Can having fibromyalgia lead to being disabled?

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Regular Member

Date Joined Mar 2009
Total Posts : 235
   Posted 5/8/2009 12:51 PM (GMT -7)   
Just curious how many people are disabled because of having fibromyalgia.  I have fibro...will it ever go away?  Will I always have to be treated for it by a doctor and take meds to control the pain, depression, and lack of sleep?

Veteran Member

Date Joined Jun 2007
Total Posts : 906
   Posted 5/8/2009 1:59 PM (GMT -7)   
I am what I consider semi-disabled. Sometimes I can walk for a while, sometimes I use my handicapped parking sticker--although I never look handicapped. The fatigue means I can only do about one hour of any activity a day. When I went to DisneyWorld I used a scooter, because I couldn't walk that much. I don't ever have any "remission" times when I feel really good, but lots of others do. I have had this disease since I was 28, and for many years I did fine. But I don't think anyone gets over fibro. However, there may be a miracle cure discovered any day now. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea

Regular Member

Date Joined Nov 2008
Total Posts : 263
   Posted 5/8/2009 2:27 PM (GMT -7)   
I've been disabled with it for over a year - but I have dragged myself to work half-time. A couple of bouts of not being able to work at all. Then, once I got the right meds and a good exercise program, I slowly am starting to feel "normal" and I hope to be back to work full-time very soon.

I don't have depression, though. So......everybody's different. But I don't believe fibromyalgia ever goes away. However, the pain and fatigue can go away with the right treatment.
I have Fibromyalgia, and nothing else!
I take Lyrica 225 mg/day and Tramadol (150mg time-released) and amytriptilene 7.5mg

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Date Joined Mar 2009
Total Posts : 900
   Posted 5/8/2009 9:21 PM (GMT -7)   
RedDiane said...
I am what I consider semi-disabled. Sometimes I can walk for a while, sometimes I use my handicapped parking sticker--although I never look handicapped. The fatigue means I can only do about one hour of any activity a day. When I went to DisneyWorld I used a scooter, because I couldn't walk that much. I don't ever have any "remission" times when I feel really good, but lots of others do. I have had this disease since I was 28, and for many years I did fine. But I don't think anyone gets over fibro. However, there may be a miracle cure discovered any day now. Diane

When I think back there was a time I had my whole body swell up: my feet, my fingers, hands, legs and so on. I was around 23-24. I just had a baby boy in Dec of 1991. It took me an hour or better to get out of bed to get ready for work. I had lab tests done and the dr. said I had Rheumatiod Arthritis. I think he was wrong back then. I was tested again a few years ago and I didn't have any RH factors in my blood.
I am not yet disabled. My doctor says I'm not that far along in my Fibromyalgia or possibly just lower back and hip pain. Now the lower back and hip pain I've had off and on since I was 11-12 years old. That stems from falling off a horse quiet a few times. So I am kind of in limbo at the moment.

Regular Member

Date Joined Mar 2009
Total Posts : 285
   Posted 5/10/2009 11:17 AM (GMT -7)   
I'm disabled, but not because of fibro alone. I've also got severe arthritis and costochondritis and heart problems which prevent me from working. I go until the pain gets too much then I stop awhile until the pain fades 2 pts then I go some more, but I can only work so long before I seriously hurt myself, I've been putting off surgery to wire my ribs back to my sternum for a while. I think it depends, on the type of person you are and how you deal with your pain and life as to whether you continue to work.
FM, costocontritis, wide spread arthritis, fibriod tumors, PTSD, 2 heart attacks at 22

Flexeril 30mg, Celexa 50mg, Despiramine 50mg, Ibuprofen 800mg Acetometaphen 500mg, Calming Sleep herbal suppliment, ActivOn topical pain relief, Melatonin

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Date Joined May 2008
Total Posts : 1081
   Posted 5/10/2009 11:39 AM (GMT -7)   
I am applying for CPP, the equivalent of Social Security in the US. I am doing so on the advice of my pdoc. I have been sickly all my life. As a child I used to get pains in my legs at night so bad, not only could I not sleep I would weep with the pain. My mother gave me 222's. Then, they were prescription. Kinda like Tylenol 3's. Ma's a doctor. She called them "growing pains. They felt very similar to the all over body pain I experience almost daily. I am in pain, quite severe pain about six days out of seven. I can count on one hand the pain free days I've had in the past two months. And, they are never all day, pain free days. Today I am excruciating pain. very verbose I'm being today on the forum, trying to distract myself, somehow, anyhow, just to get through. I have no pain medicine. I am using all the bed buddies, heating pads and I even got out the tens unit, something I haven't done in ages. I am out of pain meds, see doc tomorrow. It's pure unadulterated h---, today. A day to be goten through any way I can. Eat a pound cake, if it would help. I don't care. I know I periodically have to go through this sometimes to break my reliance on the pain meds, as over time they lose their efficacy, due to tolerance. I don't experience withdrawl, just unbearable pain. So, Reddianne; glad to hear from you. Haven't heard much from you lately. I think the progressiveness of Fibro, is tied to the progressiveness of aging. We cannot stand up so well as we used to under this adversity. Plus various forms of arthritis are emerging. This sets off the pain cycle for me. My blood pressure today was like 190/121. unbelievable. It's the pain. Same thing when I went to emerg for chest pain, they gave me a shot of morphine in my butt. Blood pressure dropped to 110/78, from havens knows what. I just know I couldn't breathe w/o excruciating pain. I'm still looking for the silver lining. Anyone here know where it's at?  

lost in philly
Regular Member

Date Joined Jan 2009
Total Posts : 243
   Posted 5/11/2009 7:20 PM (GMT -7)   
Tyno, I think that silver lining you are looking for is the spoon in an ice cream sundae! : ) My secret weapon against pain.
Anyway, RedDianne, I am disabled. I havent been working for the past 4 months and have been waiting to hear if I am getting SSD. I used to be a housepainter. There is no way I can do that now so my disability feels pretty cut and dry.
Like others have mentioned, I am good for about 1-3 hours of activity a day and that is usually spread out with lots of rest breaks and a few naps.
lost in philly

Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Topamax, Morphine, Effexor, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3

"Knowing without doing is like plowing without sowing."

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 5/12/2009 3:18 AM (GMT -7)   
Dear "lost in philly"; Bought a bumper sticker yesterday; "I followed the road less travlled; now I don't know where the h--- I am." Well, sounds like you and me both burned the candle at both ends and now we're stuck in the middle with few options. My mother, who wasn't there much, but anyway, she used to say "polly drove steel like a man". I worked in physically demanding, above and beyond what most gals wouldn't even attempt, kinds of work. As well, I worked in the most emotionally draining of all Social Services occupations; Child Protection, and as a consultant, I got the most difficult, most dangerous cases. The one's that folks inside the administration wouldn't even attempt. As a result, I was assulted several times, had to walk into the homes of some of the scariest folk on the planet. I used to bring a raw turkey on my initial visit, throw it in the door ahead of me, in case there were mad dogs and even madder clients. It was a great ice-breaker. Totally disarmed them. Everybody ended up laughing; "no social worker ever did that before". Alas, I think all of this, plus raising two boys single-handedly, one ADD and learing disabled, the other Add and hyperactive and allergic to everything, constant ear infections, etc. plus almost losing my youngest to the strets, put me out of commission. When that big old truck hit me, in the crosswalk, I looked up and said "Thank the Lord". I just couldn't keep it up anymore. Throw in about 3 disasterous relationships with users and abusers, I'm proud to say, I'm toast.  

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 5/12/2009 9:47 AM (GMT -7)   
I'm on Social Security disability...have been for 11 years but I don't consider myself disabled.  For me, the moment I give in to that thinking, I WILL be disabled!  I keep looking forward to the future and good times that I will have.  That helps me bear the pain and function in my life.  I think that if I considered myself disabled I'd start acting like that and that definitely isn't good for fibro pain!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Apr 2009
Total Posts : 31
   Posted 5/26/2009 5:58 AM (GMT -7)   
3yrs ago I had a full time job, 2 horses that I rode 2hrs daily as well as show jumping at weekends, all the normal things 3kids, husband house.
I am now on the highest rate of disability living allowance ans have a carer that comes in in the morning to do whatever I need to have done, depending on how I feel that day.
I cannot remember the last time I was pain free, I have trigger points all over the place that I have injected and have just ha an epidural for my prolapsed discs. I have at least 3 migrains a week for which i'm jabbed with morphin,I can't walk any distance, use a wheelchair for long distances and spend lond periods in bed, the list goes on.
I am registered disabled but i don't consider myself disabled, if I have a good day i run around like a toddler in a fun fair but i'm still alive and all the time I am their is hope.

Regular Member

Date Joined Oct 2008
Total Posts : 24
   Posted 5/26/2009 12:34 PM (GMT -7)   
Three years ago I was president and ceo of a major hospital system in my area, with three hospitals and ovr 6ooo employees. Then I got sick.

In July 2006, I applied for SS disability. In January 2007, SS determined I was 100% disabled.

So, legally I'm disabled. Emotionally and spiritually I'm determined to live as active and meaningful life as if my body would only cooperate!!

Veteran Member

Date Joined Apr 2009
Total Posts : 673
   Posted 5/26/2009 3:30 PM (GMT -7)   
Most of the time I consider myself disabled because there isn't a whole lot that I can do. The littlest things can make me exhausted and in a whole lot of pain. I don't believe that I can work. Especially since I got fired from my last job because I kept calling in a lot because I was in too much pain. My job was very active because I worked in a daycare. I just couldn't do it, and I got fired for it. I used to be able to do a lot and it hardly affected me. But now, the littlest things make me collapse. Everyone is different, but, sometimes, this disease can be disabling. Fibromyalgia is a lifelong illness. There is no cure. I hope that they find one, but, for now, I have to live with the fact that I will be dealing with this for the rest of my life.
All that I'm living for,
All that I'm dying for,
All that I can't ignore alone at night.
All that I'm wanted for,
Although I wanted more.
Lock the last open door, my ghosts are gaining on me.
-Evanescence "All that I'm living for"

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