Newbie needs your opinion

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined May 2009
Total Posts : 194
   Posted 5/20/2009 10:10 AM (GMT -7)   
I feel awful.  about a week ago I started a fibro flare in my legs, and it has gotten worse since then.  On the inside, they feel like I’ve been lifting weights—weak, achy, and stiff.  On the outside, they feel like I have a really really bad sunburn, from the bottom of my feet right up to the sittin’ down parts.  Saturday I started having asthma symptoms.  At the time, I blamed it on the hot weather (It was 100 degrees here in Northern California this weekend) but it’s also continued to get worse.  And Oooohhhhhhhhhhhhh the fatigue. 
I don't have a fever so I don't think it's a virus.  I think it's just both illnesses flaring at once.  But what would cause this??? 
I recently quit drinking coffee because I was told caffeine makes fibro worse.  Do you think all this could be a fibromite reaction to caffeine withdrawal???
Well now that I'm finished whining I guess I should introduce myself.  My name is Donna (I see there are many of us here!), I'm 44, fibro, asthma, and others.  Married 25 years, no kids.  I rescue older kitties who've had a rough life and try to make their "golden" years better than they'd ever imagined possible.  It's very rewarding when they finally realize they are safe and can just relax and enjoy the pampering.  I would love to adopt more but the way I feel the last year or so I think I can only handle one kitty at a time.  Older cats come with health problems and sometimes create a lot of extra work--and a lot of vet bills.
I've been reading and learning a lot in this forum.  You all are very friendly.  Thanks for listening.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17526
   Posted 5/20/2009 10:42 AM (GMT -7)   

Hi, Donna, and welcome!  I'm so glad you found us and joined in.  Oh, I love cats, too.  I have two feral cats that we rescued about six years ago and they don't even want to stick their nose out of the house now!  LOL  They do like the screened in lanai but that's about it.

Now to your problems.  You probably are just in a flare.  I find that when I'm in a flare I don't breathe deeply either...probably because of the pain.  I notice I take little short breaths and then I feel like I'm not getting a good deep breath.  That's probably some anxiety playing into it.  So I really try to take some slow, deep breaths to help out.  Asthma runs in my family and I have had a "touch" of it occasionally and it sure isn't fun.  I hope you have that under control. 

I take ibuprofen and extra strength Tylenol for pain and malic acid/magnesium for pain and fatigue.  That doesn't help everyone but some have gotten included.  I also take extra vitamin D because I'm deficient in it.  That can cause pain and fatigue, too.

I haven't stopped caffeine.  I'm a tea drinker and there isn't nearly as much caffeine in tea as there is in coffee but it still will help wake me up in the mornings.  I will have tea in the afternoon when I start to poop out, too.  Other than that, I'm a water drinker.  I don't do sodas very often and when I do it is caffeine.  So, I guess I don't get that much caffeine...unless I hit the chocolate!  shocked

Be sure and check out the Fibro 101 thread...the second thread on the forum.  There are links to good info about fibro there...including a link all about malic acid/magnesium supplements and how they work in the body.

Meanwhile, read back posts and ask questions.  We will try to answer them the best we can.  I'm so glad you are here and I hope to hear more from you soon.


Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 5/20/2009 5:56 PM (GMT -7)   
Hi Donna and welcome!

And as I 'try' to type there's a cat snuggled on my lap. As usual, SHE owns I can't sit or lay down without her but I'm OK with that except when I'm trying to have my cereal and she wants the milk.

Anyway, I agree with Sherrine that you likely are flaring with fibro and your entire system is in an uproar. BUT...I sure would have the doc check your asthma. Fibro is not life threatening, or at least that's what they tell us. But asthma is a concern IMHO. Maybe if you got the asthma under control your flare would back off. Just looking for ideas here.

Sure glad you are joining in posting here. It's so easy and everyone is happy to see ya!
Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
Happiness is something to do, someone to love, and something to hope for."

Veteran Member

Date Joined Jun 2008
Total Posts : 1279
   Posted 5/21/2009 6:44 AM (GMT -7)   

Hi Donna and Welcome-

I love cats too, but am s-o-o-o-o allergic to them. Bless your heart for rescuing these senior cats!

100 degrees is warm! cool This winter I think I had a nonstop flare going with the extremely cold winter we had here in MN. Maybe with the extreme heat that may of got the flare going?

Not sure if the caffeine withdrawals would cause this? I have not tried to go off of caffeine since getting fibro because I fatigue easily. I'm worried I would not make it through a day without it! 

Nice to meet you and I hope you start feeling better soon!


Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
Zoloft, Tylenol 4000 mg., Darvocet  

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 5/21/2009 7:10 AM (GMT -7)   
Hi Donna and welcome. I'm allergic to cats but I think it is great what you are doing for them. I'm going to become the crazy old dog lady on here. smilewinkgrin
It takes so little to cause a flare sometimes change in weather, stress, the color of clothes we have on, who knows what is going to cause a flare. I get that feeling like my body is fighting off a virus or something when I flare. That's how I can tell a real flare from just over doing it.
Heat is my best friend wet or dry. Now that it is getting warmer here just sitting in the sun with it on my back and shoulders feels so good and helps my vit D deficientcy.
I hope this passes soon for you.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 15, 2017 9:27 AM (GMT -7)
There are a total of 2,905,733 posts in 318,886 threads.
View Active Threads

Who's Online
This forum has 158239 registered members. Please welcome our newest member, steggun.
258 Guest(s), 11 Registered Member(s) are currently online.  Details
PeteZa, JayMot, sheepguy, Artist Mark, tickbite666, Eph, gumby44, Supportive Daughter, beatUC, Fauntleroy, iPoop