Newbie from FL

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Regular Member

Date Joined May 2009
Total Posts : 30
   Posted 5/15/2009 8:46 AM (GMT -7)   
Hey everyone!
   This is my first forum and it seems like it'll help just talking to you guys.
I am 20 years old and i was diagnosed with fibromyalgia about 2-3 months ago now. I WAS in school for massage therapy. (not anymore)
  The fatigue is what came first for me. my friend was here visiting and she was gettin very annoyed that i felt like i culdn't do anything. All i wanted to do was come home from school and sleep! I started to verrry over emotional about everything (wich is not like me at all) and then the pain came. I started gettin headaches and the body aches.
   I was in school giving a massage when my hands started to cramp up. It got so bad in my hand and shoulders that i felt like i was going to throw up and i got very dizzy. the next day.. i was in so much pain all over.. i couldn't even get out of bed.We figured i just had mono. I went through sooo many tests for lupus, RA, lukemia, everything!
They found out that i did have adult mono (which i now get B-12 shots for. They also diagnosed me with fibromyalgia.
   They had me on anti-inflammatory meds and a antidepressant...which made me have an anxiety attack. I've been throuhg plenty of different meds. They now still have me on the anti inflammatories ( i think thats how you spell it) and i'm also on 60mg of cymbalta.
I sleep a little better... but im still in constant pain..and if i'm up busy one day... i'm in bed all day the next.
This has been a struggle for me.
 1. I'm no longer in school because i am not sure what career i would like to have now (although i would like to go back and get my general studies done).
2. I have no job.. because we are not sure when i will have my good or bad days and the doctor wants me to wait till i have a set medication that works
3. I have been a profeshional dancer my whole life. dance IS my life. and now it gets harder and harder to do this.
4. I was also a model, i was starting to get into music videos for both dancing and modeling. . . and now i can not work out the way i use to.. and i am loosing my shape :(
5. i've always been a fun and outgoing active person.. and now... its hard
i feel like everything ive wanted to do/ be in life.. is being taken away. i had worked so hard to get known in the dancing and modeling industry..and finally once it started happening for me.. this fibro kicked in. :(
I also hate not working and not knowing what career i want to have. I was always a very determined girl. And now i'm just left confused.
Luckily my boyfriend of 8 months is very understand. We went though a very hard time when i was overly emotional..and i dont know how he put up with me but he did. And he is very supportive of me and he is helping me through this.
But i was wondering if any of you went through the whole 'no job. activities changed..what you do for a living changed...and if you did... how did you deal with it!!

Forum Moderator

Date Joined Apr 2005
Total Posts : 17497
   Posted 5/15/2009 9:06 AM (GMT -7)   
Hi, Kelly, and welcome!  I'm so glad you found us and joined in.  You have come to a great forum with wonderful people that like to help one another.
I really can't help you because I got fibro after I left my career.  I was a stay-at-home Mom and that was difficult with fibromyalgia!  But, you have received a diagnosis and once you find the right combination of medication that help you, you will be able to do a lot more. 
I use ibuprofen with food and Tylenol for pain and I use malic acid/magnesium supplements for pain and fatigue.  They don't work for everyone but many have gotten some relief with these.  I also take extra vitamin D.  Many with fibro are deficient in vitamin D and that can cause some pain and fatigue, too.  I am deficient in D and I, too, live in Florida!  With all of our sun, who would have thought that?  I am presently taking 3,500 IU a day to try to get me in the normal range.
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good information about fibromyalgia there.  There is a link all about malic acid/magnesium supplements and how they work in the body and there is also a link with good stretching exercises that really do help.
Meanwhile, read back posts and ask questions.  We are here to help you.  I'm so glad you are here and I hope to hear more from  you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined May 2009
Total Posts : 30
   Posted 5/15/2009 7:31 PM (GMT -7)   
Hey thank you for the reply!
I'm actually very tired now.. but the medicine isn't helping and im it pain and it's making me anxious :-(
i've tried the IBuprofen and advils and all that.. i get no relief.
It's weird to me cuz i have a very very high pain tolerance. . but this just kicks it in the butt lol.
haha and i guess the FLordia sun just isn't enough.

my next appointment is next week and i will ask then about the malic acid. Thanks for the suggestion!


Veteran Member

Date Joined Aug 2008
Total Posts : 1771
   Posted 5/16/2009 3:49 AM (GMT -7)   

Hi Kelly, and welcome.  I'm sorry you had to drop out of school, but with fibro, massage therapy may be a difficult career to continue.  I'm a stay at home mom, but if you search through our forum, there are some past threads in which people discuss their careers/jobs and how they manage them with fibro.  You may find some ideas there.

I've also done a Google search on jobs people w/fibro can do (I will probably go back to work when my daughter goes to college), and there is lots of info. out there. 

I'm glad you've found us, and I wish you the best.

Hugs - Austen

"There is no charm equal to tenderness of  heart." - Jane Austen
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 5/16/2009 10:30 PM (GMT -7)   
Hi kelly and welcome to our fibro family. I too am very glad you've joined us. This thing called fibromyalgia really stinks! It messes up your body, mind and your life...BUT, with some learning and some understanding friends you can have a wonderful life in SPITE of the fibro.

I have been teaching at a local community college for 13 year...until last June. That's when my doc said it was time I quit. This poor body was just so overly stressed out and beat up that it was time to quit teaching. It broke my heart and my spirit but because of a loving family and great friends here on the fibro board I am making a new life for myself. Sure I miss the teaching, but as each day passes I deal with it just a little bit better.

You too will build a wonderful life for yourself. It may take a bit more work but you can do it! Use every resource you have available to you. Most schools have help in retraining, "disabled" services, state and federal programs are possibly available...just keep knocking on doors and asking what's available for me. I did it when hubby took off after some bimbo in a red sports car...honest to goodness truth, lmbo...and I went back to college. There was so much help I was stunned.

Please ask any and everything you want. Feel free to email if you need to chat. And also join our daily Koffee Klatch. It's a time where we only talk about fun pain!

Time for me to post Sunday's Koffee Klatch, btw...
Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
Happiness is something to do, someone to love, and something to hope for."

Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 5/16/2009 11:14 PM (GMT -7)   

Hi Kelly,

Welcome to the forum. This is a wonderful place to meet friends and learn lots of great information.

You are a dancer?  How exciting.  Please take a look at these two websites.  The first is a mixed ability dance company in the San Francisco area, but there are these companies all over the world, I am sure.    I am not a dancer - I look a lot like a goose when I dance!!!  But I have done workshops with them and have seen them perform.   Mixed ability is people of all sizes and abilities and disabilities.

The second is caterpillar soup and is about a dancer who fell out of a tree and was paralyzed and how she coped and started dancing again.  I saw her speak while I was involved in mixed ability dance.   

I tell everyone I can about mixed ability dance because it operates under the premise that everyone can dance.  They would argue with me when I say I cannot dance and say, even a goose has a place!  smilewinkgrin

Here are some reviews for caterpillar soup.  (I am not selling it - so I hope this is ok! plus the website is free)

"...The past can't be undone. And I don't know if Strelkoff will ever regain full use of her legs. But I do know that by her exquisite performance and by the nature of a spirit that soars... she has enlightened and ennobled us all." -- Al Martinez, LA TIMES

"...In her regenerative hope and raw honesty, this wholly courageous artist is, in the truest sense, both humbling and inspiring. " -- David C. Nichols, LA TIMES

Good luck finding your answers.   Gentle hugs,


Post Edited (Statgeek) : 5/17/2009 12:17:57 AM (GMT-6)

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 5/17/2009 5:38 AM (GMT -7)   
Hi Kelly: I am sorry this has hit you so early in life. It is good and bad. It is bad b/c it is beginning to take away activities you love, and is derailing your plans for your future. It is good because now you know you have Fibro, you can build a Fibro friendly life, you are still young enough to do so. So, although it feels like you have "lost everything", imagine if you'd not had Fibro until you'd made your "mark" in life, and then lost it all. I experienced this. I was working at an excellent job, in a field I loved, but couldn't compete for the promotions, so badly needed to continue to "build" my career, always felt, "less Than" b/c I couldn't work as hard or as long as my colleagues. I kept getting "passed over" for the good shifts, for benefits and all, due to Fibro. Although I did not share my issues in the workplace it was pretty self-evident once I began having to go home early and the like. Eventually, I had to quit and take a series of tremendously less gratifying jobs, until I got fired from a re-cycling depot, cause I couldn't toss hundred pound bags up on the pile. Once you get dumped from a job like that, it takes all the wind out of one's sails. I am considering "call centre" jobs, but I don't know if I would make a cheerful customer representative. I might just come out with what's on my mind, like "quit your whining, do you know there are children dying of starvation, right now, and you're b------- about the color of your cell phone." I lived in Fl. from 2003 - 2005. I had to move back to canada for the socialized medicine, and the social security safety net. If you live near Gainesville let me know. I can recommend an excellent GP. Also, the cymbalta; here goes, it has norephernephrine in it. This will cause anxiety. One of the older SSRI's specifically Sertiline or a close relative, not paxil, would serve you better. Hope you find hope here.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.

Veteran Member

Date Joined Jun 2007
Total Posts : 906
   Posted 5/17/2009 12:15 PM (GMT -7)   
Hi Kelly and welcome. I just wanted to let you know what I did to get my "dance fix." I was never a professional, but I took classes in every kind of dance I could. Now I do bellydancing, because it is a lot easier on your joints. I'm actually in a troupe with women of all ages (although I'm the oldest) We have 20 year-olds who are just great dancers. You might give it some thought. Real bellydancing is nothing like burlesque or strippers. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea

Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 5/17/2009 11:15 PM (GMT -7)   
Diane, I LOVE belly dancing! I had thought about taking it up again and thought it might be too hard to do. How exciting that you are doing this. Do you perform anywhere?

Regular Member

Date Joined May 2009
Total Posts : 30
   Posted 5/18/2009 6:41 AM (GMT -7)   
Hey thank you all so much for the help and support! For now i'm going to give dancing a slight break untill i get better medicine.
@Statgeek - thanks for the story.. that way inspiring :)

Regular Member

Date Joined Jan 2007
Total Posts : 35
   Posted 5/18/2009 7:07 AM (GMT -7)   

Howdy fellow Floridian!

sorry, I had to edit this post because I started going on about ME! This is the revised version, sharing tips FOR YOU!

here are some things that I've found that helped.

Exercise!  it was the only thing that improved my health to the point where I could return to work.  My rheumatologist  told me to raise my heart rate to 115-120 (based on my age, height, weight etc) for 30 minutes per day, 5 days per week.  That raises levels of endophines, your body's natural pain killers.

You might still have flare-ups, but they'll probably be  caused by one of 3 things: stress, physical over-exertion, or weather (cold fronts). So try to find a low-stress job.  You live in FL, so that minimizes the effects of cold fronts, and try not to over do it on days when you feel good.  I know it is difficult, especially on days when you are in pain, but it is important to stay physically active.  On my worst days, all the medicine in the world doesn't work until I start walking on a treadmill or around the block.  It hurts bad when I first start, but within 15-20 mins I start feeling better.

Regarding a career:  I work in IT (computers/networks) for State of Florida, Dept. of Education, Vocational Rehab.  Please remember, when God closes a window he opens a door: I ended up with a job I LOVE, with understanding supportive people.  Try looking for a career helping other people.  Those career fields draw caring  people.  Your co-workers will be understanding. 

For us, good health insurance, benefits, and work environment is important.  If you can find some type of government job (city, state, county etc) you'll have good benefits, and depending upon the dept, work with understanding people. Also, sick and vact ion leave is important as well.  You can manage your fibro, but you might have flare-ups and have to take off.


Post-traumatic Fibro onset after accident 10/05, diagnosed end of 8/06
Total right hip replacement due to osteoarthritis 8/1/06
Extra Hemi Vertibrae on top of T1 and below C7 (call it C8??)
resulting in scoliosis, last measured 40+ degrees.

meds: Cymbalata 60mg twice daily,
Lyrica quit taking...seemed to feel better 150mg 3 times daily
Oxycodone 10/325 up to 6 times daily, usually 3 or 4
Fentanyl patch 50mc 1 per 48 hours
Provigil 200 mg once daily
St. John's Wort.
....i'll take anything that won't make me naseaus

Post Edited (Isosceles) : 5/18/2009 8:23:08 AM (GMT-6)

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 5/18/2009 7:27 AM (GMT -7)   
Hi MissMarie and welcome. I'm sorry you have this DD but it could be worse. I know it probably doesn't seem like it to you right now. My fibro started out with fatigue also but I was getting close to 50 when it started. I take amitriptyline and tylenol for the fibro but am going to have to add something for pain cause it is getting worse.
The one thing I have found is keep doing all you can do cause once you stop you may not get it back. I suffered a great loss two years ago that put me in a deep depression and I barely moved for months and I have not been able to regain the strength or energy I lost, I'm sure age may have a little to do with it. When I found this forum and they kept telling me I had to move I thought they were nuts at first but for whatever reason I listened to them and it did help me get off the couch and trying to regain my strength. So keep dancing and doing as much as you can it really does help even if you can't do all the moves you use to. I have an 8 mo old and 8 week old puppies that keep me moving whether I want to or not.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
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Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 5/18/2009 7:45 AM (GMT -7)   

Hi Kelly and Welcome-

I too had my life come to a screaching halt a year ago as the fibro hit like an atomic bomb. I have been a single parent and have raised a now 32 yr. old son and I have a 17 yr. old son at home. I was working fulltime for a very good company and had just qualified to buy a townhome. I have never owned a home and I am 52. It was heartbreaking! I had to leave my job due to the pain and fatigue and I thought my life was literally over.

This past year I have had to adapt to a new me and let the old me go. My life is not over, it has just begun a new and different phase and I can say I am happy. Yes, happy. Oh, believe me with fighting Soc. Sec. Disability, very little money and the list can go on and on, I have my days. But I do not have a terminal disease and I have many, many blessings in my life. I would not have met my family here if it was not for fibro and I have made some wonderful friends that you cannot put a price on.

It sounds like you have been determined in your life so far, and you will figure this out in time. With me it has taken a good Dr., my family and friends and my support group here to get me to the place I am at right now. I have had to put many things on hold until I find out if I will be getting Soc. Sec. Disability, but once that happens I can go on from there. 

Nice to hear you have a supportive boyfriend too! Was nice to meet you!





Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

Veteran Member

Date Joined Jun 2007
Total Posts : 906
   Posted 5/18/2009 10:54 AM (GMT -7)   
Statgeek, I do perform sometimes. The dancing is not hard, only the 2 1/2 hour practices we have once in a while. I actually have the most trouble with my feet because of my plantar fasciitis. I got some arch supports that strap onto your feet with velcro. They help quite a bit. Try bellydancing again. It will make you feel more with it. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea

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