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Regular Member

Date Joined Nov 2008
Total Posts : 263
   Posted 6/11/2009 10:49 PM (GMT -7)   
I saw my rheumatologist yesterday to talk to her about my stupid Insurance Carrier who has, for the 3rd time, denied my claim. I have worked 1/2 time through the worst of my condition - all last year. Only on May1st, 2009 did I go back full-time. (Which is AWESOME) But the last letter they wrote they basically disagreed with the diagnosis, even though they've never met me.

Anyway, the rheumy said there's "mild, moderate and severe" fibromyalgia and then she said she considered mine severe. Wow. I was kinda shocked at this. I was expecting her to say "mild" or something because I'm able to work now and I feel great. Got all my energy back and everything. Although I'm still on 3 drugs every day.

I don't know why I'm here saying this - it's just that as I think of it today it makes me kinda sad. I mean...on the one hand, when she writes a follow-up letter and says that it should help my claim. So at first I was happy about it. But now I'm sad. Not depressed...I'm still optimistic and hopeful and all...but sad.

It's a really weird thing and I guess I'm not making much sense. Sorry!
FIBROMYALGIA - that's it!
Dx @ age 50
Lyrica 75 mg 3X/day
Amitriptylene 10 mg
Tramadol 150mg time-released 1X/day

Regular Member

Date Joined Apr 2009
Total Posts : 179
   Posted 6/11/2009 11:14 PM (GMT -7)   
Hey K9! Sorry you have had so many problems with your insurance, but it sounds like your doctor is willing to help you get the benefits you need and deserve. Thank goodness for the good docs!
Be glad that you are doing well regardless of the 'severe' diagnosis -- I'm really happy for you! My fibro is also considered severe, but I'm not able to do as much as you. Suspect my age and other things that don't work right anymore also complicate the issue!
You certainly do not need to apologize for your post -- you have the right to share your feelings here -- we are all in this together -- fibro is really hard to cope with alone, in my opinion. Glad you are still optimistic! Good for you!
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac
stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
( novice with computer - patience, please!)

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 6/12/2009 5:38 AM (GMT -7)   
No matter what your doc calls it she is helping you to get your benefits. I agree that fibro affects everyone differently. Look at our little group here we have some that work full time and have a family to take care of and some in wheelchairs. My son and DIL knows a woman that was fighting fires up til a year ago with fibro. If they were to put all that gear on me I would collapse under the weight and never make it to a fire.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Regular Member

Date Joined Jan 2009
Total Posts : 376
   Posted 6/12/2009 9:23 AM (GMT -7)   
Hi K9 -
I had exactly this same thing happen last week.  My pARNP wrote an appeal letter to my insurance for long term disability.  Last week I got a call from them saying that my LTD had been approved.
So yeah - it was this huge relief.  I won't have to go back to a work situation that I just can't handle right now.  I'd have to function at a very high level for the work I do - it wouldn't have been a good thing for either me or the co. I work for.
But there was also this real sense of loss.  And yes - it made me sad.
I think you are a positive person too.  I mostly don't dwell on all the things I used to do in my "previous life" when I was very active.  Instead I am thankful for what I can do now - like last Sat. I went to a movie with my wife, we spent an hour walking around the duck pond by the theater, and then had dinner.  It was really fun.
But then things happen that bring our losses back into focus - and we end up with a feeling of loss - and feel sad.
Anyways, your post makes perfect sense to me.
Lyme, anxitey, depression, chronic C. Pnuemoniae
"... expect the unexpected ..."  (O. Wilde)
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)

lost in philly
Regular Member

Date Joined Jan 2009
Total Posts : 243
   Posted 6/12/2009 9:48 AM (GMT -7)   
I am constantly reminded of something and I will start to weep, sometimes I dont even know why. I just need to grieve the life I thought I was going to have. Doesnt mean that this new one has to be horrible, just different than I planned.

I used to work with disabled children and when I did I remember a metaphor that used to circulate about what it felt like as a parent to suddenly realize that the "perfect" child you were hoping for is not quite the same vision that was given to you...they said it was like planning a trip to France, you pack your suitcases with clothes suitable for the weather there, you learn to speak French, you get some maps etc...then you get on the plane all excited about seeing the effeil tower only to get dropped of in Iowa. Perfectly fine place to vacation, but not what you anticipated or planned for. Bottoms line: It takes time to adjust.

I think the metaphor works with FM too. It is a shock to get over the initial Dx and to grieve and then you can move on...pack your bag for a new destination, you know?

Regarding the LTD from your call me naive, but I guess I was hoping that since I was on short term disability that it would be a breeze to move into LTD...sounds like it is very much NOT the case!?! I am just now sending in my paperwork for LTD. How long does it take to get your first payment? Any payment??
lost in philly

Fibromyalgia, Endometriosis, Migraines, Asthma, Chronic Fatigue

Savella, Topamax, Morphine, Percocet, Wellbutrin, Abilify, Crestor, Resoril, Loestrin, Imitrex

B12, Magnesium, Melatonin, Omega3

"Knowing without doing is like plowing without sowing."

Regular Member

Date Joined Nov 2008
Total Posts : 263
   Posted 6/13/2009 12:10 PM (GMT -7)   
I guess everyone's insurance carrier is different so there's no standard answer to that.

I think my sadness comes from the shock of realizing I have a serious condition. I figured it was mild so it might go into "remission" or something. I guess it still could.

Anyway, every morning I wake up and thank God (literally) that I have my energy back. I would seriously rather lose a limb than my energy. That was horrible.
FIBROMYALGIA - that's it!
Dx @ age 50
Lyrica 75 mg 3X/day
Amitriptylene 10 mg
Tramadol 150mg time-released 1X/day

Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 6/14/2009 11:22 PM (GMT -7)   
I felt the same way when I received a disability diagnosis. I had lost my old self along with whatever plans I had. I have adapted. Believe me I had not planned to be exercising in a pool almost every single day. I thought I would be running my corporation

Life is good though. Just hurts a lot. lol


Post Edited (donnaeil) : 6/15/2009 12:35:00 AM (GMT-6)

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