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New Member

Date Joined May 2009
Total Posts : 1
   Posted 5/20/2009 7:39 AM (GMT -7)   
Hi everyone!
I am a "newbie" to all this.....and am so very glad I found a website that people are talking about the symptoms I have, and understand what I'm going thru.  I was just diagnosed last Friday, and told to take Cymbalta, and "come back in 4 months".  YIKES!  The Cymbalta put me on a trip like I've never been on, and discontinued it 3 days later.  I already take Lyrica since my back surgery, so I was told to increase that. 
I'm having a really hard time dealing with this, and want to know if my symptoms are like yours!??  It started with numbness in my legs following a back surgery, and now I have constant shocking/tingling throughout my body, especially in my legs.  The shocking didn't start until I had a "seizure" on April 6th.  I can't walk further than a block without feeling like my knees are caving in.  I've read about the "fibrofog", and believe you me, I have that!
I do Real Estate, and this is all so hard for me to accept.  I deal with people's lives every day.  I need to drive, stay focused, and concentrate on my business.  It's so hard. 
I guess at this point I just need to know if this sounds familiar to anyone, or all of you?
Any help is appreciated.  I'm feeling very alone at this point, and really scared of what the future will bring.
Dober smhair
Hugs, Dober

Regular Member

Date Joined Feb 2008
Total Posts : 278
   Posted 5/20/2009 8:10 AM (GMT -7)   

Hey Dober! Welcome to the Forum.

It has been my experience that Lyrica will make you drowsy and increase what we call "The Fog". I quit taking Lyrica for that very reason. I am able to concentrate much better. I prefer the pain to the grogginess.

Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005

Forum Moderator

Date Joined Apr 2005
Total Posts : 17557
   Posted 5/20/2009 8:29 AM (GMT -7)   
Hi, Dober, and welcome!  I"m so glad you found us and joined in.  We have a great group of people that love to help one another and we really do care about each other, too.
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good information about fibromyalgia, including a list of symptoms.  There are 59 on that list and I have 27 of them.  But, I have still had a full and enjoyable life with fibro!  There is also a link to good stretching exercises that really do help.
Almost everyone has stiffness, especially in the morning, pain and fatigue.  Many have the pain in their shoulders, neck and back.  That's where mine is.  We have the fibro fog too.  That's a lot of fun!  LOL  Keep a good sense of humor and that will get you through the fog.
I use ibuprofen with food and extra strength Tylenol for pain.  I use malic acid/magnesium supplements for pain and fatigue.  Many with fibro are deficient in these nutrients.  I also am deficient in vitamin D and so are a lot of other fibromites.  I live in Florida and never thought I'd have that problem.  Vitamin D deficiency can also add to pain and fatigue.  I'm currently taking 3,500 IU of vitamin D3 to try to get me in the normal range. 
You will find info about malic acid/magnesium supplements and how they work in your body in the Fibro 101 thread.  It might be worth asking your doctor about these thing...and also the vitamin D. 
Meanwhile, read back posts because there is a world of info in them and ask questions.  We are here to help you.  I'm glad you are here and hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Apr 2009
Total Posts : 67
   Posted 5/20/2009 7:59 PM (GMT -7)   
Hi Dober, welcome to the forum. 
I too  just started Cymbalta.  I was dx in 2005.  I refused all meds for a couple of years.  Then decided to only take meds when I was hurting, not every day.  Then my dr. talked me in to trying Amytriptlin (I no I had to have spelled that wrong) to sleep better.  That didn't last long and only made me gain weight, about 20 lbs in two months.  So I stopped.  That was in March of 2008.  Next thing you know I was begging to try anything. 
I started 30mg Cymbalt in april.  and yes the first night was a crazy.  Then I ate everything in sight for 2 days, then nothing for the next 2 days.  After that I evened out.  No nausea, just the clenching with my jaw.  Three weeks I was givin the go ahead for to go up to 60mg.   So are so good.  My main problem is by 3 to 4 each I crash andburn.  My Dr. suggested taking in the morning.  By taking it at night i maybe wearing off in the evening.
Other than that the side effects have gone.  I knnow there be side effects , but I told myself if I was going to do it I would have to give it a try long enought to get past the first effect and see what happens.

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 5/20/2009 10:00 PM (GMT -7)   
Hi Dober,

And welcome to our family! Wow, I'm sure glad you found us too. Fibro is awful when you have lots of love and support...just imagine how bad it is without anyone! OH, we all know I guess because before I came to this forum I was lost and frightened. But let me reassure you that with knowledge the fear goes away. So like Sherrine said, read as much good information as you can and steer clear of hype and empty promises of cures.

As for the Cymbalta...I reacted to it like I did to Lyrica. Head was wobbly and I was so sick. I stopped immediately when I felt the symptoms. I'm very surprised your doc said 4 months for a follow-up. Wow...I'd be asking for a referral to a rheumatologist for conformation and/or some better help. Also you might want to consider find a GP who understands and treat fibromyalgia. A supportive doctor is the best medicine in the world for this condition.

And the hardest one...try to relax. I know, easy for me to say, huh? But oh so hard to do. Try long warm, soaking baths or showers, keep the muscles that hurt warm and flexible, and get as much good rest as you can. Please keep posting and keep us up to date on how you are doing. We're here for each other and that means you too!

Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
Happiness is something to do, someone to love, and something to hope for."

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 5/21/2009 5:56 AM (GMT -7)   
Hi Dober and welcome. Ugghh, doctors!!! He shouldn't have said, "here take this med and I'll see you in four months".  I see my GP every three months and if I start a new med I see him after a couple weeks of being on it. Pretty much the same with my rheumy.
Do they know what caused the seizure??? I don't have the symptoms you have but I'm sure someone on here does. That is what is so great about this forum, anything we may feel chances are there are others that know what we are talking about. I had no support til I found this group, I can't believe it but it is going on two years ago. I don't know what I would do without my Fingertip family to come to. I do have a DIL that was recently dxd with fibro so I do know there is one person in my family that gets it.
Read, ask questions and you can even vent when you can't take it anymore and we are here for you.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
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