Diagnoses questions

Did you have any diagnoses prior to being Dx with FM? If so, which?
Chronic Fatigue/Lyme Disease - 9.1%
Auto Immune - 9.1%
Allergies - 9.1%
Hormonal Imbalance - 0.0%
Emotional Disorder - 36.4%
Other- please explain - 36.4%

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Sera Smiles
Veteran Member

Date Joined Nov 2006
Total Posts : 671
   Posted 5/31/2009 5:35 PM (GMT -7)   
Hello gals and guys! I hope a wonderful Sunday has been yours. I have another question that I hope you don't mind helping me with.  Thank you so very much for any info you are okay with sharing. I am looking for all the anecdotal information I can find regarding the beginnings of your FM experiences- early health issues, unusual first diagnoses, etc.
"A butterfly is most vulnerable immediately after its' metamorphosis."
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar, Ambien
OTC meds [PRN]- Aleve, Benadryl, Claritin, B Complex, Vitamin D, Omega 3, Multi Vitamin

Regular Member

Date Joined Aug 2008
Total Posts : 326
   Posted 5/31/2009 6:23 PM (GMT -7)   
Woo-hoo! Looks like I'm the first vote. I'm 100% of the results right now. Hahahah

The emotional disorder was depression when I was a juvenile. I had a few serious attempts at offing myself. I ended up in a mental institution for a short while when I was 16 after my first attempt. I've been dealing with bouts of depression ever since but have not made any serious attempts since I was 29 (I'm 38 now). I have come to the conclusion that after 3 real attempts it's like baseball - I'm out. There's obviously a reason that fate/destiny/god or whatever, is not done with me and I'm stuck on this rock till I'm done learning what I need to learn.

Later, at age 32 I had a doctor that diagnosed me as bi-polar. To be honest I'm not certain that it was an accurate diagnosis. I show some signs of manic behavior, but I do not have the multiple days of sleeplessness, feelings of invincibility, etc. The only thing that I have found that helps with the bouts of depression is Cymbalta. As a pain reliever - pfft. Pointless. As an anti-depressant, it doesn't keep me from getting into a depressed state, but it does help me from sinking nearly so low. It keeps me functional, I still will go to work, I don't neglect my hygiene, but I'm not terribly outgoing/social during those depression stages. So I'm very pleased with the fact that something seems to be of aid.

Oh, forgot to add that I have a form of an auto-immune, in that I have psoriasis. Seems to have been hereditary from my father's side. Showed up right about the time that I first started going through puberty (as if puberty wasn't awkward enough by itself)

And if you're collecting and building profiles of this information, I will tell you that anything that I give you on this forum you are welcome to use/store/compile and quantify in any way as long as it's never with malicious intent. I don't think you have any reason to have malicious intent, but just trying to give you a blanket disclaimer. lol. I'm always aware of just how "public" online postings are so anything that I've given in these forums is something that I know has the potential to be read by ANYONE in the universe with a web browser.

Post Edited (Piercings) : 5/31/2009 7:30:41 PM (GMT-6)

Regular Member

Date Joined Apr 2009
Total Posts : 179
   Posted 5/31/2009 10:18 PM (GMT -7)   
Hey Sera Smiles! I, too, have battled depression off and on for many years, with a couple of "offing attempts" (liked the
connotation from Piercings better than other terms....) Sometimes I really think I've had fibro a lot longer than my Dx would indicate, but it was unknown then and/or mistaken for symptoms of the depression. Anyway, the first time any of the multiple doctors I've seen ever truly tried to get to the bottom of it, she thought I had Chronic Fatigue Syndrome. When I didn't respond well to B12 and whatever else she gave me (been a long time plus the fog!), she sent me to the rheumy. I got the FMS Dx from him about fifteen years ago. No -- that's not right -- more like seventeen now....
Luv ya
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac
stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
( novice with computer - patience, please!)

Heather H.
Veteran Member

Date Joined Mar 2005
Total Posts : 756
   Posted 6/1/2009 5:05 AM (GMT -7)   
I had several different dx's before anyone settled on fibro. I was told that I had something wrong with my thyroid...which was fine. I also heard that I was pregnant so I was gonna be tired and in pain. MY personal favorite...I had on PCP tell me that I was making it all up for attention!!!! Never saw him again. Then there was it's arthritis. I have been trying to figure out what was wrong with me since I was 20 and I didn't find anything that stuck until I was 26.

It was my first permanent dx, but unfortunaly not my last. I just keep telling myself that one day the doctors are going to give me a list and this is it....these are your dx's and we aren't going to add anything else to the list.....that day will be heaven!!!

Love many, trust few, always paddle your own canoe!
dx's:  Fibro, 8th cranial nerve inflamation, MS.
meds.:  none at this time

Bella Scarlett
Regular Member

Date Joined May 2009
Total Posts : 87
   Posted 6/1/2009 5:44 AM (GMT -7)   
My chiro first told me 20 years ago while treating me after a car accident that she thought I had fibro. I was busy raising my children and usually just managed symptoms when they popped up. But through the years, I've been DX'd with chronic pelvic inflammatory disease (resulting in hysterectomy), gall stones (removal of GB), allergies, seborrheic dermatitis, vertigo, dry eyes, anxiety, chronic tendonitis (elbows, ankles, shoulder), acid reflux, IBS. All of this adds up to fibro, since blood tests come back ok for other disorders. I'm not being treated for all of these things at once. Symptoms come and go, depending on what is happening in my life. If I eat really well and keep the stress down, allergies, reflux and IBS are kept at bay.

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 6/1/2009 6:13 AM (GMT -7)   
These polls only allow one choice. For this poll, I had to prioritize. I could add, as well, hormonal imbalance and emotional disorder. I just picked the one that somewhat embodies the others.
Thanks for asking.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.

Regular Member

Date Joined May 2009
Total Posts : 194
   Posted 6/1/2009 11:57 AM (GMT -7)   
I selected "other". My dx's include asthma, hypothyroidism, endometriosis, and IBS. I was told by a dr. a long time ago that my pain was the beginning of RA, but the doc that finally dx'd my fibro said I have no signs of RA and that previous dx was wrong.

Regular Member

Date Joined Nov 2008
Total Posts : 263
   Posted 6/1/2009 6:10 PM (GMT -7)   
I wasn't diagnosed with any of those things. That should have maybe been another question, to get more realistic results.
FIBROMYALGIA - that's it!
Dx @ age 50
Lyrica 75 mg 3X/day
Amitriptylene 10 mg
Tramadol 150mg time-released 1X/day

Regular Member

Date Joined May 2009
Total Posts : 67
   Posted 6/1/2009 7:00 PM (GMT -7)   
I actually wasn't diagnosed "with" anything before I was diagnosed with fibromyalgia. The doctor I saw for several months last year checked for several other causes of my chronic pain before sending me to a rheumatologist who diagnosed me with fibro.

I did, however go for many years with fibro without any diagnosis because I had no insurance and no way to go to a doctor... so I "diagnosed" myself by checking out things online. I thought I had RA or Lupus or something.

I'm lucky that I found a good general practitioner and a good rheumatologist the first time out.
When you come to the edge of all the light you have known and are about to step out into the darkness, faith is knowing one of two things will happen; there will be something to stand on, or you will be taught how to fly.

I make mistakes, I am out of control and at times hard to handle. But if you can't handle me at my worst, then you sure as hell don't deserve me at my best. - Marilyn Monroe

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