Oh, Joie. What a horrible, horrible, overwhelming mess.
You vent away: I am horrified that you have to go through this, and you *definitely* need someone to talk to.
You know what? I have been spending a lot of time on the forums this week and I keep reading stories like yours, and I can't keep quiet any longer. There is something very wrong with a political system when it abandons its most frail and helpless citizens to injustices like these. It's not right.
I hope some of the Americans will be along shortly with some bright ideas to help you. I can't offer advice because I have no experience with your system, but I do send you lots of support and hugs.
I am so, so sorry you're dealing with this.
Co-Moderator Crohn's Forum. Medications for Crohn's
~~ Diet and Nutritional Therapy for Crohn's