Where does Fibro end and become something else?

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Regular Member

Date Joined Jan 2009
Total Posts : 41
   Posted 7/18/2009 3:07 PM (GMT -7)   
Hi everyone,
I have broken down and decided to post. I am having a very difficult time right now. For the past 2 weeks going on 3..I have been experiencing very out of the norm pain for me. Little background on some recent changes in regards to meds. I tapered off of Cymbalta-weight gain an issue-doc gave me Norco for pain. I also finally got Restasis for my extremely dry eyes and started that at the same time. While on Cymbalta, I had more good days then bad. But I am as close to 200 lbs then I will ever want to be again. So, it was not an option to stay on it.
This is my 5th or 6th medication change.
My first problem came when I became extremely nauseated and vomited for 2 days. Okay, so I have to take Norco with a snack I guess. That still has not helped. I forgot, my dosage for Adderrall was increased to 20 mg a day at same time. Even with Adderrall I am having severe fatigue.
So, for the past week I have played with my meds a bit. Tried not taking Norco, but my darvocet for pain. Felt a little better but not great. Here is what I have been experiencing:
Stiff neck with upper mid back pain. My feet are in constant pain, even when I wake up. I am now using a cane to help aleviate the pressure a bit. I believe the Norco is giving me some real bad headaches too. I have sudden flushes of heat and break into a cold sweat. I have had a bit of a cough too but no production of sputum. My body temp goes from real low-94.2 to kind of high 99.8 throughout the day.
I am at my wits end here. Never have I had such a bad time of it. Been dealing with this for 4 years now.
So, how can I be sure this is not something more serious? My hubby is so upset with me because I refuse to go to ER. Like many of you, I know what will happen. They wont find a thing wrong, bloodwork will come back just dandy.
And to top it all of my vertigo had come back in a big way. So I am also taking Meclizine to combat that wonderful feeling. I take zyrtec as well and now have introduced Zantac 150 to help combat the nausea.
What do you guys think, should I suck it up at go to the ER?
Also, the pain in my back is a new one. It is where my lungs are so I dont know what to think. I do get shortness of breath, and I breathe shallow at times.

Tell me if you have experienced this before with Fibromyalgia?
I just do not know what to think, and it has taken a long time to write this because of the nausea.
Sorry for the long posting but I need someone who knows my condition to convince me to go to the ER.
Thanks to you,

Fibromyalgia,bi-polar,DDD and osteoarthritis.

Veteran Member

Date Joined Feb 2009
Total Posts : 686
   Posted 7/18/2009 3:24 PM (GMT -7)   
Sorry you are having so many symptoms. I have the neck stiffness/pain and also the pain in my ribs in my back that you describe. It sounds like you have a lot more going on than that though. Perhaps a trip to the ER is a good idea. Only you know that for sure. Your husband may be right and not know what else to do for you.

I hope you feel better soon.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.

Veteran Member

Date Joined Jun 2007
Total Posts : 906
   Posted 7/18/2009 5:00 PM (GMT -7)   
Most drs. will only prescribe one major drug at a time, so they can see how you react to it and if you have side effects. I think you should see your dr. about this. The ER will not know which drugs are causing your problems. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea

Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 7/18/2009 8:18 PM (GMT -7)   
I agree with Diane.  See a doctor who will spend more than ten seconds with you.  ER physicans are so busy and rarely take the time to ask all the proper questions.... half of them don't even know what fibro is.
 I went to Urgent care a month ago on a Saturday...did all kinds of lab work, called me and said they found nothing.  Thankfully my regular doctor called me monday and said Urgent Care had sent him my lab work and I had a UTI.  Won't go there again.
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Forum Moderator

Date Joined Apr 2005
Total Posts : 17524
   Posted 7/19/2009 7:03 AM (GMT -7)   
I have back and neck pain all of the time.  It mainly is in my shoulders and between the shoulder blades.  Also some around my rib cage.  I get the sweats, too. Some times I wake up at night and my nightgown is totally wet and I have to change it...and the sheets, too.  When I'm in a flare I've had terrible times with my feet.  Summer is the worst time for me and the past two summers I could barely walk.  So far, this year, I'm not having that problem.  So, what you are having can be fibro.
I only use an emergency room for emergencies.  You should see your doctor and take a complete list of all the meds he/she has prescribed.  You might not need all of that stuff and some of it could be giving you problems.  I have heard of doctors prescribing and prescribing and never stopping any other meds.  Also, write down what vitamins and herbs you are taking too.  All of this can interact.  Meds can interact with med and herbs can interact with meds.  
I know it is frustrating but I've had fibro for decades.  It waxes and wanes.  I will have bad periods followed by better periods.  Try not to stress and think that you will continually get worse.  The stress makes things worse.  Try to remember that you are a day closer to feeling better!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 7/19/2009 8:16 AM (GMT -7)   
Kat, I would get in to see your doc as soon as possible. Last spring I decided to cut down on the amitriptyline against my doc's better judgement and went into a flare from hades for two weeks. I think some of us are more sensitive to med changes than normal people. I never change more than one med at a time. Maybe your doc can get your meds straightened out for you.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Regular Member

Date Joined Jan 2009
Total Posts : 41
   Posted 7/22/2009 1:45 PM (GMT -7)   
Thanks everyone for your feedback and advice! I always feel so much better when I can hear back from people who have been there and done that!
I did not go to the ER. I really stood firm on that with my husband too. He worries and loves me, so I guess I will let him have his say so. My nausea and vomiting was connected to the Norco. When I wrote my first post I realize how much pain I was in- did not make much sense when reading back. But, just to clarify here, my doctor only adds one med at a time and he starts me off with very low doses. He says Fibro folks can be very sensitive to medications. But I decided I had to define what was making me sick? I had taken the Norco for about a week before all this other crap started. My own assessment is something in the Norco sent me into a bad flare. Although I am feeling better, I am no where near feeling well. My swollen lymph nodes and painful feet are a constant. I also noticed my back pain a little more then I used too.
I have to agree that the weather plays havoc on me. It has been hot, so I am in air con most days because of the break out sweats I still have.
I also have osteoarthritis and spinal stenosis of the lumbar and cervical spine. So, my arthritis pain has doubled. So, I am back to my Darvocet and motrin which is helping.

Man oh man do I miss the Cymbalta!! It really worked as far as taking the stiffness and all over aches away. Lyrica I had to stop because of severe reactions. But I just cannot justify the weight gain by going back on it.
Thanks again for taking time to write a response to me. I think that is what helps me most is the support and best wishes from all of you guys.

I have made an appointment to go to Utah for an alternative treatment. That is a whole other post, but I am hopeful about the outcome. I will keep you posted about the progress of that in the next few weeks.
Take care all, and thanks again.

Fibromyalgia,bi-polar,DDD and osteoarthritis.

Regular Member

Date Joined Jan 2009
Total Posts : 41
   Posted 7/22/2009 1:47 PM (GMT -7)   
Hey Marlee,
I see you are on Tramadol? I was just reading about that before posting. Are you having good luck with it? I am looking for something that will help alleviate the arthritis pain too.

Fibromyalgia,bi-polar,DDD and osteoarthritis.

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