I have gone from a lurker to a poster, but technically a newbie.
I am 51, have had fibro since a teenager, but diagnosed 5 five yrs ago. I run the gamut of ailments like the rest of you (us), compounded by needing both of my hips replaced due to avascular necrosis, caused by Prednisone.
I had another post earlier ( with 3 responses ), but am hoping someone out there in fibroland has had Botox injections for the pain.
My orthopedic sent me to a PMR Dr (physical medicine & rehabilitation). The best thing he thought would be the Botox injections. When they didn't work as well as thought, he recommended steroid injections in my fact joints (I refuse to cause more damage to my body with steroids), or burning my nerve endings. As pleasant as that sounded, he lost me at very painfull, sedated, might not last, etc..So I tried the Botox again, and then I just had them yet again, at 3 mo intervals. It takes about 2 weeks for the shocking pain to go away and since I have 5 shots in my neck, I need to wear one of those "fashionable" collars.
I have a total of 13 injections, 5 in my neck, 1 in ea shoulder, 1 in ea shoulder blade, 1 in ea hip and 1 in ea butt. I didn't think they were doing much for me, but after the last 2 months I realized a lot of my pain was coming back. Thats why I had it done for 3rd time.
So, why am I telling you all this? It's not that I'm trying to bore you, but because I am in pain, and I want to know if anyone else has tried this? Is it really worth it? Fortunately, I pay big $ to have good insurance and they cover the cost, which is about $10,000. Every three months! I don't know if they will keep paying, and if so, forever?
Anyway, I would like to hear from you all. I am told there are no long term effects, however, I wasn't told by one of my other 3 drs that all prescribed Prednisone, that it would have lasting effects. Huh. I am not a skeptic. I want to believe this is the new wave of pain relief, which I might add, I still need all my other pain meds - oxycodone, vicadin, flexeril, Lyrica etc.
I'm rattaling on. This sure beets lying in bed watching the time pass (I know I was supposed to take the clock out of my bedroom, but I need to know what time it is that I am not falling asleep).
Do people actually read thes long ones? Can somebody help me?
Thanks for reading this. If I have typos, I'm sorry. I am sleepless in Minnesota.
anxiety, avascular necrosis, costochondritis, depression, cfs, fibro, gerd, thyroid, uc
in trying times, don't quit trying