Hi everyone! Just wanted to give a brief intro- I was recently diagnosed Fibro a few months ago (after finally getting a PPO- Yay!). Honestly, I diagnosed myself through research and found myself a rheumatologist because all the doctors thought it was all in my head. Basically, I think my problems started as an infant when I had colic. I was always sick with strep throat and various infections as a child and then diagnosed with moderate scoliosis in middle school (over a 30 degree curve). I wore a back brace for 3 years/23 hours a day. In high school, I developed what I would describe as IBS (though I'm told it's just chronic constipation?). I had predominantly diarrhea (sorry, tmi) for 9 years- to the point where I would pass out from pain and lose bladder control. But I was told time after time it was all psychiatric. This last flare up in March switched me from IBS-D to IBS-C. I'm due to have a colonoscopy next week, so we'll see how that goes!
I have not been able to find a good doctor yet unfortunately. I was put on Cymbalta a few months ago for PTSD (I was robbed while working at a bank). The Cymbalta greatly my panic attacks but did nothing for my pain. I'm in so much pain everyday and want something to help me manage but don't want to ask any doctors for pain pills because they'll think I'm a drug seeker... Lately I've been noticing more symptoms such as my left arm and my pinky, ring and middle fingers are tingling like pins and needles. Carpal? Not sure... I've been researching Lupus and other autoimmune diseases thinking perhaps my fibro is linked to one of those, but I am not sure. My CBC and panels have come back perfect so doctors don't feel a need to do further testing.
Lastly, after doing research I have come up with a hypothesis- I wonder if many of these connective tissues disorders/diseases are all the same thing? Lupus, Fibro, etc- all the same foundation but just somewhat different manifestations? Perhaps it just attacks all us differently for one reason or another? Just a thought...
That's all... Nice to meet you all!