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Veteran Member

Date Joined May 2008
Total Posts : 704
   Posted 6/19/2009 12:46 PM (GMT -7)   
At least know I know why I'm feeling double icky, I have lymes in addition to fibro. Let the good times begin, I'm happy that I finnaly know what the heck is wrong with me
Fibromyalgia, Anxiety, IBS, Reflux, Insomnia,
Lyrica 225Mg X2/Ambein CR/Zantag (presc strength)
Taking it one day at a time.... 

Regular Member

Date Joined Jan 2009
Total Posts : 376
   Posted 6/19/2009 12:59 PM (GMT -7)   
Grats and condolences. 
It is a relief to understand an underlying condition.  Lyme is a tough disease to treat if you've had it a long time.  Any idea how long you've had the Lyme?
All's I know is I'm glad I don't have Fibro.  Mine is the fatigue and cognitive stuff.  I don't want to over-information you all at once on Lyme.  You should see some improvement with treatment - tho it'll probably be slow if you have late stage disease.  You can also expect of have periodic worsening of symptoms during treatment.  These are Herxheimer reatcions (Herxes).  Killing the bugs releases toxins and that's where the Herxes come from.
Be sure and post when you're ready for more info.  There is also a pretty good Lyme forum.  I don't have Fibro but the good folks on this forum let me hang out with them  :-)    There are many similarities between Lyme and Fibro and really, all people with a chronic illness have much in common.
Lyme, anxitey, depression, chronic C. Pnuemoniae
"... expect the unexpected ..."  (O. Wilde)
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)

Veteran Member

Date Joined May 2008
Total Posts : 704
   Posted 6/19/2009 1:32 PM (GMT -7)   
So there is a chance I don't have fibro, that I have Lymes only? Interesting

Fibromyalgia, Anxiety, IBS, Reflux, Insomnia,
Lyrica 225Mg X2/Ambein CR/Zantag (presc strength)
Taking it one day at a time.... 

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 6/19/2009 1:34 PM (GMT -7)   
I'm sorry Monica but glad you found out and will get treatment now.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
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Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 6/19/2009 11:44 PM (GMT -7)   
You may have Lyme (not Lymes) and not fibro. You won't really know until you've been treated for a while. If the fibro improves or goes away, then it was Lyme. I had a lot more pain before I was diagnosed and treated for Lyme Disease. After about 4 years of treatment I improved a lot. Unfortunately, I never got back to the way I was before.

I usually call what I have now - fibro. Some people would call it "Post-Lyme Syndrome" and others would say I am still infected. I've slowly improved over the last 15 years without any further Lyme treatment.

Veteran Member

Date Joined Apr 2004
Total Posts : 6056
   Posted 6/21/2009 11:36 AM (GMT -7)   
And, to complicate matters Lyme can lead to fibro and you can have one or both at the same time.... (sigh!) Hang in there, girlfriend.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

Regular Member

Date Joined Apr 2009
Total Posts : 87
   Posted 6/21/2009 2:50 PM (GMT -7)   
Sorry to hear about your diagnosis, Monica. I have a good friend who also has both chronic lyme and fibro. The symptoms are quite similar. Like others have said, there's a good chance that you might just have Lyme and not fibro. Either way, what's important is that now you know what is wrong and you can get treatment-- especially for the Lyme-- and start feeling better. My friend's Lyme did get better with treatment, but she still has trouble sometimes. Of course, she contracted Lyme at age three and wasn't diagnosed until she was seventeen, so the bacteria was in her body for a long time. But, if you haven't had Lyme for that long, your chances of feeling much better soon are much greater. It's a tough diagnosis, but hang in there. You'll get through it. I wish you all the best. Let us know how you are doing!

Take care!

Fibromyalgia, Depression, Anxiety
Amytriptiline, Flexeril (PRN), Percocet (PRN), Ambien (PRN at bedtime), B12
Be not afraid of going s l o w l y, be afraid only of standing still.

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