I'm new, and I was wondering if anyone who's been diagnosed with fibro have experienced everything I have.
I'm 25, and I've been having issues with pain & fatigue for at least 4 years. I have PTSD as a result of childhood abuse, so I don't really remember things in the past too well.
I've been to a GP, neurologist, cardiologist, 2 naturopaths, rheumatologist, physiatrist, infectious disease specialist, a therapist, a psychiatrist & a Lyme disease specialist. All my blood work & other testing has been completely normal. No issues with nerve conduction, or abnormalities of brain or spinal cord. Negative for lupus, mono & Epstein Barr. Normal ESR, rheumatoid factor, Thyroid, Liver, Protein, CBCs & Sed rate. Had an fracture of my L5 vertebra, from being thrown from a horse, but my most recent xrays & MRI show it has healed. Nevertheless, I still have pain in my lower back, along with severe sciatica.
I have a bruised feeling all over my body, from my neck to my toes. Sometimes some areas are worse, especially when its cold & damp out. I've mentioned fibro to several of the doctors I saw, but none of them were able to find any of the tender points.
I also am quite sensitive to certain things. Certain foods, medications & environmental stuff. Can't tolerate any antibiotics. Can't eat meat, fish, poultry or shellfish, since they all upset my stomach & give me a rash on my arms. Becoming a vegetarian has lessened my symptoms somewhat, but I do still experience occasional bouts of extreme fatigue & pain, where merely sitting up is exhausting and the lightest touch on my body is agonizing.
I moved a year ago, and none of the doctors I've seen here have been helpful or very professional, not returning calls, setting up appointments with other doctors, etc. I do have an appointment with a new naturopath up here in a few weeks, and I'm hoping things will go well with her. The only doctor/professional that I've seen who was helpful & believed me was the naturopath I saw before I moved.
Though at this point I'm so sick of dealing with doctors that I'm not sure its even worth it.