamin D deficiency can cause pain, also, along with other problems so it would be good to get that checked out at your next doctor's visit.  IronCladDaisy, the malic acid/magnesium supplements and the vitamin D might help with the fatigue so you could continue with your part time job.
Be sure to check out Fibro 101....the second thread on the forum.  There are links to good info about fibromyalgia including a list of symptoms and also a link all about malic acid/magnesium supplements and how they work in your body.  There are some great stretching exercises that you can do sitting down, too.  You will learn a whole lot if you read that thread all the way through.
Moist heat is great for fibro.  I love a hot shower.  Many use Bed Buddies.  You can get these at Walgreen's and other places or you can make one yourself by taking a tube sock, filling it 2/3's full of raw long grain rice and tying a knot at the end.  Microwave it and it gives off moist heat due to the moisture in the rice. 
It is important to keep moving with fibro.  If you sit or lay too much, you will be stiff as a board!  The gentle exercises in the Fibro 101 thread are really good and do help.  Walking is a great weight bearing exercise and will help keep your bones strong, to boot!  If you have access to a pool, that is great also.  Virgil, when I started walking, it was quite difficult for me but I persisted.  I just went a small distance.  Every day I tried to walk a little further, since I was soooo out of shape at the time.  Now I can walk a mile in about 20 minutes!  I feel so much better and am more flexible because I keep moving.  I also have lost 85 pounds by counting carbohydrates and that has helped me too.
Be sure to pace yourselves.  You can't get things done in the same time frame as you used to before fibro.  But, it will all get done.  Just start chipping away at what you need to do and you will be amazed at what you can accomplish!  Be sure to give yourself a big pat on the back too.  Fibromyalgia is not for sissies so you deserve a lot of credit for the things you do. 
tKorpies, I don't take Lyrica.  Many of these drugs have some pretty decent side affects and that's probably why I don't go that route.  Here is some info from the Mayo Clinic about these types of medications.  We are not doctors here and certainly don't want to try to "diagnose" about things as serious as liver problems.  If you are having pain in that area, I think you should let your doctor know now so they can give you the correct info as to whether or not you should be taking this.
I hope I have answered many of your questions.  If not, ask again and I'll give it a shot.  I'm so glad all of you have found us and joined in.  You have come to a good place.  We have wonderful members that love to help one another and, as a bonus, we really do care about each other, too!  So, read the Fibro 101 thread, back posts, and ask questions.  We are here to help you.  Hope to hear more from all of you soon!

Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Jan 2008
Total Posts : 45
   Posted 4/23/2009 2:26 PM (GMT -7)   

Thanks Sherrine, I'll have to revisit the Malic acid/ Magnesium information.

New Member

Date Joined Apr 2009
Total Posts : 11
   Posted 4/24/2009 5:47 AM (GMT -7)   
Thank you for the info.

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 4/24/2009 9:13 AM (GMT -7)   
WOWZER!! In one way it's very sad to see so many people joining us because that means you all are in pain .. BUT, I love that you ARE joining us because it means you will find comfort and compassion that will help you live a richer and easier life. I did!

Please join our daily Koffee Klatch. Some days we chit-chat about silly topics and others are more serious, but one thing is never talk about is our PAIN! It's one fun spot in our day when pain is not allowed...lol

Glad to have you all in our family!
Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
Happiness is something to do, someone to love, and something to hope for."

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 4/25/2009 7:32 AM (GMT -7)   

Hi All and Welcome!

Likewise here, if I responded individually, my hands would go numb and cramp up! UG! The many joys of fibro- shocked

You have found a great group- and like Chutz said, having a support group like this, you do get "comfort" and "compassion," I know it makes a difference in my life.  

Nice to meet all of you!


Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

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