interesting news artical, More than just pain...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41912
   Posted 5/2/2009 9:29 AM (GMT -7)   
Hi Everybody,
I thought that you would find this artical interesting...

The widespread pain of fibromyalgia is just one of the many symptoms that you have to put up with everyday. In fact, other symptoms may be what drives you to see the doctor, such as excessive sweating, dry eyes and mouth, constipation, dizziness, nausea, muscle weakness, unrefreshing sleep, and loss of sex drive. These symptoms and more are produced by abnormal function of the autonomic nervous system that controls all of your organs and can be documented by a simple 73-item questionnaire called the Composite Autonomic Symptoms Scale (COMPASS).

If the dysfunction of the autonomic nervous system is responsible for your many non-painful symptoms, then the COMPASS scores for people with fibromyalgia (FM) should be significantly elevated over that of healthy control subjects. But, higher scores do not just reflect a widespread pain condition because Manuel Martinez-Lavin, M.D., of Mexico City, also compared the scores of FM patients with people who had rheumatoid arthritis (an inflammatory joint disease).*

Thirty women with FM, 30 with rheumatoid arthritis (RA), and 30 healthy control subjects completed the COMPASS questionnaire. In addition, the FM study participants completed the Fibromyalgia Impact Questionnaire (FIQ). The FIQ is a validated measure of how functionally impacted a person is with FM. Martinez-Lavin wanted to see how well the scores on the two questionnaires correlated with one another.

First, the COMPASS scores for the FM group were more than twice that of the RA group, while the scores for the RA group were double that of the healthy controls. Second, the higher the COMPASS score for a person with FM, the greater their FIQ score (the more their FM impacted them). These two findings indicate that FM patients have non-pain symptoms related to different problems of autonomic system function. It also shows that the symptoms caused by the autonomic malfunctions are an integral part of the FM.

Martinez-Lavin pointed out responses from FM patients to specific COMPASS questions that you may find very interesting:

  • 57 percent felt they did not derive any restorative benefit from sleep, while 30 percent found sleep to provide some slight restorative value
  • 59 percent are constipated all of the time while 21 percent frequently experience this symptom (implying that movement through the GI tract is slowed down)
  • Compared to five years ago, 30 percent said they sweat much more than they used to, and another 37 percent said that their body sweating had increased somewhat. For those of you who experience hot flashes but you know it is not menopause, this could offer an explanation for the uncontrollable drenching that you get during the day and night.
  • 63 percent said that their eyes felt excessively dry
  • 63 percent said that their mouth felt excessively dry
  • 57 percent felt dizzy or faint when standing up from sitting position (17 percent said this happens almost all of the time while 40 percent indicated it occurred frequently)
  • 27 percent said they had a complete absence of sexual desire while 33 percent said it was greatly reduced
  • Close to 60 percent said they feel “full” quicker than they use to (implying that it is taking longer for the stomach to empty)

If any of the above symptoms have been bugging you and your doctors have run tests to exclude other medical conditions as the cause of these symptoms, take comfort in knowing that you are not alone.

* Solano C, et al. J Clin Rheumatol 15(4):2009 [Epub ahead of print].

  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Mar 2009
Total Posts : 117
   Posted 5/2/2009 10:11 AM (GMT -7)   
Wow.  That is very interesting.  Especially the the stomach emptying thing, since I was just dx'd with gastroparesis.  And OMG the sweating!!!  I've been blaming the fibro but I wasn't really sure that was it.  Most of those bullet points apply to me.  Geez.  Fibro. shakehead
SONG (Donna)
Fibromyalgia, Gastroparesis, IBS, Vertigo
Endometriosis, Hypothyroidism, Psoriasis, Asthma, Cholecystectomy
(Diabetic spouse)

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41912
   Posted 5/2/2009 10:43 AM (GMT -7)   
There seem to be a lot of symptoms attributed to fibro. So many things that I would not have even have thought about. I thought is was just my age.

I am glad that you enjoyed the article. I hope that you are having a good day Songbird2020. I like your member name.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 5/2/2009 1:51 PM (GMT -7)   
Great stuff, Karen! I 'googled' the COMPASS and there's interesting reading out there if you go to reputable sites. I tend to look for sites with extensions of .edu and .org. Those are more often where good scientific data is found, not someone selling something. Just my opinion there...

Thanks again Karen!
Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
Happiness is something to do, someone to love, and something to hope for."

Veteran Member

Date Joined Jun 2007
Total Posts : 906
   Posted 5/2/2009 4:43 PM (GMT -7)   
My dad had severe RA. He had lots of his joints replaced and all of his joints were swollen and misshapen. But for most of the 20 years that I had fibro while he was still alive, I could have sworn he had less pain and more energy than I did. Thanks for the article, Karen. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea

Regular Member

Date Joined Mar 2008
Total Posts : 316
   Posted 5/2/2009 7:31 PM (GMT -7)   
Wow, thanks for sharing Karen. Great article.


Fibromyalgia since 2007

"Tragedy is a tool for the living to gain wisdom, not a guide by which to live."
Robert F. Kennedy 


Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 5/2/2009 9:47 PM (GMT -7)   
You are absolutely right Chutz - .com sites are commercial.  .org and edu are the best to get reliable information. 
Can you attach a link or a pdf of the article Karen?  Is that allowed?

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41912
   Posted 5/3/2009 12:10 PM (GMT -7)   

Hi Sue,

I get this information via email from fibromyalgia news letter.  I am a member, so I don't know if you can get the same information.  But here is a site that you can try.  This is a nonprofit organization.

I hope that you can get the same information.  They might just give you samples of articles unless you join the newsletter.  I get four issues a year.  And it is about 25.00.  It is expensive, but very informative.

Hugs, Karen

  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Feb 2008
Total Posts : 278
   Posted 5/4/2009 6:13 AM (GMT -7)   
I feel that several of those symptoms may have more to do with the medications that the doctors put us on than with the fibro itself.....
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 5/4/2009 7:41 AM (GMT -7)   
Thanks for sharing this with us Karen. Meds can cause some of these problems but I'm not on any meds now that I wasn't on when I got fibro.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Veteran Member

Date Joined Feb 2006
Total Posts : 712
   Posted 5/4/2009 7:51 AM (GMT -7)   
I thought I was going crazy because of menopause and the sweating, I am drenched during the day, not at night. which is what really had me frustrated everyone was telling me they get night sweats with menopause. I rarely am sweated at night. I am going to share this with my GP and the rheumy. thanks so much
And the weather really is something that guides my days. So I am thankful for sunny days.
thanks again

back to square #1- off meds for now-dx with fibro.  Have a positive ANA. . Pain reliever. lodine- possibly neurotin 300mg, (not sure about that yet) sublingual B-12 , Chronic shortness of breath, sinus infections.  Asthma/COPD.

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 14, 2017 1:30 AM (GMT -7)
There are a total of 2,905,206 posts in 318,843 threads.
View Active Threads

Who's Online
This forum has 158204 registered members. Please welcome our newest member, arycqmiu.
211 Guest(s), 2 Registered Member(s) are currently online.  Details
OvidiuM, Murphysgotguts