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Veteran Member

Date Joined May 2009
Total Posts : 1343
   Posted 6/24/2009 7:31 PM (GMT -7)   
I'm new, and I was wondering if anyone who's been diagnosed with fibro have experienced everything I have.

I'm 25, and I've been having issues with pain & fatigue for at least 4 years. I have PTSD as a result of childhood abuse, so I don't really remember things in the past too well.

I've been to a GP, neurologist, cardiologist, 2 naturopaths, rheumatologist, physiatrist, infectious disease specialist, a therapist, a psychiatrist & a Lyme disease specialist. All my blood work & other testing has been completely normal. No issues with nerve conduction, or abnormalities of brain or spinal cord. Negative for lupus, mono & Epstein Barr. Normal ESR, rheumatoid factor, Thyroid, Liver, Protein, CBCs & Sed rate. Had an fracture of my L5 vertebra, from being thrown from a horse, but my most recent xrays & MRI show it has healed. Nevertheless, I still have pain in my lower back, along with severe sciatica.

I have a bruised feeling all over my body, from my neck to my toes. Sometimes some areas are worse, especially when its cold & damp out. I've mentioned fibro to several of the doctors I saw, but none of them were able to find any of the tender points.

I also am quite sensitive to certain things. Certain foods, medications & environmental stuff. Can't tolerate any antibiotics. Can't eat meat, fish, poultry or shellfish, since they all upset my stomach & give me a rash on my arms. Becoming a vegetarian has lessened my symptoms somewhat, but I do still experience occasional bouts of extreme fatigue & pain, where merely sitting up is exhausting and the lightest touch on my body is agonizing.

I moved a year ago, and none of the doctors I've seen here have been helpful or very professional, not returning calls, setting up appointments with other doctors, etc. I do have an appointment with a new naturopath up here in a few weeks, and I'm hoping things will go well with her. The only doctor/professional that I've seen who was helpful & believed me was the naturopath I saw before I moved.

Though at this point I'm so sick of dealing with doctors that I'm not sure its even worth it.

Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 6/24/2009 7:58 PM (GMT -7)   

I'm no doctor but it sounds like fibro to me.  You have had all the extensive testing we all have been through and are experiencing typical fibro symptoms.  Even after numerous expensive and repetitive tests, that all came back normal except for some spinal stenosis and compressed vertebrae, the rheumotologist I saw fifteen years ago was still reluctant to diagnosis me with fibromyalgia even though I levetated off the table when she pressed on the trigger points.  On my dx sheet she wrote myofascial pain/fibrotitis which I guess was what the call fibromyalgia back then.  However, she confessed she wasn't sure this condition existed.  I have since found a doc that takes it seriously...which is half the battle.  Not everyone jumps a mile in the air when the trigger points are manipulated.  Some are not sensitive to them at all...or are on one day and not the next.  I have a friend on disability for fibro and she only has two tender points.

This is an insidious disease and everyone is different.  Again, I'm in no position to dx you, but our symptoms sure do sound like mine!


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Regular Member

Date Joined Apr 2009
Total Posts : 179
   Posted 6/24/2009 10:12 PM (GMT -7)   
Hi sayyadina! Welcome to the forum and fibro FaMily! Hope you find us supportive and caring, because we sure try to be! If you haven't read it before now, please look at the second thread on this page, Fibromyalgia 101. It's very informative.
Hope to hear from you again soon!
Dx: FMS,OA,depression,anxiety,DDD with 7 herniations so far,HTN,IBS,cardiac
stent,failing aortic valve,angina,migraines with aura,many surgeries,+misc.
Rx: Nifedipine,Atenolol,Enalapril,Simvastatin,Levothyroxine,Cymbalta,Bupropion,
Dicyclomine,Lorazepam,Darvocet,Percocet,albuteral inhaler,nitroglycerin,+
( novice with computer - patience, please!)

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 6/25/2009 7:42 AM (GMT -7)   
Hi sayyadina and welcome to the family. I'm not a doctor either but it sure sounds like fibro to me too. You know what they say, if it walks like a duck and quacks like a duck it's a duck. smilewinkgrin I was in a flare when my doc did the tender point test so yes everyone of them hurt. Since then I have developed knots on top of knots so I stay sore. I have the tightness too and it feels like my joints are being pulled out of place in different directions sometimes. Stretching and massages helps but not for long. We have to keep moving and stretching though or it gets worse.
Read the fibro 101 thread and back threads, ask questions and we will be here to help you.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Forum Moderator

Date Joined Apr 2005
Total Posts : 17524
   Posted 6/25/2009 8:50 AM (GMT -7)   

Hi, Sayyadina, and welcome!  Some people are very sensitive and practically jump off the table when the areas of tender points are touched.  I didn't.  But there are times where I'm more sensitive. 

Keep a journal of what you do and how it affects your body and take it to your doctor, when you find one.  Make sure they believe in fibromyalgia.  There are some doctors that don't.  Your symptoms are very much like what we are suffering.  I hope you get to the bottom of this soon.

Be sure to check out the Fibro 101 thread and read back posts.  There is a lot of good information in them that could help you out.

I'm so glad you found us and joined in and I hope to hear more from you soon.


Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 6/25/2009 9:05 AM (GMT -7)   
Hi and welcome to our little part of the world. This is a safe place for those of us who sometimes feel that the rest of the world just doesn't "get it". The only way to totally understand fibro is to have it and that's not a good recommendation either.

As you have already read many people who have read your description totally know what you are talking about. Your story reads like an old book on fibromyalgia. No, I'm not a doctor either but everything you describe are symptoms of fibro. Plus your journey from doctor to doctor is also a familiar one, unfortunately.

I agree with Sherrine that you need to find someone who understand fibro...not some clinic who promises to "cure you" but a good doctor who knows and understands the disorder. Find the closest university/teaching hospital and give them a call. Find a good rheumatologist who can help you with what's going on. In the mean time, as Sherrine said, keep a daily record of your pain. Here's a link to a great free journal you can copy for free... ...
I use 1 page for each day. Then take these to each doctor visit and ask them to read it. Not only will you see what your pain pattern is and what affects it, the doctors will see that you are serious and need help. These journal sheets will help them see what your life is to day, hour to hour and minute to minute. This will give them a very clear picture.

Please keep us updated on how your search is going. Everyone here understands and our hearts go out to you in your journey. But remember...we have hold of your hand and will be with you all the way.

Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.


If you ask what is the single most important key to longevity, I would have to say it is avoiding worry, stress and tension. And if you didn't ask me, I'd still have to say it.
George Burns

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