fibro and headaches

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Veteran Member

Date Joined Feb 2009
Total Posts : 686
   Posted 7/27/2009 3:26 AM (GMT -7)   
I've now started day 2 with a nasty headache. It's all across the right side of my head. I've tried Excedrin Migraine - but to no avail. I had a headache like this a year ago and ended up in the ER.

Could this be fibro related? Are headaches part of the deal? Also, any suggestions for getting rid of this thing would be greatly appreciated.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 7/27/2009 3:39 AM (GMT -7)   
I have horrible migraines. Once they set in, if I don't have a triptan, Zomig, in my case to abort them, they can and have lasted for days. Zomig is my savior, however, it is a double edged sword. Once the blood vessels begin to expand (Triptans cause blood vessels to constrict), it feels like another headache coming on. I have to distract myself and wait until I can be sure it really is a headache and not just rebound from the medicine. Otherwise Advil migraine, cold packs, dark, quiet rooms, a combo of aspirin and codeine, and sleep is my only other route. Some use feverfew, but I don't find it particularly helpful.

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Date Joined Aug 2007
Total Posts : 6067
   Posted 7/27/2009 6:25 AM (GMT -7)   
Yep, headaches is part of it. I have had them for years on a daily bases, sometimes worse than others. Most of the time I can put in the background and not think about them.
Get better
luv and hugs
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Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 7/27/2009 7:08 AM (GMT -7)   
Me too.  I've learned to ignore them. 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content.Phillipians4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 Co-Moderator for the Lupus and Fibromyalgia forums

Veteran Member

Date Joined Feb 2009
Total Posts : 843
   Posted 7/27/2009 7:54 AM (GMT -7)   
Poor Myjoy, I know how you feel.  I started having migraines when I was 20.  Stress and always a change in the weather would bring them on. I still get them but I recognize when one is going to start and I take something for it then before it becomes a really bad headache.  A quiet dark room with a cold towel or ice pack on my forehead and a heating pad or the likes under my neck always helped too.  I feel mine are part of the whole fibro package.
I hope you feel better soon.
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
On the eighth day God created Golden Retrievers.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41814
   Posted 7/27/2009 8:28 AM (GMT -7)   
I find that the headaches I get come from the tense muscles in my neck and shoulders. I use my bed buddy and that usually takes them away. If you don't know what one is, I will explain it. It is like a long tube filled with rice. I heat it in the microwave and put it around my neck and it really helps. You can get them at Walmarts in the pharmacy part. Also sometimes in sporting goods. It is something that you might want to try. The heat feels so good.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Mar 2009
Total Posts : 71
   Posted 7/27/2009 8:58 AM (GMT -7)   
Hi sorry to hear about your headaches.  :(  I was having a problem with them once in a while, and my doc put me on blood pressure medicine.  It supposedly thins the blood, and helps with migraines.  My mom takes it too, she also has the imitrex injections she gives herself when a migraine comes on. 
Hope you can get some relief...
Fibromyalgia, Chronic Fatigue, GERD, Irritable Bowel, Mitral Valve Prolapse, Depression
Rx:  Lyrica 100mg 2x, Prilosec OTC, Tramadol, Paxil
Even though the journey's long,
and I know the road is hard,
there's One who's gone before me,
He will help me carry on...

Veteran Member

Date Joined Feb 2009
Total Posts : 686
   Posted 7/27/2009 9:20 AM (GMT -7)   
Thanks everyone, for your advice. It's a little better than earlier this morning. I think I'll be taking a nap soon, though. :)
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.

Regular Member

Date Joined Mar 2009
Total Posts : 235
   Posted 7/27/2009 11:17 AM (GMT -7)   
I wake up with a headache. Sometimes when I take darovcet it will go away, while other times I will have it all day. I try to ignore it most days but somedays the only to get reflief is to take a nap.

Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 7/27/2009 11:41 AM (GMT -7)   
When it is a migraine headache, caffeine helps me. Also ice at the base of the skull is helpful. When it gets really bad turn out the lights, lie down and be very still and try not to cry because that makes it worse.

Hope you feel better soon.

Irish Babe
Veteran Member

Date Joined May 2007
Total Posts : 1380
   Posted 7/27/2009 11:49 AM (GMT -7)   

When I was younger, I rarely ever had a headache. Usually, that would be b/c I was hungry. In 1997, I started to get headaches, and they were horrid. I would be at work and my head felt like it would explode. My glasses felt so tight against my head. I went to the dr, she tested me for migraines, told me that wasn't it. I was given a med for them, can't remember the name of it right now. You had to put it under your tongue. The med really didn't help, just made me sicker. I read somewhere that taking an Advil and caffeine (Pepsi, my personal choice) could help w/ this pain. It did help a bit, better than rx med, anyway.

I didn't have a problem w/ headaches very often, till just over a month ago. I had a headache that lasted a full wk, I ended up in ER and admitted to hosp. The past few wks, I have been getting them every few days for a couple of days. The past few days I have been getting a buzzing type of sensation in my gums (but not dental related), my jaws have been so tight and tense, the head feels like it is in a vise. I have rubbed the areas, used the heating pad, rubbed the roller-ball freezer thingys (technical term) on all areas. I am still living w/ this pain. I only have 1 Pepsi a day, trying to be good. I can't take Advil w/ my rx meds, so that doesn't help.

If anyone has a pretty rubber mallet that they would be willing to share, I would really appreciate the loan. wink   We could just keep passing it around, so everyone gets a chance at pain relief.

Hope you are all having a headache-free day!!

God bless.  Alice.

Regular Member

Date Joined Apr 2009
Total Posts : 319
   Posted 4/1/2011 11:47 AM (GMT -7)   
I can't remember "NOT" having a headache.  I have been trying for years to find out why I have headaches all the time.  My neuro asked me when they start and when they stop...I told him, "when I go to bed I have one, when I wake up I have one, you tell me, when do they stop and start?"  I have had MRI's, Cat Scans, test after test after test, sleep studies (which included a CPAP machine that they just knew would get rid of my headaches shakehead )was put on anti-depressants, Topamax..taken Excedrin Migraine, Tylenol, Advil, Motrin, and now Flexeril...I still have the headaches.
Not once did any one of these doctors mention Fibromyalgia in association with my headaches.  I was just reading a book, "Living With Fibromyalgia" and found that headaches are a definite symptom.  So after reading that, I did a search here in this I have an answer.  Thank you.
I get so aggravated with the medical profession! mad

Regular Member

Date Joined Dec 2009
Total Posts : 130
   Posted 4/1/2011 12:39 PM (GMT -7)   
I get a headache and its here for 3-5 days.Just hibernate with a heating pad and visor on my eyes.Has anyone been on plaquenil for fibro?

Regular Member

Date Joined Apr 2009
Total Posts : 319
   Posted 4/1/2011 12:44 PM (GMT -7)   
I can't hibernate shakehead .  My headaches never go away and I have to work full time, I am my only means of support.  I know I go to work with headaches that would keep most people in bed...normal people any ways.  Those of us with pain learn to deal with it much better than any of them do. wink
I can't help you with that med, I have never had it.

Regular Member

Date Joined Dec 2009
Total Posts : 130
   Posted 4/1/2011 1:16 PM (GMT -7)   
sorry to hear that DEb.Ive been admitted also for headaches,shoot me up with morphine and a buncha stuff.It sure feels like heaven when its gone.Sometimes i wonder if alot of the meds bring on headaches.I feel for you Deb,especially if youre the main breadwinner.Thats gotta be rough...way too much stress.Have you tried for a disability?

Regular Member

Date Joined Apr 2009
Total Posts : 319
   Posted 4/1/2011 1:40 PM (GMT -7)   
Thank you, and no, I don't feel I am at the disability level.  I deal with the pan daily, yet am able to deal with work and such.  I'm a tough old bird! smilewinkgrin

New Member

Date Joined Feb 2011
Total Posts : 5
   Posted 4/3/2011 8:26 PM (GMT -7)   
Hi, new here. I've been observing but not participating until now. Just a little shy.
I started having headaches more and more frequently and the MD said they were migraines. Then, suddenly I started getting killer forehead throbbing headaches at the peak of intimacy (if you know what I mean, not trying to be improper) Now the MD thinks they must be cluster headaches, but she said men generally get these and women get the migraines. I don't know which it is, I just know they hurt. The MD gave me Sumatriptan Succinate 50 mg. I hope this helps someone.
I would like to thank everyone for all the information and kind words on this forum. It has been so helpful. It's comforting to know you are not alone with this crazy syndrome. I wish they would at least call it a disease, maybe then MD's would take it more seriously.. Sorry, just a little rant.
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