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New Member

Date Joined Jul 2009
Total Posts : 7
   Posted 7/20/2009 9:17 PM (GMT -7)   
Hi everyone! Just wanted to give a brief intro- I was recently diagnosed Fibro a few months ago (after finally getting a PPO- Yay!). Honestly, I diagnosed myself through research and found myself a rheumatologist because all the doctors thought it was all in my head. Basically, I think my problems started as an infant when I had colic. I was always sick with strep throat and various infections as a child and then diagnosed with moderate scoliosis in middle school (over a 30 degree curve). I wore a back brace for 3 years/23 hours a day. In high school, I developed what I would describe as IBS (though I'm told it's just chronic constipation?). I had predominantly diarrhea (sorry, tmi) for 9 years- to the point where I would pass out from pain and lose bladder control. But I was told time after time it was all psychiatric. This last flare up in March switched me from IBS-D to IBS-C. I'm due to have a colonoscopy next week, so we'll see how that goes!

I have not been able to find a good doctor yet unfortunately. I was put on Cymbalta a few months ago for PTSD (I was robbed while working at a bank). The Cymbalta greatly my panic attacks but did nothing for my pain. I'm in so much pain everyday and want something to help me manage but don't want to ask any doctors for pain pills because they'll think I'm a drug seeker... Lately I've been noticing more symptoms such as my left arm and my pinky, ring and middle fingers are tingling like pins and needles. Carpal? Not sure... I've been researching Lupus and other autoimmune diseases thinking perhaps my fibro is linked to one of those, but I am not sure. My CBC and panels have come back perfect so doctors don't feel a need to do further testing.

Lastly, after doing research I have come up with a hypothesis- I wonder if many of these connective tissues disorders/diseases are all the same thing? Lupus, Fibro, etc- all the same foundation but just somewhat different manifestations? Perhaps it just attacks all us differently for one reason or another? Just a thought...

That's all... Nice to meet you all!

Fibromyalgia, Scoliosis, TMJ, PTSD, mild OCD.

Cymbalta 60mg

Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 7/21/2009 6:34 AM (GMT -7)   
Hi...and welcome!  From what I understand, Fibro is not an autoimmune disease. It is purely symptomatic and does not cause any damage to the body the way RA, Lupus etc does.  That's why it is so hard to find a doctor that will work with us to control the pain and unfortunatley, we are labeled hypochondriacs and chronic complainers. 
All my blood work comes back perfect also and I have been tested with several ANA's for the other diseases, but that isn't always a reliable test either.  So....I don't think the connective tissue disorders are the same thing at all but the symptoms are very similar to fibro.  Also, many with fibro have autoimmune disease along with fibro.  It's just so much fun, isn't it???  LOL!
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 7/21/2009 7:37 AM (GMT -7)   
Hi Cheeky and welcome. Fibro has not been classified as an auto-immune disorder but many with fibro do have auto-immune disorders. I hope they do get to the bottom of fibro someday soon and find the cause and maybe a cure, we can dream. I hope you find a good doctor that you connect with and will work with you on the pain control. I'm not on narcotics but I have been going to the same GP for many, many years and he knows I'm not a drug seeker, I'm the opposite I have medphobia. No one with chronic pain should be made to feel like a drug seeker.
Read the fibro 101 thread, second on first page, it contains lots of great info. Read back threads and ask questions. We come up with all kinds of ways to help with the pain. Heat in any form is our good friend.
Glad you joined us and we will be here to help you.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Forum Moderator

Date Joined Apr 2005
Total Posts : 17498
   Posted 7/21/2009 8:31 AM (GMT -7)   
HI, Cheeky, and welcome!  Many with fibro have irritable bowel syndrome.  Me?  I have Crohn's disease and causes some of the same symptoms.  Once you get a diagnosis of whatever is going on, the doctor should be able to help you.  You will have to watch certain foods, though.
We do get tingling with fibro.  You don't have carpal tunnel because it doesn't affect the pinky.  It is my understanding that carpal tunnel affects the thumb, index, middle fingers and the inside of the ring finger closest to the middle finger.  I've had tingling in my hands and feet.  Plus, I've felt like I've had water running down my leg but there is nothing there! 
As Marlee said, be sure to check out the Fibro 101 thread.  It's the first thread on the forum.  It used to be the second one so that's why Marlee said that.  There are links to good info about fibro in there and you will learn a lot.
I'm so glad you found us and joined in.  I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined May 2009
Total Posts : 194
   Posted 7/21/2009 9:49 AM (GMT -7)   
Hi Cheeky. Welcome to the forum. I'm sorry you've had so much to contend with. I have had some of the same problems, so I'll share what [little] I know.

IBS can indeed be chronic constipation OR diarrhea, or both! A diet high in fiber can help control the two extremes. Pro-biotics like Culturelle can help too. The less fat you eat, the better you'll feel.

The tingling in the outer fingers could be caused by a pinched nerve in your neck, called thoracic outlet syndrome. Muscle relaxants and/or gentle stretching of the neck and shoulders can help relieve the symptoms. Incidentally, tingling in the thumb and forefinger of the left had may be a sign of heart attack.

I don't take any pain meds for fibro. Rest, gentle massage and warm baths help me deal with it. Muscle relaxants have worked for me in the past but I'm not supposed to take them anymore due to a gastric motility disorder. This leaves me with only Tylenol and massage to relieve my back pain, which is not related to the fibro. My biggest complaint with fibro is the fatigue and brain fog. I take a low dose of Tofranil at night to help me sleep, but I often still wake up feeling like I never slept.

I know you will learn a lot here. All of our experiences are different, and yet the same. The best part of the forum is just being able to vent your frustrations with fibro to a bunch of caring people who understand.

{{gentle hugs}}

Regular Member

Date Joined Jun 2009
Total Posts : 222
   Posted 7/21/2009 9:57 AM (GMT -7)   
welcome to the board. I hope you can get as good advice as i have. This really is an understanding lot here. I kinda agree with what you're saying about them being connected but as the others say it's not a reactive auto immune condition. There are definately different levels of it tho as that is why i felt i didn't have it for years. I can do llots of sports for months on end but right now i can barely walk. So who knows eh?
Good luck and take care.
BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most! But it has its advantages!
Fibro, spinal arthritis and all that goes with it.

American Woman
Regular Member

Date Joined Jul 2009
Total Posts : 96
   Posted 7/21/2009 1:07 PM (GMT -7)   
I'm also a newbie and was just diagnosed with fibro. I think I've had it for a long time as I look back on all the things that have happened to me. I've had carpal tunnel surgery on both hands and the numbness is most in the thumb and the next two fingers. I also had lots of pain and muscle deterioration. I have found lots of good info here. I know you will too.

American Woman
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