cbear, I'm sooo sorry you are having such a rough time. I know you have seen a lot of doctors but you need to see a doctor that believes in fibro. You need a doctor that will check you out thoroughly, too. There are other problems that have the same symptoms as fibro. I'm a little worse than I was when first diagnosed 22 years ago but you sound like you are a lot worse! Fibromyalgia isn't a problem that gets progressively worse...at least that's what the doctors say. As I said, I've gotten worse but not a lot worse.
Your depression is definitely playing into this. Depression and stress cause more pain with fibro. Most of us don't produce enough seratonin in our brain and so we take antidepressants. Perhaps that's why it was suggested that you see a psychiatrist. I don't know all your medications but a doctor would be able to give you something that doesn't interact with what you are taking now. Maybe you are taking things that aren't helping you, too, and perhaps you can get rid of those meds. It is important, though, that you take the medication as directed by your doctor. Taking more is not good and that can cause the doctor to think you are a drug seeker.
You need to try to relax and not feel like no one cares. I'm sure your daughter cares a lot but she is young. She has some growing up to do and she doesn't understand about this illness. Adults and doctors don't understand it! But, I know your family loves you but could be frustrated that they can't help you.
Do you have any hobbies or things you enjoy doing? I find that if I get busy doing something I enjoy, the pain will fade in the background. Some like sewing or art or writing...we have a mod that loves making quilts. I love working on genealogy. I'm mentioning these to give you some ideas. Doing things like this do help to take your mind off your pain.
Moist heat could help you. Hot showers and baths make those muscles feel so much better. Some of us have a Bed Buddy. You can get these at Walgreen's and other places. You put them in the microwave and heat them up and they give off moist heat. You can make your own, too. Take a tube sock, fill it 2/3's full of raw long grain rice, and tie a knot at the end. Pop it in the microwave and it will give off moist heat due to the moisture in the rice. It feels wonderful on those aching muscles, too.
Be sure to keep moving. If you sit or lay too long you will be stiff as a board and in more pain. Do gentle exercises to start out. I use these daily. There is a list of them in the Fibro 101 thread, which is now the first thread on the forum. Also, light exercises are good for you. I do a lot of walking. If you have access to a pool, swimming or water exercise is good for you.
I hope you get some help soon. Please try not to be thinking about how you are feeling 24/7. Instead, start thinking about all the good things in your life. I know you have that. You just have to look. Look around at the flowers, the clouds, etc. These things are so beautiful and peaceful and you need some peace in your life. If you are a praying person, that can relax you too. But, I do hope you are feeling better soon. Please let us know how you are doing. We really do care about you. I'll be waiting to hear from you.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7